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Mark... thank you.

I appreciate the feedback. So...based on Joe's suggestion, I have already ordered some Northshore Megamax's.

I must say, too, that I had a great night last night! I guess it doesn't take a genius to do this, but I heeded the advice of another friend going thru this and severely limited what I drank after dinner time. And....lo and behold, I had remarkably less pee to pass during the night. I got up half as many times as the night before (still setting my timer...but for longer time periods)...so I am encouraged.

I appreciate so much that you and Joe would take the time to share what you did. It's good to know I'm not alone. (And....I sure do hope to avoid the catheter!)

Robbot

 

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@Robbot Good luck. I added a new thread that follows this discussion. I hope you progress well.

 

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@DWLCPAJD Gotcha. Thank you.

 

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Hi! I never thought that I would get cancer. However I was diagnosed with cancer with a PSA of 4.15 in February. I was shocked. I had my prostate removed on May 3rd. My doctor said I would have some leakage.
“SOME LEAKAGE IS AN UNDERSTATEMENT”. I am able to urinate a couple times a day, but my Depends with pads are so full of urine every 4 hours I have to change it. I am very discouraged. Sometimes I feel the cure is not worth it. I do my Kegels everyday. Do any of you have any suggestions on how to tolerate full of Urine? I know some of you or maybe all of you are going to say just change it.

 

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@Health26 welcome to NAFC, a club people would prefer not to belong too! I am post radiation with urgency as principal remaining symptom. There are threads below you may have reviewed that discuss much of what you have mentioned.

I am thinking about creating a topic related to product size and capacity. However my product the GoSuoreme pull-up has a higher capacity and a good dryness against ski characteristic. So in general 4 hours is not an issue unless there were multiple significant voids.

The fact that you achieve 4 hours Is good for a Depend. I believe many post surgery patients who have posted here would say you are still very early in the recovery.

We all wish you well on your progress.

 

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Hi Health26,
I sent you a private message to your profile inbox.
You’re Kinda sorta correct. Need to change, but a more reliable product might make you more comfortable while you are healing. Things will undoubtedly improve in both your treatment physically and mentally. You’ve experienced a traumatic procedure. It’ll take way more time.
A better quality of life is still ahead of you.
J

 

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Hi I saw your post and wanted to respond. Yes this cancer sucks. However in the cancer world we are in the best of the crappy lot. I was diagnosed with a psa of 9.75 which like you is on the low end compared with the horror stories here.
I had RALP in nov 2023 and today is exactly 6 months post surgery, which is shocking. Im happy to report undetectable psa as of my bloodwoork done yesterday which frankly makes me very happy due to my high grade gleason 9 score which is a tough pill to swallow. Im 54, I intermittently fast, excercise, and eat a health diet. I cut out red meat , coffee, and dairy and most added sugars except for ocasional desserts. I also take a slew of supplements as well, and several servings of soy milk. not sure if any of this is helping but figure it cant hurt. I also lost 25 lbs since surgery on purpose since belly fat and inflamation are not friends of the c word either. As fas as your incontinence mine was horrible for months. Just walking I would soak pads, it was unbearable. I do kegels but not a kegel junkie and maybe I shouuld have been, I think they help along with pelvic floor excercises. However I do walk amd ride bike, do kegels intermittently, but I also cut out alcohol and all sugary drinks or sodas. Dont drink anything that irritates bladder, no caffeine either. I started leaking less at around month 4-5 and now at month 6 Ive almost regained full continence except for a bs spot here and there. I now only use the ultra thin shield pad in case I have a small dribble or drop but for the most part even with heavy activity Im 99 percent dry, dont even use a pad at night. Mind you I was soaking even ten pads a day sometimes, brutal. The moral of the story is that it sucks but it takes time brother, there are no shortcuts. Although Ill say that heavy talcum powder in the crotch area helps keep you dryer, Also planned bathroom regular trips help empty bladder. I also purchased incontinence underwear at amazon which helps because they absorb some of what slips through pad. Yes this sucks but its better than an aggressive ball of cancer killing you from the inside, trust me this is better, just realize youve got some some tough months ahead and with a Gods help you will be dry in a few months also. Any help you need reach out man. Cheers

