sex and incontinence

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We've had topics/discussion of dating, dealing with explaining to established partners.
We haven't much dealt directly with the issue of having sex. Surely, that contributes to reluctance at dating.

Examples: the effects of nervousness on urgency.
Cleanliness has been mentioned but bears repeating.
Afterwards: Has anyone figured out why sex greatly increases the need to pee - and the urgency? That is common enough with regular couples that it isn't as hard - I hope. You encounter it, you get over it. Except it is, for a "newbie".
Sex, incontinence, and the link to UTIs?
For men with prostate problems or a prostatectomy: There is the ED (Erectile Dis-function) issue. Are there drug interaction issues between the two conditions' medications?
What about those who self-cath?
We read enough here - and experience – that certain movements & positions are linked to episodes, whether a "small spurt" or full emptying. You don't have to be practicing "creativity" of positions to encounter that - and play, before or after, adds to that issue.
What if both are incontinence maybe at different levels too?

I'm not trying to discourage anyone, but we ought to be a big enough sample that someone here has answers, information, advice, or more questions.

I'd like to add, just as a precaution, that we don't need to be "explicit" or lascivious (Did I spell that right?). Humor is good; being hurtful is not. Trolls need not apply.

Thanks, Gang.
 
My wife has always been one to pee right before and right after sex. I always have had an need after to as well. Figured it was natures way to clearing things out. After my bladder decided it wanted to do other things, I started also going beforehand. Here almost 20 years later, I still find it very disturbing if we are just warming up and she touches my diaper. I am self conscious about it. She says it is nothing and she does not care. I sometimes use a catheter when my spasms are really bad. The ability to allow it to drain really quells those. I do not keep it in all of the time, but I have had it in when she decided she wants to cuddle. I have to excuse myself and remove it as it becomes a real problem then.

During the act, we usually have a towel down just due to normal things. We have a protective cover over the mattress and under the sheet as well all the of the time. I have had times where felt the spasm start and I just slip out and wait it out over the towel or run to the toilet. She understands and says it does not bother her. I feel it does and kind of ruins the moment.

It has for sure created a serious pull back in our relations. When I first started having issues, we were young and starting a family. The first pregnancy was bad for her and we had almost no sex during that time. The second came shortly after and again it was a streak of nothing. After their birth we got busy with life and caring for them. Now we might have sex 4-5 times a year maybe.

We both want it, but the problems and life seem to really quell the act.
 
My bladder apparently never completely empties. When going through all that testing, they said the amount i had left over was normal. So I can come back from bathroom, and just swinging my legs to get back in bed gets a squirt. I've figured that one out, and can usually bear down (Kegel?) enough, but! There seem to be movements I can predict and some I can't. It slows down the mood, for sure.
 
This is a great topic and deserves attention and I truly hope everyone is real And respectful about there experiences Because we all need love not always sex but definitely love. I am very lucky to have a wife that truly loves me and understands me and my body and doesn’t even hesitate about me wearing a diaper. During our intimate times we are very matter of fact and understand there might be some cleaning to do afterwords. Yes it does take me some extra time sometimes to get in the mood because of my guilt over the diaper but she doesn’t care in the least so my thoughts usually don’t come charging in and shut things down for me. We have to understand who we are and hopefully find a partner that can do the same and just live and love!!
 
We have a waterproof PUL mattress protector and use a towel or underpad. Just go beforehand and afterward and no issues. If there are any leaks the towel gets them. Easy cleanup. If I am making love to someone that I love, honestly I don’t care about leaks from either party. They happen sometimes. Oh well. Life is too short to be affectionate. Especially when we all have to social distance now. Feel bad for folks who want to date but are facing covid. That just is wrong on so many levels.
 
I'm glad you brought the topic up Alas this is something that needs to be addressed!
Turns out when one truly cares sex is intimacy and not a pornographic bodily release program.
 
Hi @Maymay941, that is the way it truly should be. Sex is about intimate feelings with someone you truly care about. In that way it is a satisfying, loving experience. I think true love is the key!
 
Simple solution for us: wear a condom Right from the start at the tip of the penis until you
Both are ready to Enter. Take it off right before entering. The condom
Catches all the urine allowing both to be relaxed and enjoy each throughout your experience.
 
