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Archives1
Staff member
Hello. I’m new here as I just had my prostate removed 7 days ago. I will have my catheter removed in 5 days and I’m worried about what happens after that. Will my urine just flow out with no control? I have my pads ready to go and not looking forward to this at all. Thanks for a great support group.
Archives1
Staff member
Welcome to all! Just some things I learned over the last 12 months.
We are not doctors, but can share our experiences whether bad or good.
You can search the forum using the search magnifying glass at left middle to search. Be sure to hit the blue text to see the advanced search options. The search requires 4 or more characters. The advance search will allow you to search thread titles or post within a thread.
If you want to follow (receive updates), simply check the Email Alerts box to the right of the topic title. The box next to YT is Your Threads which will appear on your profile at the bottom.
If you found a post helpful, click on 1 to 3 of the Hearts to let others know it was helpful or to let the person posting know you understand - all optional.
For fellow Prostate Cancer survivors
Read the following with as general experience - everyone is different
1) follow your doctors advise, (Surgeon, Urologist, Primary Care Physician )
1A - Use the patient portal for your doctor's office to ask questions. Several have found that this has been a better way to contact their doctor
2) we are not doctors,
3) you just had major surgery even if the outside of your body does not look like it, on the inside you have about a 3 inch cube of area removed and rearranged, and
4) time sucks - really patience is important and understanding that 3 to 6 months is normal - but several like me, are 6 to 12 months in healing.
Are you dry at night? Hopefully, you are which means you are improving.
We are not doctors, but can share our experiences whether bad or good.
You can search the forum using the search magnifying glass at left middle to search. Be sure to hit the blue text to see the advanced search options. The search requires 4 or more characters. The advance search will allow you to search thread titles or post within a thread.
If you want to follow (receive updates), simply check the Email Alerts box to the right of the topic title. The box next to YT is Your Threads which will appear on your profile at the bottom.
If you found a post helpful, click on 1 to 3 of the Hearts to let others know it was helpful or to let the person posting know you understand - all optional.
For fellow Prostate Cancer survivors
Read the following with as general experience - everyone is different
1) follow your doctors advise, (Surgeon, Urologist, Primary Care Physician )
1A - Use the patient portal for your doctor's office to ask questions. Several have found that this has been a better way to contact their doctor
2) we are not doctors,
3) you just had major surgery even if the outside of your body does not look like it, on the inside you have about a 3 inch cube of area removed and rearranged, and
4) time sucks - really patience is important and understanding that 3 to 6 months is normal - but several like me, are 6 to 12 months in healing.
Are you dry at night? Hopefully, you are which means you are improving.
Archives1
Staff member
Hello, I am new to the forum. I had TURP surgery September 21st. My doctor did not prepare me for the incontinence I am now experiencing. I asked a lot of questions and this topic did not come prior to surgery. My subsequent research has enlightened me to the fact this condition could last 6 months to a year or beyond. Not a happy prospect!!!! I am doing Kegel exercises in hopes that progress can be made to fix this problem!!!! I am recently retired and plans were to do some travelling but that seems problematic now. I still have frequent urination which I was hoping would go away and now I have incontinence.....not what I signed up for!!!!
Archives1
Staff member
Hello and thanks for such a great forum with lots of helpful people and good information. My husband is on the verge of being totally incontinent and we are struggling to figure things out. He is 77 with congestive heart failure and must take a diuretic. He also is losing his ability to walk and get in and out of bed and to the toilet. Doctors, nurses, caregivers have no suggestions or solutions. He needs to wear 'diapers' almost all day and night (when the urine output is abundant), which has caused UTIs and the need to stand up and shower a couple of times a day which is getting risky (he is also 6'5" which is a long way down if he fell).
Are there diaper products where the wetness is 'wicked' away from the skin so that he isn't laying in a wet diaper? We are concerned that he will always have a UTI and then skin problems. I've read about condom catheters, but am afraid that it might be too complicated. Any advice or information will be greatly appreciated! This has been going on for months and the sleep deprivation is as debilitating as the incontinence. Thank you!!!
