PSA after Prostatectomy

In meu case, I had prostate removal in May 2019. Since then I did 3 PSA tests (every 3 months) and all of them 0,01 but I still have incontinence. what I am doing now is living my life. Doing whatever I can do, doing sports etc because I don't know what is the future, so enjoy life.
 
My first PSA in Nov 2019 was undetectable. Will be tested again for my next appt in Feb or Mar. I felt good about the first result until I had a conversation with a high school classmate who had his prostate removed long before mine. His first PSA was undetectable. Fast forward and he is currently taking chemo treatments for bone cancer. His PSA has been as high as 180s. Seems like bone cancer is a close associate of prostate cancer. That took the wind out of my sail. My take is keep getting PSAs and hope for the best. Undetectable sounds good...for right now!!! wishing you all the best.
 
@Neves
Your case sounds exactly like mine. Undetectable PSA, but very little bladder control. I had some bladder control when lying down. And some when sitting down. At first, before I stood up I'd reach inside my diaper and put a choke hold on my Dick and get over the toilet and release the choke hold. Then, after doing thousands of Kegel exercises over a period of time, right before I stood up I'd clamp down hard and was able to make it to the bathroom.
The problem is when walking around the Piss just constantly drips out. It is impossible to hold a pelvic floor contraction for several hours and walk at the same time. Looks like this is a permanent thing.
Other than diapers and pads, there's only one other non-surgical choice.
A condom catheter also called a condom drain. It looks like a condom and a hose is attached to the tip that runs down to a bag attached to your ankle. The bag has a drain valve at the bottom. When it gets almost full you just put your foot up on the toilet seat and open the valve. Way better than diapers/pads. You can't wear it 24/7 tho. So I wear the condom drain in the daytime, and pads/diapers at night.
After a couple of months you adapt, and this just becomes a part of your life. Like wearing eye-glasses or dentures. The biggest hassle is hygiene. Piss stinks hellabad. A few drops here, some dribbles there, and pretty soon your whole house stinks like stale Piss.
When at home, I take off diaper in the shower. Drips go down the drain and I can rinse myself off with just plain hot water from the waist down.
Other things that help: An air tight container for the Piss soaked diapers and pads. Baby wipes for when you can't shower. Shave off ALL your pubic hair, including your Nut-Sack and around your Ass-Hole if you have a hairy Ass. (Don't shave them off down to the skin however. Bumps will manifest, turn red, get irritated and infected) Amazon sells absorbent pads for the seat of your car "just in case" ---

Just received from Amazon the K-fit Kegel Toner for Men - Electric Pelvic Muscle Exerciser for Automatic Kegels
4.4 out of 5 stars
$159.95 --
This is the home version of the multi-thousand dollar device used in Urology re-hab Clinic.
You insert a small probe up your Asshole. (probe is VERY small, you've shit bigger turds) Then, you apply an electric current to the probe that stimulates your pelvic floor muscle. This works just like the TENS units used to stimulate external muscles. This device was recommended by my Urologist. I will test it out today.

There are several Surgical options and all of them except one scare the fucking bejeeters out of me.
It's called ATOMS device for bladder control. Developed in Austria and used in Europe for the last 5 years with a 100% sucess rate, recently approved by the FDA for use in this Country.
YouTube video's explain how it works:
Hope this information helps you. Cheers.
 
Update: 1st post surgery PSA yesterday, <.10 considered to be undetectable! No leakage in two weeks, no pad, even at work.
 
I'll get the results of my second PSA Friday afternoon. A little side post, I had a very negative experience end of January and into February. Took a trip up north and came back with bronchitis, fortunately not the flu. A lot of coughing involved. Unfortunately coughing is directly connected to the muscle controlling the bladder! I could not prevent leakage. At the worst I was using 3 pads per day. I'm over it now and back to some form of normalcy.
 
56vw said:
I'll get the results of my second PSA Friday afternoon. A little side post, I had a very negative experience end of January and into February. Took a trip up north and came back with bronchitis, fortunately not the flu. A lot of coughing involved. Unfortunately coughing is directly connected to the muscle controlling the bladder! I could not prevent leakage. At the worst I was using 3 pads per day. I'm over it now and back to some form of normalcy.

I had a bit of a cold going into my prostatectomy. The next week or two afterwards, I had a mild cough. Really painful on those surgical wounds.

Even though my continence has improved significantly since my surgery, my biggest complaint is being able to pass gas. I can clamp down to cough or sneeze, but if you clamp down, you can't fart!
 
Coming up on 5 years post-prostatectomy at age 60 and PSA is still undetectable. Of course, I'll be in diapers for life but am well adjusted to that. My understanding is that physicians don't like to use the word "cure" because recurrence can happen many years after treatment. Thus, we have durable remission. My uncle enjoyed 24 years or so of durable remission with no recurrence after his prostatectomy. An unrelated cancer killed him well into his 80s.
 
jdtat, I, and I'm sure all who have gone thru this surgery, are hoping for your uncles outcome...except for the last sentence. Even though something, if not cancer, will do us in. Your uncle went through this a long time ago. I wonder what his early experience was like.
 
You never regained continence? Is it more stress leakage? Did the cut to close to your bladder?

I see some of the guys have a great recovery after a couple months. On March 4th I will have 4 months since surgery and 54 years old. I still have stress leakage and at 1 pad a day, unless I walk then it’s 2 pads. Most of the time I am good all morning and into the night. And then it seems my bladder is weak and leak more after dinner. Starting to think I am not going to get to the point where I don’t have to wear a pad. But will keep moving forward and see where I am at after 6 months
 
Kirk, I had trouble with my bladder for several years prior to the prostatectomy. Dr. thought it was BPH though my slowly rising PSA and family history suggest it was cancer all along. I never retained urine in my bladder but dribbled and had some stress leakage even then. Post surgery I've been incontinent and it has slowly progressed both stress and urge. I got used to this some time ago.
Sounds like you are doing well at 4 months. For continence it supposedly can take up to a year to recover to your maximum.
 
I will be 54 yrs old in aug .i was diagnosed with prostate cancer and had it removed feb25 of last year.i ended up with a massive infection and was hospitalized and 4 months after with another infection due to the stitches not dissolving .here I am 1 year later going thru 3-4 pads a day pull-ups at night and I feel there is just no light here for me to get better ..no matter what keagles I do it doesn’t help so I’ve given up on that but not sure if it’s the right thing to do.i see a incontinence specialist in Boston in April to discuss my situation and find out why I am still like this 1year later ...my eurologist told me I would be a good candidate for a sling surgery ...This has been so depressing living like this and frustrating
 
Let us know how you make out with the specialist, and what he recommends. I got down to a pad a day at 3 months. But I got the flu in the last month and feel like I am starting over. The coughing has weakened my bladder. I am starting to wonder if the sling is an option for me as well. I am sure I will wait a year before exploring this option. Let us know if you decide to get the procedure and how it works
 
Kirk, I had a similar experience when I caught bronchitis this past January. My surgery was Aug 2019. I was continually getting better...and then I got sick. I had no bladder control when coughing, even when I held my crotch while coughing . I was up to three pads a day. I was under the weather for a couple weeks. That episode has passed and I have bladder control back to at least prior to being sick. Coughing seems to have a direct connection to the bladder. It put me on head trip for awhile. Fortunately it is now past. Hang in there.
 
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