Nothing has changed, Test results.

[ThatFLGuy]

I must have stomped my feet enough, as I was told that my Anorectal motility study results would take 3+ months to get. The downside is that I now realize nothing has changed. In fact, it has worsened somewhat.

My physical therapist is now messaging my whole medical team about things that need to be tested NOW!!! Because not seeing any improvement is not what PT expected but the Doctors were only relying on PT to fix this.

Well, now we have to figure out what we can do to improve my quality of life as nothing else PT has had me try has worked so biofeedback was a dud for my care.

 

[justej]

While it’s good that nothing seems to be worse, it’s so frustrating trying to find answers. Sometimes you have to scream to get the help you need. It’s so hard abc frustrating to have to constantly advocate for yourself, but I’m glad to hear you are doing it. Keep it up, I hope you find something that works.

 

[mavii]

Hey, first of all, contact your doctor immediately and clearly explain that PT hasn’t helped and your condition has actually worsened. Work with your PT to see if there are options besides biofeedback.


Small things can also help more fiber, plenty of water, and sometimes changing positions. Keep a daily log of your symptoms so the doctor has accurate info.


Most importantly, don’t stay silent speak up, because you need urgent attention.