Not sure I'll feel normal again.
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Archives1
Staff member
I go a minimum of every 2 hours. Not something I can't handle. The issue is going every two hours overnight has destroyed my ability to sleep. That in turn is destroying my ability to function during the day. I am experimenting with a little pot before bedtime, it helps a little but still getting up 3 times a night. Not sure there is a fix for this. As I have said, Urologists don't seem to have an answer.
Thanks for letting me rant here.
Everyone be safe!
Thanks for letting me rant here.
Everyone be safe!
Archives1
Staff member
@Izthewhiz, welcome to our world of not being able to drive on freeways because we have to have access to a McDonald’s et al. at all times. Compared to most of us on here, you’re still very lucky if you only go 10-15 times per day. My average is 165 times per day. For driving, I used to know “safe” bushes all around the Salt Lake Valley, but now everyone has cameras everywhere around their property, and I don’t want a sexual criminal charge on my record for the rest of my life for exposing body parts by peeing. Last week I went for a walk on an epic canyon trail for 40 minutes. Suddenly I painfully had to pee. There was not adequate coverage from the trail anywhere nearby. All the property around me was private. I knew my diaper wouldn’t hold the volume I *HAD* to expel. So there I was, pissing in the middle of a field that was someone’s yard, in full view of the popular trail. Fortunately nobody came by at that moment. Now I’ve given up on the pleasure and health I used to enjoy on that trail. NOTE: Had I been able to afford my insurance deductible this year, I would have Botox injections in my bladder by now, and would have no such worries on that trail. When/if I ever get my IRS stimulus payment, it’s going to my deductible/Botox. I urge all of you to seek Botox treatment. As far as I’ve seen on these boards, only one other person has tried Botox. I’ve taken every OAB medication on the market - extensively - and *nothing* comes close to Botox, in terms of efficacy and ZERO side effects. Furthermore, tell your doctor that in the UK, Europe, Canada, and Australia, the urologists *start* with 300 units of Botox. Here in the USA, the starting dose is 100 units. I had to beg my doctor to go up to 200 units, which is what works best for me. With 300, I can’t pee very well when I need to, so I prefer 200. One thing I’ve learned on these boards is to be grateful for how lucky you really have it compared to so many other people.
Archives1
Staff member
@snow
Wow that's a lot 165 times a day.
Sorry if you thought I was not being
Sensitive.
Its just that I'm only 37 and in good health except this issue.
My bladder feels slight discomfort time to time like a spasms and I can't get a answer.
My doctor thinks even if they do say I have oab means nothing as they my not have a answer to why and only treatment no cure.
I'm currently taking no oab medication only when it flares up.
Wow that's a lot 165 times a day.
Sorry if you thought I was not being
Sensitive.
Its just that I'm only 37 and in good health except this issue.
My bladder feels slight discomfort time to time like a spasms and I can't get a answer.
My doctor thinks even if they do say I have oab means nothing as they my not have a answer to why and only treatment no cure.
I'm currently taking no oab medication only when it flares up.
Archives1
Staff member
@Izthewiz
I am taking Myrbetriq and Alfuzosin. My urologist says I have OAB, and no one is sure what causes that if it is not an enlarged prostate, which I don't have. It basically comes down to "shit happens" he wants me to get an Interstim. Based on the reactions on this board, I am hesitant to take that step.
Izthewiz said:
I am taking Myrbetriq and Alfuzosin. My urologist says I have OAB, and no one is sure what causes that if it is not an enlarged prostate, which I don't have. It basically comes down to "shit happens" he wants me to get an Interstim. Based on the reactions on this board, I am hesitant to take that step.
Archives1
Staff member
physlink said:
I am really gun-shy because I went through the Rezum procedure. It was incredible painful and did nothing to help. I feel like a pin cushion where they just want to try and bunch of different things hoping one will work. The interstim has worked for a few people. I wish you luck with that and hope it works for you.
Keep Safe!
Archives1
Staff member
@stuart
I'm not sure why the negative reactions on this board on Interstim, but I don't have any experience with it.
However, read this and do a Google search on what is interstim, and if there are no other answers, this might be your least invasive choice.
In 1997, InterStim Therapy, the sacral nerve stimulation device produced by Medtronic, Inc., gained FDA approval as a therapy for individuals with urinary urge incontinence and in 1999, went on to receive FDA approval for frequency-urgency syndrome and non-obstructive urinary retention for patients who fail standard therapies. Currently, more than 600 urologists and urogynecologists worldwide have adopted SNS as a treatment, and more than 8000 devices have been implanted successfully.
