Welcome To The NAFC Patient Community!

[Administrator]

Hello! Welcome to the official message boards of the National Association For Continence (NAFC). We are a non-profit, 501(c)(3) organization that is dedicated to reducing the stigma of incontinence and other bladder and bowel health conditions. We provide education, support, and community (like this message board!) to those touched by incontinence.

We're so happy that you've decided to join us here. This community is a wonderful resource, full of supportive, warm, and inviting people, who understand what you've been going through. They're full of advice, ready to jump in with comforting and compassionate words, and always eager to lend an ear. So browse through these boards, take your time to read what people have to say, and once you're ready, jump on in.

The main thing we ask you to remember is to be kind and respectful of everyone on the boards. It takes courage to write about personal conditions and we want everyone to know that they are welcome here. We also ask that you do not post inappropriate pictures of yourself in an absorbent product. This forum is not the place for that, and your picture will be removed immediately. Repeat offenders will be removed from the forum.

In addition, unless posted by NAFC, all opinions and advice recommended by others are their own and cannot be viewed as professional medical advice.

Finally, while we typically find everyone here to be kind, truthful people, please keep in mind that these are anonymous message boards, and we urge you to use discretion when deciding to share personal information with others (full names, addresses, phone numbers, etc.). NAFC advises against sharing any personal information with anyone on the message boards.

In addition to these message boards, we encourage you to take some time to explore our site, nafc.org, by clicking through the links above. You'll find lots of great resources and education about bladder and bowel health, tools to help you manage your condition, and more. Here are a few places you may want to start:

The NAFC Blogs: https://nafc.org/bhealth-blog/
Find A Doctor: https://www.nafc.org/find-a-doctor
Sign Up For The NAFC Newsletter: https://nafc.org/on-the-go-newsletter
Conditions A-Z: https://nafc.org/conditions-overview
Managing Your Condition: https://www.nafc.org/management-support
Downloadable Patient Resources: https://nafc.org/printed-patient-resources/https://www.nafc.org/resource-center

Welcome to our community! We're glad you're here!

 

[may941]

How to private message in the new format?

 

[ThatFLGuy]

How to private message in the new format?

It should be under Start a conversation when you click of someone's profile. Also, you can now follow people.

 

[Administrator]

Hi All! Welcome! I just wanted to let you all know that we have the Archives from the old message boards below for reference, but they are closed for all replies and comments. Any new messages should be started in the new sections. Thanks!

 

[snow]

Are we still going to get emails when a new topic is started?

 

[ThatFLGuy]

Are we still going to get emails when a new topic is started?

Welcome back, Yes. I get emails about every post that I was involved in now as well as new posts.

 

[thudson1965]

I was wondering why I was not receiving emails too

I looked at the help and have a few suggestions

1) An easier way to see a list of the subforums with the options in the popup box

2) A way to review my options for the subforums



What I discovered - correct me if I am wrong.

To see a list of subforums (or what every they are called).

The National Association For Continence Community

The National Association For Continence Community

forum.nafc.org

Foreach subforum

?Click on the forum title to go to the form

?On the right side look for the grey watch button and press it

On the pop-up, select your desired options then press the orange Watch button (this is where we sign up for emails on subtopics)




The grey Watch button on the right side at top of forum



The Watch Forum Pop-Up box to select to receive emails

 

[snow]

If I’m getting all the emails, then there just aren’t very many any more? Is this the experience of others, also?

 

[Allan_59]

@Administrator Luckily there are threads extending over more than one page now. When I open these threads as I see there are new messages, I am taken to page 1, while the new stuff is at page 2 or 3. Would it be possible to open the page containing the newest message or reply by default?

 

[Administrator]

@Administrator Luckily there are threads extending over more than one page now. When I open these threads as I see there are new messages, I am taken to page 1, while the new stuff is at page 2 or 3. Would it be possible to open the page containing the newest message or reply by default?

Unfortunately this isn't possible at the moment but we will keep this in mind for future updates.

 

[Peter_A]

If I’m getting all the emails, then there just aren’t very many any more? Is this the experience of others, also?

Perhaps people are just having to figure out how to use it. It seems more complicated, and I say that having spent my career in computers. It has taken me a couple or three days just to get this far. I haven't gotten any e-mails yet.

