Quiet. Is everyone ok?
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Archives1
Staff member
It has been a little quiet. I have been following the posts āUrinary Tract Infectionsā. It has been interesting and Iāve learned some different ways to treat it with non-medicated treatments. As for insurance paying for incontinence pads, my experience is NO. I have Humana Insurance and they do not pay for pads. However, they do give you money to buy products from their over-the-counter store. In their store you can purchase stuff including incontinence pads. The pads are horrible. They leak terribly and are cheaply made, but they are basically free - to so I suppose, you get what you pay for. I feel insurance companies should pay for the best/good incontinence supplies if a doctor prescribes them. But alas - NO. That would be to much like right. Take care people and live life to the fullest. I hope you all had a great Thanksgiving.
Archives1
Staff member
Hope everyone who celebrates had a wonderful Thanksgiving! Was my first time traveling to visit with the in-laws since my incontinence issues started. They live about an hour and a half drive away from us, and we stayed about five and a half hours. Wasnāt sure how it was going to work out, but wore an overnight diaper all day and had a spare with me. Didnāt feel like I needed a change when it came time for the drive home so was a good day. Will plan to do the same for the upcoming family Christmas get-together.
Archives1
Staff member
The VA will provide diapers or pull-ups if you doctor writes a prescription for them and you are 30% or more they are free. I have tried both the diapers and pull-ups and in my opinion they are very cheap and terrible when it comes to leaking. Their catheters are good but be sure to ask for something for lube. I have also tried their penis clamps and condoms and I guess the are ok but very uncomfortable and not for me. I also had a suprapubic catheter inserted and I hated it for two reasons: 1. It restricted my mobility terribly because it is inserted into the abdomen and connects to a bag attached to the leg for urine collection. 2. It hurt me continuously. I felt like I had to pee badly even when my bladder was empty. However like I said the VA does provide incontinence pads by prescription but in my opinion the are not very good because they leak horribly. I hope this helps. Take care and live a great life.
Archives1
Staff member
Think the site was down over the weekend. Good that itās back up!
In terms of whatās happening with me, I went to some social things organised by an LGBT charity and hope to keep that up. Unfortunately, train strikes mean that I wonāt be able to make the upcoming meetings in December but I hope to make some in the future. Unfortunately, the options for socialising are pretty limited in terms of things during the day in accessible venues.
Went to a meetup in a coffee shop and it reminded me of why I pretty much gave up trying to get a social life via the Meetup site - venue was a bit of a nightmare access wise. No thought is really given to wheelchair users and people with decreased mobility when people pick venues. Quite a lot of groups Iād love to go to but canāt.
Iāll stick to the ones organised by the charity but it felt a bit heavy (was specifically for people with autism and ADHD) and wouldnāt have normally gone to it but it was good to get out. I think the thing is I donāt define myself by my disability and sexuality and so would just prefer a regular social group but getting out and socialising definitely helps and if I donāt keep those skills up I tend to take many steps back. There arenāt any other options and it took me an age to find out about London Friend.
Still waiting to hear back re my uni application - think thatās the best way to get back out in society and my physio seems confident that doing that part time is doable next Autumn. They asked for my undergrad certificates so itās being processed (albeit extremely slowly!). Would just like to know really.
I hope to do a voice acting course in February as a way of preparing for uni.
Am able to sim race more often so back doing that and whilst itās virtual - racing in leagues over iRacing seems to be my best shot at a social life at the moment!
In terms of whatās happening with me, I went to some social things organised by an LGBT charity and hope to keep that up. Unfortunately, train strikes mean that I wonāt be able to make the upcoming meetings in December but I hope to make some in the future. Unfortunately, the options for socialising are pretty limited in terms of things during the day in accessible venues.
Went to a meetup in a coffee shop and it reminded me of why I pretty much gave up trying to get a social life via the Meetup site - venue was a bit of a nightmare access wise. No thought is really given to wheelchair users and people with decreased mobility when people pick venues. Quite a lot of groups Iād love to go to but canāt.
Iāll stick to the ones organised by the charity but it felt a bit heavy (was specifically for people with autism and ADHD) and wouldnāt have normally gone to it but it was good to get out. I think the thing is I donāt define myself by my disability and sexuality and so would just prefer a regular social group but getting out and socialising definitely helps and if I donāt keep those skills up I tend to take many steps back. There arenāt any other options and it took me an age to find out about London Friend.
Still waiting to hear back re my uni application - think thatās the best way to get back out in society and my physio seems confident that doing that part time is doable next Autumn. They asked for my undergrad certificates so itās being processed (albeit extremely slowly!). Would just like to know really.
I hope to do a voice acting course in February as a way of preparing for uni.
Am able to sim race more often so back doing that and whilst itās virtual - racing in leagues over iRacing seems to be my best shot at a social life at the moment!
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