just not ready

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So just needing to talk a little. I'm finally admitting to myself that I haven't accepted my wetting issues near as much as I thought I had.I'm stubborn. I know I should switch to a higher capacity diaper instead of the youth pants pull ups I've used since I was 14, particularly at night. The last few nights I've woke up wet down my legs from soaking though my pullup. I'm not exactly sure why I'm so resistant. To me it feels like if I do that, its me giving in to this condition or something. I hope I don't offend anyone. I'm so happy for whoever does well with diapers but for me personally, its so damn hard. Even admitting to myself that I need to wear a pullup pretty much full time instead of stubbornly keep trying to go back to panties after a dry day or 2. Usually ends up being a big (very wet) mistake. Just like when I was a kid/teen, I keep resolving each day to do better and not have an accident. Even though logically I know anout 50-60% of my accidents couldn't be helped no matter what I do(the ones that aren't due to my self-consciousness, shyness, anxiety, waiting too late etc). I stubbornly cling to the hope that eventually I'll be diaper free even though I know that's highly unlikely at this point. I cling to my pullups because at their slim-looking and (from a distance at least) they resemble white underwear. I cling to fighting for that normalcy even though its not reality. As I said, I hope I don't offend anyone-we're all at different places in this journey. Just needed to put those words out there. Its hard.And I'll keep working on acceptance and rolling with it but yeah ... Not easy
 
Just had to go back into my files to find this. Maybe it will help you. It did me, even though I don't think it was written about incontinence. I had contacted her and do have permission to post a link to her content, with regards to the subject of incontinence.


The writer's name is Ridea Richardson and I think the content of her writing could help many of the people who visit this site.
 
Most of us know exactly how you're feeling....Your post really got me, I have to say. It gave me flashbacks to when I started wearing. Feel like I need to help, if I can.

I had such a hard time taping my first "real" diaper on. I felt so miserable, embarrassed, and defeated. Honestly, the first time I used a guard, and then a pullup I had a really hard time with it. But going to full, tape on diapers is a huge "milestone" and it's emotionally very very difficult for a lot of people.

I have a story for you. I don't usually tell this story in such detail, but I can SO relate to your post. I want you to understand why I now "love" diapers (don't get me wrong, I hate my IC and hate wearing diapers....but I "love" them because of what they do for me....) So....

When my daytime problems began, maybe a month or 2 after my bedwetting started I was shocked to be having day time problems....I was definitely in denial about it and tried to rationalize it away. It got to the point where I said, "ok look pal you need to at least wear a depend pullup on the 1+hour train commute or you're gonna have real problems". I went to CVS, bought them (probably spent an hour lurking around the aisles waiting for no one to be around etc)....I was having relatively small accidents at that time, and not a lot of them. It was mostly urgency and frequency and the pullups were really "just in case" and just for the commute. I would change into regular underwear as soon as I got to work, and then back into a pullup for the ride home. Now, at this point I was wearing taped on diapers at night, so had some familiarity with them, but the idea of EVER wearing a taped on diaper out of the house was a total NON STARTER.

I did ok with the pullups for a while. Until I didn't. And I learned the lesson in the worst way. I was waiting for a train on the subway platform to go home from work. I voided just before leaving the office as I always did and had my pullup on. It was like any other day and I totally expected to have no problems or at most lose a few ounces into my pullup.

The train was delayed due to signal problems a few stops back for almost a half hour. Suddenly I really really had to go. No bathrooms there and lots of people around. Can you guess where this is heading? My urge went from 0 to 60 in a matter on seconds. Within a minute I gushed probably 12 or more ounces, totally overwhelmed my depends pullup and had classic "pee pants" complete with wet crotch and leg, with pee running out the bottom of my pants and onto the platform. My heart started racing, I started sweating, thought i was going to have a panic attack. People literally moved away from me and I was just standing there with wet pants, a soggy and defeated pullup, alone with people trying to get away from me and NOWHERE to go. Luckily the train came a few mins later (felt like forever) and I rode for almost an hour, standing on the subway, head down, khakis wet, with people trying to to get caught staring at me every time I looked up.