InterStim Therapy is a safe, efficacious and reversible therapeutic modality that offers improved voiding function and improved quality of life for appropriately selected individuals. The InterStim electrode delivers a mild electrical signal to the sacral nerve that in turn influences the behavior of the bladder, sphincter and pelvic floor musculature. Placement of the probe is minimally invasive and can be done under local anesthesia, allowing for patient interaction to ensure optimal patient-specific placement. Once the tined probe is positioned in the appropriate sacral foramen via a percutaneous puncture, the tines can be deployed for immediate and secure anchoring into therapeutic position. A neurostimulator is then implanted subcutaneously that can be adjusted by the patient in response to evolving voiding symptoms via a transdermal transducer.
Since its inception, numerous, independent clinical trials have confirmed the efficacy of InterStim Therapy for restoring voiding function in appropriately selected patients. In a series of patients with DI or hyperreflexia, the introduction of InterStim Therapy was associated with a significantly decreased number of pads and voids per day, as well as an increased mean voided volume (p<0.0001).3 Additionally, these patients also reported significant improvement in their quality of life. For patients with demonstrable DI on pre-implantation urodynamics (UDS), the initiation of InterStim sacral nerve neuromodulation resulted in a reduced detrusor activity index on repeat UDS.4 Importantly, the clinical symptoms experience by patients in this series, specifically incontinence episodes, total number of voids and urge events per day, improved in a manner consistent with diminished DI noted on UDS.
Non-obstructive retention has also been successfully treated with sacral nerve stimulation. The return of spontaneous voiding with minimal post-void residual was reported by 77% of women three years following the initial implantation of the InterStim device.2 These findings are consistent with a larger series funded by Medtronic in which 68 patients with urinary retention were implanted with the InterStim system. At 18-month follow-up, 70% had statistically significant improvements in their voided volumes when compared to controls.
The Medtronic device is safe and effective, with a proven track record for individuals appropriately selected. The insertion of the probe and modulator is minimally invasive and well tolerated by most individuals. Importantly this reversible procedure can provide a significant improvement in the quality of life for individuals suffering from a range of urinary dysfunctions.
I'm not sure why the negative reactions on this board on Interstim, but I don't have any experience with it.
However, read this and do a Google search on what is interstim, and if there are no other answers, this might be your least invasive choice.
In 1997, InterStim Therapy, the sacral nerve stimulation device produced by Medtronic, Inc., gained FDA approval as a therapy for individuals with urinary urge incontinence and in 1999, went on to receive FDA approval for frequency-urgency syndrome and non-obstructive urinary retention for patients who fail standard therapies. Currently, more than 600 urologists and urogynecologists worldwide have adopted SNS as a treatment, and more than 8000 devices have been implanted successfully.
InterStim Therapy is a safe, efficacious and reversible therapeutic modality that offers improved voiding function and improved quality of life for appropriately selected individuals. The InterStim electrode delivers a mild electrical signal to the sacral nerve that in turn influences the behavior of the bladder, sphincter and pelvic floor musculature. Placement of the probe is minimally invasive and can be done under local anesthesia, allowing for patient interaction to ensure optimal patient-specific placement. Once the tined probe is positioned in the appropriate sacral foramen via a percutaneous puncture, the tines can be deployed for immediate and secure anchoring into therapeutic position. A neurostimulator is then implanted subcutaneously that can be adjusted by the patient in response to evolving voiding symptoms via a transdermal transducer.
Since its inception, numerous, independent clinical trials have confirmed the efficacy of InterStim Therapy for restoring voiding function in appropriately selected patients. In a series of patients with DI or hyperreflexia, the introduction of InterStim Therapy was associated with a significantly decreased number of pads and voids per day, as well as an increased mean voided volume (p<0.0001).3 Additionally, these patients also reported significant improvement in their quality of life. For patients with demonstrable DI on pre-implantation urodynamics (UDS), the initiation of InterStim sacral nerve neuromodulation resulted in a reduced detrusor activity index on repeat UDS.4 Importantly, the clinical symptoms experience by patients in this series, specifically incontinence episodes, total number of voids and urge events per day, improved in a manner consistent with diminished DI noted on UDS.
Non-obstructive retention has also been successfully treated with sacral nerve stimulation. The return of spontaneous voiding with minimal post-void residual was reported by 77% of women three years following the initial implantation of the InterStim device.2 These findings are consistent with a larger series funded by Medtronic in which 68 patients with urinary retention were implanted with the InterStim system. At 18-month follow-up, 70% had statistically significant improvements in their voided volumes when compared to controls.
The Medtronic device is safe and effective, with a proven track record for individuals appropriately selected. The insertion of the probe and modulator is minimally invasive and well tolerated by most individuals. Importantly this reversible procedure can provide a significant improvement in the quality of life for individuals suffering from a range of urinary dysfunctions.
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