Sorry, my remarks sounded judgementa but i guessi think there has to be a silver lining to incontinence and it is true caring true affection for true intimacy and incontinence is the litmus test.
One might want casual experimental fun with no strings but there always have been hearts attached to those strings and the times we live in demand caring trustworthiness in those we let get close for so many reasons.
 
My incontinence began two weeks after my ex-husband and I separated. There are many reasons I wish we could have stayed together; one of them is so I’d have already had a partner when it happened. Starting a new relationship while incontinent is some kind of hell on earth, alright.

Since I’ve been incontinent (five years now) I’ve only dated one person for a couple of months, earlier this year. I basically could never sleep when I was with the guy, because I didn’t want him to see my diaper. I had to make sure I was awake after he was asleep, and before he woke up. It was a total drag. The sex was entirely unsatisfying because all I could think about was how I wasn’t going to get any sleep afterward. None of that dating was worth the fatigue nor the destructive shame I felt about my body.

I‘ll be brutally honest: I don’t think I’d be aroused by a NEW partner who was 1) incontinent, 2) in diapers, or especially 3) a bed wetter like myself. So I’m completely disgusted with my own self, diapers, and bedwetting to the extent that I have ZERO arousal. Notice I say NEW partner. I can think of three ex boyfriends / husband who it wouldn’t have bothered me with, if they became incontinent DURING our relationship. But for a new partner, no, it grosses me out. I know that’s especially rude given my own incontinence, but that’s how I feel. Who can fall asleep knowing the person next to them may piss on them in the middle of the night? Not me.

Having had reproductive cancer and a hysterectomy (which removes parts that nobody talks about, too - think: upper half of vagina - yes, really) didn’t help. Antidepressants also cancel sex drive.

So I don’t go there in my mind. When I’ve bothered to try, I’m so repulsed that I can’t tolerate the thoughts. It’s much better to avoid the revulsion.

I used to love sex and had a very active sex life from age 17-39.

Now orgasmic sensations just remind me of bladder spasms, and flexing the pelvic floor muscle just reminds me of holding in pee and doing Kegels. There are so many reasons sex is over for me.

As for living alone, I hate it, especially during COVID. No hugs even from friends... not that I have many of those here in Utard. I haven’t lived here for long as an adult; I’ve lived in Chicago, SF, NY, and California primarily. The social isolation I experience in ultra-conservative Utard is
Soooooo. Heavyyyyyy.
I never should have moved back here. I’m not a proponent of regret but leaving CA was the worst mistake of my life and I’ll always regret it. I had such an extensive, established family of my choosing there. Even though I’m in the midst of it, I still can hardly believe that the kind of social isolation I feel, exists. I have my parents, a cousin, my cat, and a scant few acquaintances. But I’m an extrovert! It’s excruciating. I was inches away from killing myself twice in 2018. I think about suicide most days. Yes, I see a social worker, a psychiatrist, and I do group therapy. It’s not enough. I’m unbelievably far from content. Forget happy; now I only strive to feel some measure of “content.”

Feeling this kind of depression is it’s own sex revulsion. I feel like I’m paralyzed and trapped in the deep end of a pool of concrete.

I miss almost everything about having a partner. Prior to being married, I always had a boyfriend, usually one I lived with. I’m so sick of living life without being held, without someone to share life with, like today when I tried “Pumpkin-Seed Gouda” and “Oat Milk.” Unfortunately to get that kind of intimacy (i.e. snuggling in bed), one also has to put out sexually, which I have no interest in any more. Sex for me ended when I was 39. I don’t believe in “never,” but it’s unlikely I’ll be willing to expose myself to being physically vulnerable with another human ever again.

You should see my nightmares. Actually I wouldn’t want to terrorize someone else with them. Almost every night I dream that someone *almost* likes me, but I never end up being quite enough. After five years of these night terrors - hell, even after just five nights of them! - my sleeping brain has convinced my waking brain that I’ll never be good enough for anyone (or does my waking brain convince my sleeping brain?). These nightmares are yet another reason I dread bedtime, on top of bedwetting terror.

