Tired of the f’ing leaks!!!!!!!!!

@snow had no leaks this morning after my “sleeping in my skivvies” experiment. I rarely bedwet but my issue is when I wake up the flood gates open. I’m gonna try it again tonight to see what happens. I also found a pack of Northshore supremes and have been wearing those around the house after doing my taping techniques and just wearing a pair of boxers ober it. So far ok. Ah the perks of living alone. You can hang out in boxers. Lol
 
@snow, I lucked out to be referred to a urogynecology doctor but I hate to say that most of the practice was devoted to one or two treatments and not my problem. She had never heard of arm nerve pain when I had a bladder spasm that was very painful. She said she did not know what to do with me. She also said I had one of the worst cases of urge incontinence because when she tried to fill my bladder during a cysto, the saline poured out soaking her, the nurse, and me too. I researched treatment centers because nothing was helping me. I asked her to refer me to Brady Urological Institute at Johns Hopkins. Finally getting a diagnosis of sorts gave me something to work with. The Medical University of SC has a neurologist urologist specialist who I have an appointment with latter part of Dec. I will post more after my appointment and I will be starting Physical Therapy to help the muscles. The one thing that frustrated me was I am a retired nurse and have enough knowledge to pursue and not be intimidated by MD. My love and caring to all of you.
 
I’m very happy to report that I did not have one leak today. I wore the black MegaMax and taped it top-top-bottom-bottom and this appears to have solved my problems. I can’t tell you the last time I went an entire day without a leak. I hope Northshore never discontinues the black MegaMax
 
I have noticed that whenever I wear anything over the diaper, be it pul pants or a body stocking, wetness seeps at the groin and out onto the lining of the pul pant or the body stocking making it seems as though I leaked.

Wearing only the diaper I do not have the seepage. I am similar in that my urge incontinence is usually heavy floods. I use the microfiber booster technique and the difference has been amazing. The wicking and absorption allows me to fully utilize the diaper (betterdry) without leaks. As for taking care of the the cloths, I rinse them in a sink and then place them in a hanging grocery bag to be washed after I accumulate a few.

Regarding your desire to not deal with them when you are out and about, you can do one of two things. 1, after changing, rinse the cloth and put it in a ziplock or grocery bag. It shouldn’t smell for several hours and doesn’t take up much room in your diaper bag. 2, just throw it away with the diaper when you have to change. I purchased the big bag of yellow microfibers towels from Costco automobile section. That’s 36 towels for 20 bucks. Even changing 3-4 times a day I am not going through that many cloths between washes. Throwing one or two out is not a big deal. Heck, since i am not purchasing diaper boosters anymore, I am still saving money. I purchased one pack 3 months ago and still have plenty so if I am out and about and I cannot be bothered to rinse the cloth for whatever reason, I just roll it up with the used diaper.

I hope this helps
 
justej: Tarlton is spot on about how to deal with the "pads" after they get wet. In fact just keeping the pad in your mega max for a relatively short (3-4 hours) time really shouldn't be a problem as this is no different than wearing a full up cloth diaper as many do. The cotton or micro fiber cloths are so cheap that they are disposable when the situation dictates.
 
@ThatFLGuy There are lots of little nerves between the bladder and the spine. They connect to the spine near the vertebrae L3-L4, L5-L6, and L6-L7 (lowest part of your back). Did you hurt that area when you fell? Your back may have repaired itself, but sometimes the nerves are permanently done. If there’s a name for that area of nerves, I don’t know what they’re called; nobody ever said it to me they just said “the nerves connecting the bladder to the spinal cord.” So you could ask your medical professionals if that is what’s going on. There’s no treatment for it other than to treat the symptoms in the regular ways such as wearing diapers, Botox, medications.
 
@snow
Yes, I did. If you have ever seen the MTV show Ridiculousness then you will know what doing a scorpion is. And I knocked myself out.

I had an MRI done this year and this is what it says

L3-L4: Broad-based disc bulge causes mild canal narrowing and mild bilateral
foraminal narrowing.
L4-L5: Broad-based disc bulge causes mild canal narrowing and mild bilateral
foraminal narrowing.