 

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Thank you for your words of encouragement. You have given me some great things to work on. I appreciate it very much. Thank you

 

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Unlike many here who have had prostate issues my bladder issues are more historic and to be frank the result of self induced injury or activity! I wet the bed until I was 6 and was changed into terry nappies and waterproof pants by our nanny after tea and then bath time. So from about 6pm I was back in nappies. My siblings were dry before me so if we were playing or watching tv after bath time I was the only one still in nappies. I was then dry for a few years but started wetting my bed at prep school aged 11. It was a small all boys school, only about 85 or so of us and there were a few boys who also wet the bed. We had to report to the school matron before bed and were put into terry nappy pants and waterproof pants. Of course we also had waterproof sheets on our beds too. It was embarrassing but I don’t remember ever being teased but I was a 1XV rugby player and a prefect in my two years. I continued to wet the bed regularly until I was 14 so senior/public school dorms was really embarrassing - wet pyjamas, wet beds and waterproof sheets. Back at home during the holidays it was horrible. I was the eldest of four siblings, the youngest was 4 and even then our nanny would put me in nappies. I don’t think my parents actually knew that I still wet the bed. It was a very old fashioned upbringing! I do remember a friend of one my siblings wetting the bed when he came to stay and my mother being really cross but also realising I wasn’t the only one. When my mother found out/was told that I too still wet the bed I was made to feel so small and moved bedrooms so I was close to our nanny like a baby would be. I was then dry throughout my later teens and early twenties bar having too many beers until I had a spinal injury playing rugby and started wetting the bed again every night. Subsequent spinal issues - rugby, army including 3 years in special forces, and skeleton bobsleigh, - all great fun but self inflicted have now left me incontinent and back wearing nappies 24/7.

 

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@Health26
Dont worry too much about this it will get better. It does take a while to feel again.

 

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Hi! I never thought that I would get cancer. However I was diagnosed with cancer with a PSA of 4.15 in February. I was shocked. I had my prostate removed on May 3rd. My doctor said I would have some leakage.
“SOME LEAKAGE IS AN UNDERSTATEMENT”. I am able to urinate a couple times a day, but my Depends with pads are so full of urine every 4 hours I have to change it. I am very discouraged. Sometimes I feel the cure is not worth it. I do my Kegels everyday. Do any of you have any suggestions on how to tolerate full of Urine? I know some of you or maybe all of you are going to say just change it.

It will get better. I had a catheter in for 10 or 12 weeks and that thing leaked outside as much or more than it drained the bladder from the inside. It is frustrating and not being able to do anything but sit around and read or watch TV was agonizing. But it will get better. Get through this, do the exercises, and yes, change the pad or pullup as often as necessary. Just remember, it will get better.

 

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I am Froi age 71 and just had RRP with nerve sparing on 4/24/24 and am on my one month and 2 days post-op. I was Group Gleason 4+3 and my surgical path showed 10% of the prostate involved with no disruption of the margin.my PSA on diagnosis was only 1.9. , but the incremental increase of 0.3 every 2-3 months from a base of 0.98 was the red flag for biopsy. I will have my PSA taken by June 6 and hoping it will be ok so I won’t have to go through the 40 day radiation therapy.
Like most members I read in the thread, the two most immediate concerns are the : incontinence and the resulting ED. Presently I use 4 pads with stress incontinence happening when I strain or when I move sitting down. I do my Kegels religiously 3 x a day. Re: ED, I noticed some penile shrinkage or retraction and my 5 mg dose of generic Cialis is helping a bit to restore circulation per my MD but even with a challenge dose of 100 mg Sildenafil does not do anything at all. I know from my readings that the leakage will improve from as early as a few weeks to a year and I am early in the game. Regarding the ED, I guess I will just have to wait for my nerves to recover and hope to have some spontaneous erection no matter how mild before the magic 2 - year limit per what the studies say. Like the rest of us I am keeping a positive attitude and wishfully waiting for a turn after 3 months.

