still_here25
New member
I’ve posted here before, but got locked out of my account. Anyway, I’m 31 and have had chronic moderate to severe OAB with urge incontinence since I was 25ish. I started a few months after a spinal cord injury. My MRI showed spondylethesis, bilateral marked compression on the L5, but no central stenosis.
Other than Tourette’s syndrome, I don’t have any other physical illnesses. They labeled it as a nuerogenic bladder but also noted my scan didn’t “clearly explain” my symptoms.
I’ve been taking oxybuynyn for years which has helped. Recently I started ptns daily which has given me even more relief. In fact, my quality of life has drastically improved. I wear a light pull on brief now which is great considering I was dependent on heavy duty diapers before. The frequency has also decreased significantly as I spent a lot less time in the bathroom I asked my urologist if there’s anything else we can try other than surgery. She recommended physical therapy, which I’m excited to try.
I guess what I’m curious about is anyone has tried physical therapy for urge incontinence? Did it help? My urologist basically said she’s doesn’t know if it will help or not as much is still unknown about incontinence, which is so frustrating.
Also, for anyone who has severe incontinence whose symptoms started under 40, I would love to hear your story. Especially for those with a similar circumstance where the cause was not “clearly defined. I.e didn’t have prostate removed, no central stenosis. It just drives me crazy that something that has negatively impacted my life for so long doesn’t have a clearly understood cause.
Other than Tourette’s syndrome, I don’t have any other physical illnesses. They labeled it as a nuerogenic bladder but also noted my scan didn’t “clearly explain” my symptoms.
I’ve been taking oxybuynyn for years which has helped. Recently I started ptns daily which has given me even more relief. In fact, my quality of life has drastically improved. I wear a light pull on brief now which is great considering I was dependent on heavy duty diapers before. The frequency has also decreased significantly as I spent a lot less time in the bathroom I asked my urologist if there’s anything else we can try other than surgery. She recommended physical therapy, which I’m excited to try.
I guess what I’m curious about is anyone has tried physical therapy for urge incontinence? Did it help? My urologist basically said she’s doesn’t know if it will help or not as much is still unknown about incontinence, which is so frustrating.
Also, for anyone who has severe incontinence whose symptoms started under 40, I would love to hear your story. Especially for those with a similar circumstance where the cause was not “clearly defined. I.e didn’t have prostate removed, no central stenosis. It just drives me crazy that something that has negatively impacted my life for so long doesn’t have a clearly understood cause.