As for ED, most men over age 30 have it - like, 95% - so guys, truly, if it’s a problem you experience, know that you’re as “normal” as it gets. No, it’s not the most pleasurable sensation for a woman to experience but I guess when I used to have sex, I felt ED was better than nothing. The biggest way ED is a problem for women is that it’s extremely difficult not to take it personally as a sign that you’re not attractive enough - even though we all know ED is “normal.“ For me it always triggers a revulsion thought pattern of, “Wow, how much porn have YOU been watching, that you don’t have anything left for a REAL woman?” or, “Wow, how much porn have you been watching that you can no longer be turned on by a real woman?”

I hate the rampant free online porn in our society. It’s sickening, frustrating, and depressing that it’s a part of the conversation in modern times. MOST of my female friends agree it’s a huge turn-OFF to know you’re being compared to all those women. ALL of my female friends agree with me that men, especially under age 40, no longer know how to make love, because they grew up with porno jack-rabbit sex. So older men who grew up having REAL sex, rest-assured, you actually have an advantage over the young guys these days.

When I used to have sex, I always had a towel nearby or under the bed, for fluid clean-up afterward. I’ve never had a urine accident during sex, but then again, I’ve scarcely had sex since I’ve been incontinent.

I used to volunteer at Planned Parenthood and the Utah AIDS Foundation, teaching women about healthy sex and how to avoid STDs and STIs. Most women feel a natural need to urinate bedore sex. All women feel a natural need to urinate post-coitus because doing so naturally flushes off fluids and bacteria that might otherwise cause a UTI. Urine is a good sterilizer. So we taught women to embrace this instinct to pee after sex. It can also be a natural component of birth control: jump up quickly to pee and sperm has a harder time staying inside.

So, that’s what I have to say about sex. I envy those of you with longterm partners. As someone ?AlasSouth? said to me,

“Sex, what’s that?”
 
@AlasSouth I also recognise a previous post somewhere on the site saying 'whats sex'. I'm 58 now and haven't had sex for about 10 years. ED was one of the first symptoms of prostate problems, incontinence started later. They both got much worse after prostate surgery. I find it difficult to admit that my wife and I haven't shared a bedroom since all this started. She is supportive, but had a phobia about anything medical. Just seeing a catheter makes her feel sick. It is just easier to hide everything in my own room. My consultant prescribed a vacuum pump to see if it would help, but it gives me internal bleeding each time I try it and of course it looks like a medical device so my wife won't go near it.

I'm not looking for sympathy, it is what it is. It is quite good to write it all down here, as I haven't told anyone else.

Take care, Phil
 
This is all so important and so real.
I dont feel I have words to express I hear everything said by Snow, said by Phil. Thank you both
 
Snow, I truly believe that one day you will find the most perfect and special person. One that will erase your regret for moving. One that quiets your bad dreams and makes you forget that you ever had any. One that never makes you feel ashamed of yourself. You deserve this person and that person will come.
 
Hi Snow, do you remember me saying that you will meet someone special one day and that you don't have to settle for a life of permanent single-ness? I still deep in my heart believe that. Now can you? You have so much going for you that people, especially a special guy, will love you for who you are and won't give incontinence even a second thought. Incontinence doesn't define a person and it certainly doesn't define you. Sure it's a part of you but it's something that is manageable. You can still do things but it takes some planning. But that's okay. If you have to plan ahead for supplies, etc., then do it! It doesn't need to dominate your life. But disabilities will dominate your life if you let them! You have the power to overcome such feelings.

Do you have a bucket list? Is there something you'd really like to do that you have never done before? If there is then just go for it! Of course you will need to do some planning, as we all do, but you deserve to do something that is fun and will bring that "I've always wanted to do that and now I did it and it was a blast!" feeling to your life. For me, I've always wanted to "drive" a train, go to England and see some really cool castles and fly on a DC-3, although not necessarily fly on a DC-3 to England!:D That'd be a lo-o-o-o-o-ng trip!
So what's on your bucket list?