Never had anything else said but my lower back hurts all the time and my butt and legs go numb a lot depending on how I sit.
 
@JohnAdam I have said before and I’ll say it again. I cannot use condom catheters as I am transgender and have female anatomy. I also deal with fecal incontinence and need protection for that as well.
 
@Tarlton and @Padded - if you don’t use pul pants/body stocking how do you keep the diaper up? There is no way I could go about my day without extra support to keep the diaper in place. Thanks.
 
justej said:
@Tarlton and @Padded - if you don’t use pul pants/body stocking how do you keep the diaper up? There is no way I could go about my day without extra support to keep the diaper in place. Thanks.

It varies, sometimes the diaper just stays put and I have no issues. Other times it sags and I have to change lest I gets rash on my thighs. I have considered looking into boxer style pul pants if they exist. I know there are plastic pants like that. That way you could wear a body stocking without the seepage
5ef5a73756d582f8877a8117aa508d75.png
 
@ThatFLGuy Before falling down the cliff in 2015, I had a severe Scorpion Fall in 2009 while snowboarding. I have had chronic lumbar back pain ever since. I also had a severe concussion. So yes, I understand a scorpion. I’m sorry you had one, too. I didn’t know that it was possible until I did it.

I am quite sure it sounds like your scorpion may very well have started your bladder problems. I am disappointed that none of your doctors have figured this out for you. I remember you quit going to your urologist. Maybe you should go back to her or another one to talk about Neurogenic Bladder. You could also ask your back doctor if you have one. If not, perhaps you should get a back doctor. I know the last thing you need is another appointment.

If you had to pick one doctor to go to, the back doctor or the urologist, I would go to the urologist. If you have the MRI result like that and you know maybe where they can look at the file for themselves, then they can diagnose you and talk about a plan and help you do that plan. But a back doctor? They don’t go very far.

You know, once they figure out you have Neurogenic Bladder, there’s nothing they can do so that’s as far as the conversation really goes. But I guess then they might really talk to you about bladder Botox, so that would be good - you should try it - it’s worth a try. I love it and since we have the same area injured in our backs, maybe you would also benefit.

Bad discs in that area can also cause numbness/sciatica. My left torso bottom quadrant is totally numb. I can only feel the right buttcheek. Wiping your butt when you only feel one cheek is a weirder sensation than you might think. I get phantom itchiness on my buttcheek. It’s numb; yet it feels itchy, Scratching totally doesn’t help. It’s odd and kind of grosses me out.

So yes, your numbness may very well be from your scorpion. I bet you severed some nerves forever.

2.5 months ago I got up to pee in the night, but my left leg was numb, only I didn’t quite realize it because sciatica is wierd like that. Without knowing it, I put my foot down on its side instead of flat, with my entire body weight. I broke four bones and had to have the longest surgery of my life so far. It has been hell to recover because I live alone and have been non-weight-bearing until a few days ago. The foot is ultimately caused by sciatica from the back injuries in snowboarding accidents, but I’m still paying the price from those accidents years later by tripping getting out of bed?! It’s been such a huge bummer. Now I have to go back to the back doctor to see if it’s time for back surgery since my sciatica has become that bad. I don’t like back doctors. They also never actually help except when you need an initial diagnosis.

I hope the discovery that some of your bladder nerves are likely dead doesn’t upset you. Look on the bright side: now you likely know your diagnosis since your bladder problems started around when your accident happened.

An aside, lol, no, I’m not a doctor 🤣
 
justej: Although I usually only use the "cotton pad" trick for sleeping, during the day I use a cotton "Granny Panty" to help keep my diaper supported when wet, reduce a bit of noise, reduce chaffing, and catch a few drops that may get by the leak guards. This works well for me even though as a male I really don't have much of a true waist to hold everything up. In fact I suspect as one with predominantly female anatomy and probably somewhat of a waist this might work even better for you than it does for me. I see no reason why you couldn't use the granny panty with the pad during the day to provide additional support and a PUL pant over all of that. Of course there's really no reason why you couldn't wear a onesie instead of the panty as it would probably support everything even better but it may make using a PUL pant difficult.
 
You must log in or register to post here.
Back
Top