 

[bcarr]

Hello! Welcome to the official message boards of the National Association For Continence (NAFC). We are a non-profit, 501(c)(3) organization that is dedicated to reducing the stigma of incontinence and other bladder and bowel health conditions. We provide education, support, and community (like this message board!) to those touched by incontinence.

We're so happy that you've decided to join us here. This community is a wonderful resource, full of supportive, warm, and inviting people, who understand what you've been going through. They're full of advice, ready to jump in with comforting and compassionate words, and always eager to lend an ear. So browse through these boards, take your time to read what people have to say, and once you're ready, jump on in.

The main thing we ask you to remember is to be kind and respectful of everyone on the boards. It takes courage to write about personal conditions and we want everyone to know that they are welcome here. We also ask that you do not post inappropriate pictures of yourself in an absorbent product. This forum is not the place for that, and your picture will be removed immediately. Repeat offenders will be removed from the forum.

In addition, unless posted by NAFC, all opinions and advice recommended by others are their own and cannot be viewed as professional medical advice.

Finally, while we typically find everyone here to be kind, truthful people, please keep in mind that these are anonymous message boards, and we urge you to use discretion when deciding to share personal information with others (full names, addresses, phone numbers, etc.). NAFC advises against sharing any personal information with anyone on the message boards.

In addition to these message boards, we encourage you to take some time to explore our site, nafc.org, by clicking through the links above. You'll find lots of great resources and education about bladder and bowel health, tools to help you manage your condition, and more. Here are a few places you may want to start:

The NAFC Blogs: https://nafc.org/bhealth-blog/
Find A Doctor: https://www.nafc.org/find-a-doctor
Sign Up For The NAFC Newsletter: https://nafc.org/on-the-go-newsletter
Conditions A-Z: https://nafc.org/conditions-overview
Managing Your Condition: https://www.nafc.org/management-support
Downloadable Patient Resources: https://nafc.org/printed-patient-resources/https://www.nafc.org/resource-center

Welcome to our community! We're glad you're here!

 

[bcarr]

First, I echo what many others have said about the current message forum. I visited and used the previous iteration quite often following my radical prostatectomy. I find this current format much harder to use and believe many former users have dropped off.

I just used the message archive to access older postings and found that the archived posts do not show who made the posting. This means that I cannot connect a msg poster to to get follow up information. Is there a reason why the system is set up to mask the original posters identification?

Thank You.

 

[Administrator]

First, I echo what many others have said about the current message forum. I visited and used the previous iteration quite often following my radical prostatectomy. I find this current format much harder to use and believe many former users have dropped off.

I just used the message archive to access older postings and found that the archived posts do not show who made the posting. This means that I cannot connect a msg poster to to get follow up information. Is there a reason why the system is set up to mask the original posters identification?

Thank You.

Thank you for your message. As we switched to this new system, it was not possible to bring over the original poster information, therefore, we were unable to assign the poster information to the posts. As everyone needed to resign up to the new system, the old user/contact information would not have worked anyway. Hope this helps to answer your question. Thanks for joining us!

 

[agemoz]

New here, after prostate cancer and RP three months ago. Major incontinence, much worse than expected. PT, Kegels have had no obvious effect. I am 68, very active, and really really frustrated. Use both a heavy pad and a towel, pullup and towel at night, make embarrassing messes. Better if I just sit or lie down but still leak constantly.

 

[JamesEL]

I had a similar experience. After six months I had an AUS 800 artificial sphincter embedded. I was told this device has a very high success rate. Unfortunately it did not work and trying now to find out what options I have.

 

[agemoz]

Since this is an introduction forum, I'm going to repost in the prostate cancer site for some questions

 

[cyclist]

New here, after prostate cancer and RP three months ago. Major incontinence, much worse than expected. PT, Kegels have had no obvious effect. I am 68, very active, and really really frustrated. Use both a heavy pad and a towel, pullup and towel at night, make embarrassing messes. Better if I just sit or lie down but still leak constantly.

I had the same experience after RP a couple of years ago. I did kegels for 9 months without much improvement. Last fall, I had a male sling implanted. It supports the muscles that control the bladder. The procedure is outpatient. For me, it worked very well. Completely eliminated stress incontinence, and I can use a light pad during the day and at night whereas before I used 2-3 heavy pads during the day and a pull up at night. I have frequency/urgency issue, i.e. many trips to bathroom. I have an appointment with urologist to see what can be done. All in all, I would highly recommend it if kegels don’t do it.