I went to work the next day, and every day after that in a real diaper. I was late for work because I stared at myself in the mirror a hundred different ways to see if you could tell I had a diaper on. I went out to the kitchen 100 times to ask my wife if she could tell and made her reconfirm every time she said she couldn't....trying to figure out if she was trying to make me feel better or was truly being honest that "you can't tell". At that time I was sleeping in Abena L4s and that's what I began wearing pretty much 24/7 since then. I've long since switched to Better Dry as my go to. Honestly to this day I'm not entirely certain if other people immediately can tell or if it just looks like I have a juicy caboosey.

I've never looked back...not that I could now as I have almost no control at all.

Point is, a diaper no matter how embarrassing is SO MUCH BETTER than a humiliating public accident. And, after a while you really do get kind of used to them. I'll always wish my IC could be cured and that it will go away, but I know, for me, it won't. But you don't know that yet. So please exhaust every medical treatment you can tolerate. Use diapers for now. Don't think about being in diapers for ever....you very well may not be in them forever...Cross that bridge when you come to it. But for now, wear the protection YOU KNOW is right for you.

While diapers just won't be as discreet as pullups, they're 1000 times more discreet than soaked pants in public, or at work, or at Christmas dinner with your family. Dress around them and 99.9% of people will never know you're wearing it. I've been in diapers for 5 years and as far as I know, my wife and doctors are the only people who know I wear them. They're really just not that obvious under your clothes....we just think they are because we're hyperaware of them, especially in the beginning.


none of this is any fun. support sites like this one are awesome for this reason though. We're here for you!
 
Spicewerx I loved the link you provided. Very useful in my mind.

Mikejames great post and very useful. I haven’t even had an event so humiliating and so public like you have. But like you once I made the switch to wearing tape on diapers it honestly was one of the most freeing decisions. I didn’t have to worry about if the pull up could handle the volume of my void. I could just let my body behave however it wanted. No stress if I am going to make it to the bathroom. And honestly like you said in the beginning it is you yourself being hyper aware and think people are noticing it. They aren’t as most people are so self absorbed they do not notice anything around them.

ShiRae no worries ever it’s why this forum is here. Too vent, ask questions, learn from others and to understand you are not an outcast or freak. Lol. There are lots of people going through similar problems or feeling defeated. Like you stated some of us are just further along the path than others. Stay strong and you will find the light and what works for you as an individual.

With love. Cheers.

Jason
 
You can't will yourself out of having accidents. When i went back to discuss, for a long time I would buy them from the store one pack at a time, hoping it would be the last time ... and it never was. Eventually I got better diapers, and started ordering them by the case. It's much better this way, but it takes a long time to accept.
 
I'd like to add, letting go may be accepting things as they are, but acceptance should not be viewed as giving up. It's more about managing the problem, without giving up the hope that some day it might get better.
 
I had to do it twice once when the incontinence came then diapers.Then was tested not long ago and as I always had a strong feeling came back autism but lucky on the milder side that dosen't mean without problems.
 
Switching to full time protection can be hard for most of us. It was for me but if I wanted to be able to pay the bills and have a place to live it was just one of those get on with what life throws our way type things. I’ve had days where I just wanted to to toss all the incontinence products in the trash but then real life sets in and I always have to go back to them in order to leave the house and do life.
Don’t let it get the better of you. Yes it’s a hard realization to swallow but if you need them you need them. Have a Blessed Holiday everyone!

Jim
 
@Jwh51

Well said Jason. You are right this forum is for support and advice and tips from each other going through health issues. The worst thing someone can say on this forum is "see a doctor or ask your doctor". None of us need a forum for that. We can do that on our own. Besides if doctors had all the answers this forum would not exist. But like I said -- well said Jason.
 
HueyHuckabee said:
@Jwh51

Well said Jason. You are right this forum is for support and advice and tips from each other going through health issues. The worst thing someone can say on this forum is "see a doctor or ask your doctor". None of us need a forum for that. We can do that on our own. Besides if doctors had all the answers this forum would not exist. But like I said -- well said Jason.

I often think "go see a doctor" needs to be said. A majority of incontinent people actually never seek treatment. Everyone who experiences any incontinence should seek medical help.

I've seen on several IC support sites, people essentially looking for anonymous medical advise. I think it really depends on what an OP is asking in order to give a good answer....