 

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Hello I am a female and 46 years old. I thank God I found this group. I have to wake up every hour to pee at night how can I deal with this pls

 

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First off I would urge you to go and see your doctor as there may be an underlying issue that is causing this and what is called nocturia.

 

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Unlike many here who have had prostate issues my bladder issues are more historic and to be frank the result of self induced injury or activity! I wet the bed until I was 6 and was changed into terry nappies and waterproof pants by our nanny after tea and then bath time. So from about 6pm I was back in nappies. My siblings were dry before me so if we were playing or watching tv after bath time I was the only one still in nappies. I was then dry for a few years but started wetting my bed at prep school aged 11. It was a small all boys school, only about 85 or so of us and there were a few boys who also wet the bed. We had to report to the school matron before bed and were put into terry nappy pants and waterproof pants. Of course we also had waterproof sheets on our beds too. It was embarrassing but I don’t remember ever being teased but I was a 1XV rugby player and a prefect in my two years. I continued to wet the bed regularly until I was 14 so senior/public school dorms was really embarrassing - wet pyjamas, wet beds and waterproof sheets. Back at home during the holidays it was horrible. I was the eldest of four siblings, the youngest was 4 and even then our nanny would put me in nappies. I don’t think my parents actually knew that I still wet the bed. It was a very old fashioned upbringing! I do remember a friend of one my siblings wetting the bed when he came to stay and my mother being really cross but also realising I wasn’t the only one. When my mother found out/was told that I too still wet the bed I was made to feel so small and moved bedrooms so I was close to our nanny like a baby would be. I was then dry throughout my later teens and early twenties bar having too many beers until I had a spinal injury playing rugby and started wetting the bed again every night. Subsequent spinal issues - rugby, army including 3 years in special forces, and skeleton bobsleigh, - all great fun but self inflicted have now left me incontinent and back wearing nappies 24/7.

Very similar experience- also back in nappies on and off at boarding school in south of England.

 

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It has been 3 months and 9 days post RRP and so far it seems I have improved a lot mainly on my first concern : stress urinary incontinence. I am now dry at night so I don’t wear pads at night and almost dry during day time except for rare leaks from severe coughing. I just wear a pad in case. I still religiously do my Kegels although unlike some of our members who could hold pelvic muscle contraction for 10 seconds, I would admit that the most I could hold one is just for 3-4 seconds as I feel I lose “grip after the 4th second. I just do 50 contractions a day which I think helped a lot. I had to stop seeing my PT after two sessions as it really boils down to the PT’s advice of “ doing your Kegels in whatever situation you’re in - walking. jogging, doing daily chores or even just lying down. “

My first PSA post op done a month after surgery was undetectable at 0.008.So far so good . But I would not relax at all , as a friend of mine who had PSA that was undetectable for two years suddenly had a PSA of 5. He had to undergo radiation and hormone suppressant up to now and still doing ok after 8 years.

Regarding ED I still have no spontaneous erection in spite of 10-20 mg of generic Cialis every other day and use of VED every 3-4 days. I will see my urologist again by September 4 and hopefully he could advise me something else although I am aware that wishful waiting for up to two years is our only recourse. Even urologists are baffled by the spectrum of ED getting better in a few weeks to two years and to some more than 50% of patients not getting better at all and thus resorting to surgery or shaft injections. I am still keeping my fingers crossed that hopefully soon that elusive erectile goal will be achieved.

So that is for now for my journey. Let’s all hang in there and wait for Chapter 2 of the American saga, I.e. Erectile Dysfunction etcetera…

 

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Hello all,
56 radical prostatectomy (robotic) 2 weeks ago. Catheter out 5 days ago. I expected leakage, but that hasn't really been my issue. It is urinary urgency. During the day I'm managing OK, but night is a nightmare....waking up so many times. I make it to the toilet, but how do you heal after surgery with such terrible sleep? Anyway, thankful to discover this forum.