When your bladder hurts

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Hi All,

Been reading a lot about how to reduce a painful bladder through stretching, mindfulness, and diet. I have been working with a pelvic floor specialist for a year as well as my Uro. and kind of wondering what other folks that suffer from pains and aches are doing to find relief.

It's not constant, thank goodness, rather it comes and goes. I can be fine for a week or everyday or only a couple hours. I been trying to see if there is a correlation between higher incontinence and times that by bladder hurts, and have not seen anything to indicate a causal relationship.

The one thing I've found is my ability to sense fullness (I should try to go) diminishes/disappears when my bladder hurts. Whereas, it is 50/50 when my bladder doesn't hurt.

Anyhoo, thoughts and advice?

 

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@theMochi Sometimes I experience this: “The one thing I've found is my ability to sense fullness (I should try to go) diminishes/ disappears when my bladder hurts.”

 

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@theMochi I have an overactive pelvic floor/ OAB and can relate to the random pains. I’ve worked out that my bladder gets more irritated when I am anxious, and when I don’t use my tens machine (set to relax) for a couple of days. Do you mind me asking what condition(s)causes your incontinence?

 

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@Rowan123, I have an autoimmune disease, history of bladder issues, and a crazily wild hypertonic pelvic floor.

Mental stress and physical stress can show up in different areas of the body. Pelvic floor being one. Though it is the autoimmune that doctors believe is the leading culprit.

 

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@theMochi sounds like you have a lot of complicated issues to contend with. Do you have a good PCP?

 

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I have the autoimmune disorder sarcoidosis and small fiber polyneuropathy.
This affects the sense of pain and i don't feel the need to go until I really need to go and only have a few minutes to get to the bathroom. Add BPH to that, and it's sometimes a painful problem.

 

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I have Botox done in my bladder and after about 3 days, the ache totally goes away for a good 6 months. For the 30 mins of agony having it injected, I think it's worth it for the relief I get. I was able to put shopping yesterday and only went to the toilet once when we were out. Before the Botox, I was wanting to go like every 20 mins because of the pain in my bladder.

 

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@laalaauk good to know botox helps. This is the type of personal experiences that give me hope and inspiration. Hence, I have been in discussions w uro. about botox injections. Not sure if bladder or pelvic floor is the right target. TBD. Just a bit apprehensive about the procedure.

@garry, Sympathies, quite the mix of issues. I am a bit opposite, constantly aware of my bladder, I am caught between a sense of tightness and hurt.

@Rowan123 Both uro and pcp. Thanks. I also have a hilarious (not) case of OAB/incontinence.

 

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@laalaauk Sad news, I got Botox again last week and I’ve had no effect I think I have to have it done again. I’m scared it may never work again. Then I’ll have yet another thing in life to grieve.

I will say, the new PA only did about 10 injections when I usually get 44, so I think she screwed it up. I think I want an MD doing it from now on. My old MD retired a year ago, unfortunately.

 

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@snow, it takes me over a week to start feeling the effects of the botox, and two full weeks for it to really kick in so the way. It didn't used to take this long, but the timing has been very consistent the last several times. At least it seems to be working as well as it always has, and the time to work is no longer increasing. Hopefully you're well kick in very soon!

Ten injections doesn't seem like very many. I usually get 20.

 

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@snow, @ltapilot, There’s a diminishing effectiveness because your body becomes resistant, or what? If you don’t mind, how long have you been getting injections, and have you had to increase dosages over time?

I’ll need to bring this up w/ uro.

 

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@ltapilot Thank you for your support.

@theMochi I’ve been getting them for 4-6 years; can’t quite recall. My doctor says you’re not supposed to develop immunity to Botox but someone on our forum did have that happen, unfortunately.

 

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@snow thank you.