On MOST posts that I reply to, I try my best to give good, practical advise based on my experiences, but I almost always include a line saying that you need to see a doctor.

The embarrassing nature of this problem causes far too many people to avoid treatment when the vast majority of incontinent people CAN be very effectively treated or cured. Sadly, these people walk around with damp underwear or rely on absorbent products when they really don't need to. They become depressed and reclusive.

A lot of people who end up sticking around on sites like this are ones that just couldn't be helped and have decided to manage long term with absorbents, and that's totally fine...But unless an OP has explicitly stated that they're already seeing a doctor for their IC issues, it's important IMO to suggest they do so....Sometimes the only support someone needs is the encouragement to get over the initial embarrasment and shame so they can work up the nerve to seek treatment.
 
Very well said MikeJames. I agree 110%. People need to get over the embarrassment in incontinent issues and raise them with your doctors. Otherwise you are not giving the doctors the full perspective and therefore they may be missing the actual proper diagnosis.

Doctors do go to school for a very long time and do actually now amazing vast amount of things and how they interact together. Doctors have gone into that profession to genuinely help people. Seek their help and don’t be ashamed about anything as honestly doctors have heard it all. I know it’s a very hard concept to accept as I was once in that spot and have since discussed many many times with my wife and being that she is a doctor. She always says it’s very frustrating when people do not tell the full story as it just hinders the entire process. It’s easy for me to say now lol but honestly it has taken me about 2-2.5 years to accept that reality; and I can say it does get easier and easier.

Let a doctor do their job and maybe you are the lucky one that they can cure. ;). I am way beyond that and I just try to relay useful information to individuals who want to make their lives better and accept and let go.

Don’t be a victim. Accept reality and make changes to accept things as they are. Don’t let things define you! Define yourself your way.

Then you are in control and everything will get much easier as you would be fighting yourself.

Just my thoughts. Cheers. Jason
 
I seriously appreciate all the feedback. This is a problem I feel very alone with in the real world. As far as "see a Dr" goes, I have. Repeatedly. Both as a kid, teen and adult. Urologist, urogynecologist etc. The best they came up with was my bladder seems to get the signal from my brain later than normal, sometimes way late. Sometimes there's even no warning at all just a completely unexpected accident. There apparently is nothing physically wrong with the bladder itself. By the time I get the signal,the urge is often overwhelming. I've been on 3 medications with literally no result but def some crappy side effects including a bedwetting drug when I was 16 that actually caused me to have seizures and I have no history of seizure issues period. Of course when the drug was stopped the seizures went away. I'm tested for diabetes yearly and other things like kidney issues. Nothing. But I continue to struggle. I'm glad I found this forum. At least now I'm not struggling all alone. Thx peeps.
 
@ShiRae it seems your post really hit a nail about how many of us felt before or still feel. It seems what we hate what we need.

I had the same feeling about any incontinence products since i started having daytime accidents. I had long time issues of sudden urge but managed to hold it back, by adjusting my life to the flows of my bladder. About 14 years ago i started having accidents more regularly. At first i thought i could manage my problems by just planning my day better, between drinking, going to the loo before feeling any urge, and knowing where to find the next toilets. I started putting tissues in my underwear and did so way to long ending up with wet pants and some very, very awkward situations. It was a very big step going to a store for incontinence pads. It only were some basic Tena for men but i felt very ashamed. Still it was so much better than the tissues i used before and i regained some confidence. Unfortunately the time i could hold my pee increased and i had to change pads several times a day. Instead of buying bigger pads i blamed my regained confidence, as if i gave up the battle to this condition by taking more precaution. In every step i took using bigger pads this struggle of shame, self blame and stubbornness continued. Up till last year i used pads with the biggest absorbent capacity i could find. Still i had some leaking now and then, but i was horrified having to use diapers. This changed at a birthday party of a friend, when i had a major leak, leaving not only a big stain in my trousers but also on the light coloured sofa i was sitting on. The worse thing was i didn't realise it until it was time to get up and go home. Everybody noticed it and i just stumbled something like i spilled some water but didn't mention it because it was just water, and rushed home.

The next day i ordered a sample of diaper style briefs. Although by using diapers i gave up the possibility of going to the toilet normally, because by the time i open it up it's always to late. But i use them now and i realise i should have done so years before. My self esteem increased but i gained some quality of life.

