I’m 20 months post-president. My first 8 months went very well with kegels. I was on a downward trend to only .1 or .2 ounces per day (by weighing the pads)AFTER sessions in the gym. However, four months after RP, i had a measurable PSA (only 0.023) and started salvage radiation and hormone therapy immediately. The radiation caused my daily leakage to rise to 1-1.5 ounces/day, which I thought was terrible. Still, this meant that I would change my pads like underwear (I rarely wore a pull up).
Suddenly, at four months after the end of radiation, the spigot turned on, and I went to 5 ounces/day, then 10, then 20, and at 18 months post-RP, and a year post-radiation, I am at 30-40 ounces per day. That means I mainly wear pull-ups. I get about 10 ounces/pull-up. I leak less at night, so can get 9-12 hours on the nighttime usage, changing in the morning. I get 4-6 hours on the daytime pads, so another 2 to 3 per day. What I cant project is when my pull-ups will leak (at 10+ ounces, using Depends). So I change right before going somewhere. The doctors have determined that I have radiation-induced Overactive Bladder (OAB). It has not responded well to MYRBETRIQ, so today I will get the Botox injections into the bladder. If that doesn’t solve the problem, I will have the Artificial Urinary Sphincter installed.
My case is unique to me, and falls into a very, very small percentage of cases. The good news is my PSA has remained undetectable, and my overall health is excellent. I can essentially do anything I want, but I have to plan to carry extra pads/pull-ups, and find places to change. Hope this helps.
