I personally have no problem calling a diaper a diaper, that’s just what they are. Boxers are Boxers, Briefs are Briefs etc.I think due to the nature of this condition we all share, we have developed a bit of a thicker skin. One of my shrinks early on told me that you can’t live in constant fear, or highly agitated state and went on to show me what it does to the human body, not to mention your mind. If you’re constantly thinking about am I going to leak, did they all see my diaper when without thinking I bent down and grabbed that frisbee and threw it back, etc., etc. You can’t imagine how much I missed in class, because my mind was at least initially completely overwhelmed with this new reality. I had to do all my school work at night, by myself because I couldn’t think straight surrounded by people. This was when the only reliable protection (see, I wrote it without even thinking twice!)The only reliable Adult Diapers were cloth with plastic pants. Far bulkier than the myriad of excellent disposable diapers available today. Loose jeans, cargo shorts and long shirts helped a lot, but it was often a matter of when not if people you spent any amount of time with, would start looking at you twice and you could see the question on their face. Not to mention constantly dragging that backpack everywhere like Linus & his blanket! I just hit it head on, “this was just a side affect of still being alive, after being crushed by a dump truck”! Believe me I sounded and acted a lot braver than I was, especially the first few times.
I think what you are initiating Adam is a great start, I wish we could do something similar to what Autism Speaks has done. Around the mid-90’s there were a number of fractured groups, many doing great works, but all on an individual or small regional basis. The leaders came together when they realized the power in their numbers. In the early 90’s an Autistic child was not spoken of in polite circles. Today their unique & often wonderful contributions to our society are celebrated. Much of this due to the combined voices of Autism Speaks re-writing the script.
If we the people who live with this every day joined together with our doctors and the manufacturers/ sellers acting as one we could rewrite this terrible script we’ve all inherited, and replace it with the truth. Why not start now?