Urge Incontinence has become total incontinence

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@compwiz878 How scary. Yuck. I will hold off on back surgery as long as I can but the recent sciatica thing has scared me. I thought it was just numbness and lightning pain; I didn’t know it was actually dangerous and could make me get really hurt.

@Sci_Fi_Fan What a tough time you’ve had! I started a new job in October, which is the most complex, challenging job I’ve had to date in life, and I’ve had a hard time because of brain fog. So you work AND go to school? That’s impressive for anyone, let alone someone in your circumstances.

 

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@snow Ah no, just studying now, meant when I was working I was doing other stuff. Sorry to hear about the brain fog; I think it's the worst part of Long Covid.

 

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@Sci_Fi_Fan Yeah, the brain fog is really tough. It means suddenly becoming really stupid, and it truly is a fog that you can’t get through, try as you might. It’s so weird how even when you’re in it you just can’t even quite tell that you’re in it. To me it feels like being trapped in a snow globe and I can see the world going by but I can’t move or communicate or think. Somehow it makes me feel really guilty, like I’m not trying hard enough or I’m getting too old and I’m taking too many medications or I’m dry k (i don’t drink any more). But it’s 100% long-haul COVID. I am quite sick of it, but I do a good job of getting through it. It takes so much concentration and effort, though. Mine hasn’t improved any further since September. I’ve kind of given up on it ever going away completely, and I’ve given up on getting back the remaining 10 to 15% of my taste and smell. Just that missing 10 to 15% has changed my appetite so dramatically. I have lost 35 pounds and kept it off because of it. I wish I could turn it on and off, particularly at this time of year when things taste so delicious! The weight loss is wonderful, but it’s really hard to remember to eat now, sometimes I go three days without eating. I think I eat 3/4 of a meal every few days and scarcely notice. It’s so weird. What’s even much weirder is that I haven’t lost *more* weight.

By the way, that longhaul clinic I was going to at the University of Utah turned out to be a lot more about research than treatment, so I quit going. Plus, they have so many people who are so much worse off than me, such as yourself, that I don’t want to waste their precious resources when I’m not suffering nearly as much as others.

 

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@snow OUCH I am so sorry to hear of your fall! Hope you are doing well! My spine issue is from a few years ago a guy on a fork lift at work was driving forward with his load and couldn't see where he was going and hit me pretty hard. It knocked me out of my steel toe boots about 8 feet. If someone wasn't there to stop him, he would have killed me because he had no idea he had hit me. Unfortunately the doctors didn't look in the right direction even though I had some numbness in the saddle region. Turned out it was damage near the cauda equina nerve. About a month later it had progressed enough that I had very sudden urges but made it to the bathroom. Then a bit later I randomly would wet the bed and then started having accidents through the day where I couldn't get there in time. So I had to start wearing diapers for that and then recently, I noticed I wasn't getting an urge and my diaper would already be wet. It's really strange and still to this day I can't even feel when I go or that I am even wearing anything because of the numbness. I can be sitting on my tv remote and not know it. It's horrible. I fear if a day comes and I break my arm or something I won't be able to do for myself and can't stand the thought of my wife having to change me or something. This problem is a real drag!!

 

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@snow Well i wouldve held off too, but the early parts of 2020 i started having issues with intermittent numbness in my hands. it felt like if you bumped your elbow aka the funny bone . then went to constant numbness and i lost my grip in my hands and my fingers, then my fingers curled and still are both numb and currled and weak .

and by late summer i started having my legs go out standing or walking. then by december 2020 i was wheelchair bound could not walk only 10ft nor stand only 5mins.

surgery was scheduled but was canceled due to covid not once but 3 times. by the end of february 2021 i was scheduled once again for surgery as surgeries where resumed . but surgery was scheduled for early march . but due to having surgery postponed over 3 months things worsened to the point i could no longer stand or walk and yes my bladder was on a constant drain and i was diaper dependant.

but also the issues in my neck also worsened to the point that my spinal cord was nearly severed from the disc .

surgery stopped the severing of my cord but not without my cord being severely damaged. which is where i'm now . its unknown if ill return to normal with feeling in my fingers or normal useage will return.

I had a urodynamics study and cystoscope done just before thanksgiving . and those results wherent good news. I was told my bladder is barely functioning on the fineline of no longer fuctional. and cant hold much at all .