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Edsvokter73

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Greetings all. I am 52 and will be having a robotic prostatectomy on 20 January. I realize incontinence will be a temporary side effect of the surgery. Any suggestions and advice on how to overcome this as quickly as possible would be greatly appreciated.
 
Hi. Just saw this and realize my response will follow your surgery on Jan20. First, I hope the surgery went well and the follow up pathology report shows that got all the cancer! You are probably still wearing a catheter now but it will be removed in a few days. You will probably experience some amount of incontinence (IC) with the catheter removal. Make sure you have maxi pads and tight underwear when the remove the catheter! IC will probably be a reality for you for the next 6-12 months. The most important thing is to begin or continue kegel exercises! Get help from a PT therapist! With kegels you will begin to notice a reduction in IC after 1.5 - 2 months. You can go from Maxi to light pads and/or use either external catheters or penile clamps to manage IC while active. I have used both and they work. After 6 months to year, ideally you will be dry or close to it. The important thing to remember is that your surgery addressed the cancer which, as you know, is a life or death issue. Keep everything is perspective as you deal with whatever level of IC you may have! Cheers!
 
Hi I had my prostate removed January 3rd I am still dealing with severe incontinence, wearing pamper all the time hoping that the Kegels exercise started to work and feel the changes, it is hard I hope you have better response to the exercise and get weel soon.
 
Greetings all. I am 52 and will be having a robotic prostatectomy on 20 January. I realize incontinence will be a temporary side effect of the surgery. Any suggestions and advice on how to overcome this as quickly as possible would be greatly appreciated.
The healing process is relatively slow, making patients an absolute. Somewhere between the third and fourth months, you should see major improvements.

AS you have been told, doing your Kegels exercises, along with other pelvic floor exercises, is essential because you are training muscles that have never had to work as hard as they do now. Depending on how large your prostate was, the amount and location of the disease will have impacted how much of the bladder neck could be saved during the procedure. In general, normally the internal bladder sphincter muscle and the bladder neck work together to control urine flow, while the external sphincter plays a minor role. IC issue after the prostate is further impacted if the prostate was enlarged, as the enlarged prostate acts as a constriction point for urine flow, allowing the internal bladder sphincter and the bladder neck muscles to atrophy.

After the prostate is removed, urine flow is improved, but part of the bladder neck muscles has been removed during the process, plus the internal bladder sphincter muscle has been traumatized. How much of the bladder neck muscle is spared is dependent on a number of factors, but the size of the prostate is a major component.

The Kegel exercises are intended to strength those remaining muscles, but it is important to be mindful of how you do the Kegels. My PT person described it as follows: you have rear and front pelvic floor muscles. Men have a naturally stronger rear pelvic floor. Think of this muscle contraction like you are trying to hold in a fart. The forward or front pelvic floor muscle is much harder for men to activate. This muscle contraction is often referred to as the "Guts to Nuts", the best way to learn this contraction is by standing in front of the mirror while doing it. You should see your nuts lift, and you should learn to hold this contraction.

Other floor exercises, like Bridge lifts, scissor leg lifts, squats, and other core workouts will speed your recovery. Remember, now that the cancer is gone, you have the time to heal, you need to be patient, but consistent with your body.

As you progress, you will want to do bladder training as well. Bladder training is straightforward. Learn to hold your pee for 2 hours plus. Over the course of a few months, you'll see improvements. I'm attaching a document that you may find helpful, I know it helped me manage my expectations.
 

Attachments

Hmm, not to be a wet blanket, but Kegels have done just about nothing for me. RP Dec 18, 6 months of Kegels--two different PTs verified I am doing those correctly, strong pelvic floor muscles, but pretty much no change in urinary incontinence over this time--5-6 towels and pads per day. Very frustrating, almost 5 months and no obvious improvement. I do the Kegels about 4-5 times a day, 3 sets of 20 seconds, and squirt every time. The external sphincter does not close after urinating, so I found some relief by pressing in on the lower muscle that is between the "V" of the pelvic bones while doing the Kegel exercise--this stops the squirting for around 15/30 minutes.
 
Hi. Just saw this and realize my response will follow your surgery on Jan20. First, I hope the surgery went well and the follow up pathology report shows that got all the cancer! You are probably still wearing a catheter now but it will be removed in a few days. You will probably experience some amount of incontinence (IC) with the catheter removal. Make sure you have maxi pads and tight underwear when the remove the catheter! IC will probably be a reality for you for the next 6-12 months. The most important thing is to begin or continue kegel exercises! Get help from a PT therapist! With kegels you will begin to notice a reduction in IC after 1.5 - 2 months. You can go from Maxi to light pads and/or use either external catheters or penile clamps to manage IC while active. I have used both and they work. After 6 months to year, ideally you will be dry or close to it. The important thing to remember is that your surgery addressed the cancer which, as you know, is a life or death issue. Keep everything is perspective as you deal with whatever level of IC you may have! Cheers!
Thank you for that, this is a good reply. While my RP incontinence has not responded to my Kegel work, and I get (very very) frustrated, I would not do anything different knowing what I know now--so far after 5 months no trace of cancer. This is a good perspective and helped me in my journey.
 
Hmm, not to be a wet blanket, but Kegels have done just about nothing for me. RP Dec 18, 6 months of Kegels--two different PTs verified I am doing those correctly, strong pelvic floor muscles, but pretty much no change in urinary incontinence over this time--5-6 towels and pads per day. Very frustrating, almost 5 months and no obvious improvement. I do the Kegels about 4-5 times a day, 3 sets of 20 seconds, and squirt every time. The external sphincter does not close after urinating, so I found some relief by pressing in on the lower muscle that is between the "V" of the pelvic bones while doing the Kegel exercise--this stops the squirting for around 15/30 minutes.
I'm sorry to hear nothing seems to be working. What has your Urologist said about your condition?
 
Greetings all. I am 52 and will be having a robotic prostatectomy on 20 January. I realize incontinence will be a temporary side effect of the surgery. Any suggestions and advice on how to overcome this as quickly as possible would be greatly appreciated.
Hi, I had a radical robotic prostatectomy in May 2019, but unfortunately, my incontinence is total, meaning that I have no control over my urine. I use Tena diapers every day and night, pads when I'm at home, and a urine bag when I travel. It's not easy. After the robotic surgery, I did physical therapy for incontinence, but it didn't help at all. Robotic surgery is good, but the doctor has to be very experienced so as not to damage the internal organs.
Do the Kegel exercises and whatever your doctor tells you. I wish you good luck. Cheers
 
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