But now I have to be really honest with you. I was most saddened to read on your post that you think about suicide most days. To me that's a big cry for help. Please, please, please talk to someone about those feelings ASAP! Suicide is a very permanent solution to something that may be temporary. The people who love don't want to see you go that route, not by any stretch of the imagination! There is help out there. Please get it!
If I were facing what you're facing I'd opt to go one-on-one with a counselor, or maybe with the psychiatrist you see.
You need a place to let your emotions go. They will come boiling up to the surface, but you got to let that happen. And it's more than okay to do that! You may feel mad, like crying or screaming, but that's okay, too! That's what a therapist/psychiatrist is trained to do. It will help clear your mind so you can come to grips with what is going on inside of you.
So will you please consider that? You may think you have a long way to go, but please know you have friends right here who will help you literally every inch of the way! We won't let you down.
 
@billliveshere I’m glad one of us is an optimist! - but it’s not me. And yes, I have a social worker, a psychiatrist, and group therapy. Plus my mom is a social worker.

Thank you for your kind words. I’ll believe it when I see it.

I don’t believe in a bucket list as much as I believe in a lifestyle. I ice climb, rock climb, do extreme backpacking, bike, do yoga, camp, hike, skateboard, snowboard, and ski - both on resorts and in the backcountry. And I’m changing my professional focus away from music videos, back toward my concentration in grad school: producing documentaries. I just started a new project last week.

So yep, I have dreams. But they will be fulfilled without a male partner. Hopefully I’ll continue to get more used to that with time.

Thank you for your support!
 
Snow and Phil I get that need for intimacy seems to be more important than the act of sex. Self loathing has been the main problem since the incontinence.
I feel just living with people who know I have incontinence and love me anyways, makes it possible to self accept and gain strength from that.
I'm not an extrovert so lose of a partner and settling for a sex partner pre incontinence did nothing for me except affirm my ability to be attractive. I see now how fleeting and unimportant a physical exchange is.
Now I crave only the comfort of a companionable hug but am grateful for just quiet acceptance that I have a disability.
It seems like its a slow process to get even to this.
 
@Steven1980 Thanks :) Thanks for everyone’s vote of confidence. I do keep it in mind and hopefully one day I’ll be able to manifest it in my own heart.

@physlink Thank you for sharing your vulnerability with us. I’m sorry for your situation. It’s certainly nothing to be ashamed of and you’re not alone. I’m sorry your wife has a medical phobia, like so many people do.

My parents sleep in different rooms because my dad has a c-pap that blows cold air on my mom all night long if she sleeps with him. He has some mild prostate issues. 1.5 years ago he died during a partial foot amputation surgery, for 3.5 minutes, just long enough to do some permanent brain damage, which manifested as permanent incontinence. He refuses to wear protection or to have any kind of prostate procedure, so he sleeps alone, waking often to pee, and rarely leaves the house. It’s hard on both of them, but particularly challenging for my spry mom who has an old-fashioned sense of duty to him and won’t say, go on vacation, without him. Heck she won’t even eat a meal without him!!!

So even though they don’t share a bedroom, they’re still very much in profound love. I don’t judge you for that. Also, many couples have different bedrooms, and have for ages, all the way up to royalty. In general, people sleep better when they sleep alone. So your situation is understandable and relatable.
 
Snow: as you know, the pleasure of holding someone after sex is part of the pleasure, maybe one of the most important parts.
Utard! You still have a sense of humor! Did you ever listen to Utah Philips? Folksinger/songwriter and teller of (very) tall tales? He has some comments to make about Utah that agree with you, only he tends to be funny - probably as a survival mechanism. It's a hard state.
Much as I used to love northern California, in the 50s through the 80s, it's a dying state. The Ponzi-Real-Estate scheme thing is coming home to roost, and the stolen water thing may kill southern California. Not to mention climate change.... But family and friends may make it worth while to go back? At least consider it, more. Or even a new state; we have had some threads about re-entering social groups or cultures, too.
2 things. Maybe you need to change councilors? Maybe some of the other threads on here could help?
Finally, I'm worried about you & I bet so are the others. All I can do is encourage you - you seem very resourceful; find how to get on the positive side, please. Lord knows I've found it hard; you aren't alone.
Take it easy, but take it.
God Bless.
 
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