Welcome To The NAFC Message Boards! Learn A Little Bit About Us Here!

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Staff member
Hello! Welcome to the official message boards of the National Association For Continence (NAFC). We are a non-profit, 501(c)(3) organization that is dedicated to reducing the stigma of incontinence and other bladder and bowel health conditions. We provide education, support, and community (like this message board!) to those touched by incontinence.

We're so happy that you've decided to join us here. This community is a wonderful resource, full of supportive, warm and inviting people, who understand what you've been going through. They're full of advice, ready to jump in with comforting and compassionate words, and always eager to lend an ear. So browse through these boards, take your time to read what people have to say, and once you're ready, jump on in.

The only thing we ask you to remember is to be kind and respectful of everyone on the boards. It takes courage to write about personal conditions and we want everyone to know that they are welcome here. We also ask that you do not post inappropriate pictures of yourself in an absorbent product. This forum is not the place for that, and your picture will be removed immediately. Repeat offenders will be removed from the forum.

In addition, unless posted by NAFC, all opinions and advice recommended by others are their own and cannot be viewed as professional medical advice.

Finally, while we typically find everyone here to be kind, truthful people, please keep in mind that these are anonymous message boards, and we urge you to use discretion when deciding to share personal information with others (full names, addresses, phone numbers, etc.). NAFC advises against sharing any personal information with anyone on the message boards.

In addition to these message boards, we encourage you to take some time to explore our site, nafc.org, by clicking through the links above. You'll find lots of great resources and education about bladder and bowel health, tools to help you manage your condition, and more. Here are a few places you may want to start:

The NAFC Blogs: https://www.nafc.org/connect-share-overview
Find A Doctor: https://www.nafc.org/find-a-doctor
Sign Up For The NAFC Newsletter: https://www.nafc.org/on-the-go-newsletter
Conditions A-Z: https://www.nafc.org/conditions-overview
Managing Your Condition: https://www.nafc.org/management-overview
Support Tools: https://www.nafc.org/tools-overview
Downloadable Patient Resources: https://www.nafc.org/resource-center

Welcome to our community! We're glad you're here!
 
I've been on this board for a few years now the NAFC as a whole has been a huge help for me and how to manage my UI(urinary incontinence). With the help from others on this board and on the NAFC site I've learned how to manage my thoughts(depression) and find products that help me stay dry throughout the day. There are lots of ways to manage but only YOU can find the right way for you to manage it and with the help of others it makes it so much easier to find those solutions whatever that may be!! Be patient and Make sure you are taking your time in researching your needs and dont take one person or Dr's word as the end all be all, you really need to be an advocate for yourself and find the solution your comfortable with.
 
NAFC has been a great resource for me for years and I have been able to let others know about their site as well.
Although I have used the site for years this is the first I have found the boards on the site. Very nice. Thank you to all who participate, it is a pleasure to chat with you. Just having a safe place to ask questions or hang out is a really blessing.
 
Hello, new here as well. Had radical prostatectomy 5-15-19, they removed one nerve bundle, sem glands lymph nodes, they found cancer in bladder neck so they removed 1” square but did not get all the cancer. Soon after catheter was removed I suffered 11 weeks with 4 UTI’s needless to say I was in HELL. Now I have no urinating control. Been to therapy and doing everything told to do, only seeing some control at times. Am I screwed or is there a chance things will continue to improve, urologist says I lost 3 months due to UTI’s. Any advice from anyone would be great. Thank u, scared to death. Hope this gets posted the correct way
 
@Bobdog I also had prostate and bladder neck surgery. Like you I had a lot of infection. I was told that full improvement could take up to a year, so you have time yet. I never gained control, but I already had OAB and IBS, so this was to be expected. Are you having follow up treatment for the cancer? I hope your recovery goes well.
 
Hello, I check my psa Sept 26 hope it is still .1. I did not have any urinary issues before surgery as well. I do notice only slight improvement though. What pissed me of is the dr. Not being more helpful when I had the uti’s. The therapist is great and is very good. She said I basicly lost almost 3 months of recovery time due to the uti’s. Thank u very much as this thing is very depressing to point of not wanting to live at times.
 
@Bobdog over active bladder and irritable bowel syndrome. Basically I was a bit of a wreck before surgery. If you were fine before surgery, you chances of a full recovery are much better than mine were. Phil
 
Hello Phil, again thank you for you encouraging comments, as it is difficult to get good solid support. Thank you
 
Not sure where else to ask this but I noticed sometimes people vote for some replies that I make. What do the votes mean? And I do I vote for someone else, I assume a vote means you like and/or like what they posted.

Thanks, Al
 
Hi, just means thanks for the post is all. I appreciate when everyone posts. It also helps me know the ones I have read and haven’t. So thank you and everyone for your posts, questions, advice and even just venting. When we can all do life together and find great ways to make it work for us then we all win.
Be Blessed and be a Blessing to someone else.
Kind regards,
Jim
 
Glad you found it, lots of wonderful folks chat on the boards here. Welcome! I’m Jim and live in Maryland. Glad you are here.
 
Hello all. I’m new to this forum and just had a prostatectomy just four weeks ago. I understand about having leakage and that seems to be getting better. My problem is that I have problems urinating. Urine dribbles out in two streams unless I cough or push it out. I then can get a stronger stream. I don’t feel like I’m retaining urine in my bladder but not sure. I don’t have an urge to go more often as the weeks go by. Is this a common problem or should I be concerned? Thank you for hearing me out and hope it wasn’t TMI.
 
Hi Harley,
Welcome! There are lots of great folks here and several helpful forums.
Feel free to read, ask questions and maybe make a few new friends. Most all of us here can offer what has worked well for our own situations.
 
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