Are there diaper products where the wetness is 'wicked' away from the skin so that he isn't laying in a wet diaper? We are concerned that he will always have a UTI and then skin problems. I've read about condom catheters, but am afraid that it might be too complicated. Any advice or information will be greatly appreciated! This has been going on for months and the sleep deprivation is as debilitating as the incontinence. Thank you!!!
Archives1
Staff member
Hi. I’m Michael. I’m new to this. Noticed I was making more frequent trips to the bathroom in last few months. A few weeks ago I had an accident on the train coming home from work. I wet my bed about a week or so later. I made an appointment today that’s a month away. Want to Thank the people for the help and encouragement I got here last night. It was my first time here. I’m just nervous about the whole thing right now.
Archives1
Staff member
Hi everyone, feels good to be here
I’m a girl and I’m 25 years old and I’m from Africa. I must admit that living life has been terrible as I still bed-wet at my age.
At first I wasn’t taking it seriously because my older siblings experienced same and they stopped. None of theirs exceeded to this stage, Max they stopped was at 12years old.
I can’t emphasize enough on how much joy and fun this has deprived me. I have brought myself to live in discomfort but how long would I do this for?
I don’t sleep out, I don’t visit people and sleep over and when I manage to, I start to panic at dusk. In most cases I make sure to keep my eyes wide open all through the night or better still lie that I prefer the floor over the bed, so I subject myself to torture by lying on the tiles everyday. Even when it’s cold, I still have no choice.
My family are not aware of this, they thought I had stopped. My mom especially. I can’t let her know, it’ll bother her so much and I don’t want her to die. I usually don’t keep friends so I don’t have anyone I can confide in. Relationship? That’s even worse because how can I in this condition. I’m lonely with no one to share my pain with. I have tried, searched on google sometime and I saw there was no cure for it, however I took all the measures I found that could help. It still didn’t work. 
Worst is, it is not consistent. I could be dry for a week or two and when it comes, I wet for like straight one week. And then it stops, comes whenever it likes again. It makes my life miserable. I am tired
I’ve never visited a doctor as regards this because I’m embarrassed
I’m a girl and I’m 25 years old and I’m from Africa. I must admit that living life has been terrible as I still bed-wet at my age.
At first I wasn’t taking it seriously because my older siblings experienced same and they stopped. None of theirs exceeded to this stage, Max they stopped was at 12years old.
I can’t emphasize enough on how much joy and fun this has deprived me. I have brought myself to live in discomfort but how long would I do this for?
I don’t sleep out, I don’t visit people and sleep over and when I manage to, I start to panic at dusk. In most cases I make sure to keep my eyes wide open all through the night or better still lie that I prefer the floor over the bed, so I subject myself to torture by lying on the tiles everyday. Even when it’s cold, I still have no choice.
My family are not aware of this, they thought I had stopped. My mom especially. I can’t let her know, it’ll bother her so much and I don’t want her to die. I usually don’t keep friends so I don’t have anyone I can confide in. Relationship? That’s even worse because how can I in this condition. I’m lonely with no one to share my pain with. I have tried, searched on google sometime and I saw there was no cure for it, however I took all the measures I found that could help. It still didn’t work. Worst is, it is not consistent. I could be dry for a week or two and when it comes, I wet for like straight one week. And then it stops, comes whenever it likes again. It makes my life miserable. I am tired
I’ve never visited a doctor as regards this because I’m embarrassed
Archives1
Staff member
Cheese dill, that was me three weeks ago. A few public accidents and a wet bed. I was sad and confused. Please seek medical help. I was ashamed, but kind people out here supported me and helped me to seek help. I wear diapers now cause it’s better than peeing my pants on a train or anywhere. Please seek help and you can come out here whenever. There are many kind people out here.
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