You really don't have to excuse yourself and i don't think you offended anybody. Instead i want to thank you for sharing your honest feelings.
 
@Eden98

Yep...this is why i have such a love/hate relationship with diapers. I'll never stop hating my need for them, but i love what they've done for me.

I really wish the medical community would stop stigmatizing them so much. Every time i see a new doctor i get so many questions about why i wear them, how long ive been in them, and asked why i am not treating it medically. I have to reexplain every time that nothing has worked, ive teied more than you can imagine amd im at peace with it.
 
Great posts Mike, Eden and everyone else. Thank you. I just feel so guilty using them, which is absurd, but it feels like im giving up, and i think my ability to hold urges is decreased slightly by wearing pads, so there is a crazy circle, a continual conflict in me between guilt and necessity.But also scarce moments of a having a healthy relationship with them, which is viewing them in their place, just something practical which allows life to continue. And sometimes the busyness of life has forced that proabbly healthyy relationship.

... sorry jusy had to vent...

PS. Mike, my surname is James ! :) I am English. Maybe we are related !!!
 
Hi Rowan,
Thanks for your post. You aren’t alone with the conflict you are feeling. I get that at times too. It can be frustrating and can be debilitating at times if we let it. There has to be a point we have to say enough is enough and just use what we need to get though life. Sometimes pads work, other times pullons, or a diaper if we need that. Sure it seems defeating but it’s also liberating knowing we can get life done despite having to wear different underwear.
Hope everyone had a nice weekend. I haven’t posted much lately as work, the holidays and other obligations have had me tied up a bit.
Merry Christmas, Happy Hanukkah, and whatever Holiday you celebrate.
Thanks for everyone posting.
Kind regards,
Jim
 
I stand behind every word I posted. I spoke a little truth and it was not well received but like a good friend of mine used to say "the truth is offensive". As I said before and will continue to say if everyone was so satisfied with their doctor's performance than you and I would not have been looking for support and advice and tips elsewhere. Now I'm going to have to get on my soapbox and set matters straight. A forthcoming thread will be posted to address this subject. Due to the nature of the subject matter and egregious posts, it will most likely not be a PG rated discussion.
 
@HueyHuckabee

My response wasn't being critical...I just don't agree...with the caveat that often times people respond without bothering to read a whole post...if the OP said they've been seen by a doctor or doctors then there's no need to reply with "you need to see a doctor"...obviously....

But, any new incontinence is 100% cause for concern. Most people who end up on these boards are the slim minority of people who didn't succeed with medical treatments. But to suggest that a person new to this stuff shouldn't bother with seeing a doctor is wildly irresponsible for a few reasons. Firstly, IC is not a condition in itself. it's a symptom of a bigger problem 100% of the time. That problem could be benign like OAB or weak muscles or it could be as serious as diabetes or cancer. Secondly, the VAST majority of people can become dry with medical intervention.

People who don't see a doctor regularly could have urinary IC as the first symptom of long undiagnosed diabetes and they could save themselves a LOT of misery by getting it checked out.

Honestly you're just flat out wrong when you said "The worst thing someone can say on this forum is "see a doctor or ask your doctor". None of us need a forum for that."

A lot of people DO need to hear that on a forum because MOST people with IC hide it and are too ashamed to talk to a doctor and get a medical problem looked into. And then SO MANY of these forums are infested with ABDLs pretending to be incontinent so they can tell everyone to use diapers. So truly IC people have to sift through TERRIBLE and HARMFUL advice from perverts and fetishists.

So yes, most people do need to be encouraged to responsibly manage their health rather than hide it and use absorbent products as a first, last, and only resort when they could either get dry OR uncover a very serious medical problem.

I'd suggest you read a few studies that highlight just how many people don't bother seeing doctors our of embarrassment...it might open your eyes a bit.

I think you're taking disagreement personally and getting a little worked up over nothing.

And if you feel attacked by any of this, I'd suggest a thicker skin.
 
It took me over a year to leave my house while diapered. You are not alone. It's not giving in. It is helping yourself until you can resolve this. If it can't be fixed, then you at least know there are ways to better your life in spite of the incontinence. Best of luck and wished. Merry Christmas too!
 
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