Long day, Trial implant.

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And that is UNFAIR
YOU AREN'T A DAMN KNOTCH ON THE BELT OF THE REP TO FILL A QUOTA.
Your body your choice.
Two weeks trial is STANDARD

Not necessarily. It depends on the the trial device, the particular patient's symptoms, and probably lots of other things as well. My trial was three days. That was still enough time to see that there was a significant improvement and move forward with the permanent device.

I've been told by multiple Medtronic reps and by my urologist that if I can feel the simulation regularly, then the intensity is too high. As my urologist put it, we want to talk to the nerve, but having it turned up where it feels like tapping amounts to screaming at the nerve.

Different patients and different devices may render my own observations of limited use. But it's still worth asking the rep about turning the intensity down a bit.

 

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Itapilot you are right, can be different situations for various.
I've worked behind the scenes in medical office and heard and seen enough to be cynical. I've also followed this person for years as he get bounced through medical tests so often and his medical records not kept meticulously.
It is just frustrating.
My mother had platinum insurance and I had to fight unnecessary tests. A poor person is useful for Medicaid claims for office visits and tests. So both ends of the spectrum get slot of patient not person treatment.
The most important thing is he gets relief from pain and some quality of life back. I know that's what we all want for him.
I should not follow this thread.
What do I know. I do know.
I would be keeping meticulous medical records and making increasing demands for pain treatment if it was some one I was taking care of.
Again, I'm sorry.

 

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@snow

I got wash-less shampoo and body wash so I should be okay.

I would say that so far nothing seems to have changed. Still having bad bladder voids without any control.

I did tell the rep that I have muscle issues and that I do not have issues really knowing when I have to go except for bowel stuff.

The big thing is that the tapping was weird at first but now not so bad.

 

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@Maymay941 You wrote, "demands for pain treatment if it was some one I was taking care of." Yep, me too. I have encouraged him several times to go to a pain clinic, as have others. ERs and regular doctors don't care about pain and don't treat it.

Unfortunately, he has also been promised tests he never received and I think it's irresponsible for them to be prescribing the ostomy without doing them. A bowel ostomy is one of the most serious surgeries and things to live with. There will be many and severe infections for the rest of life. They dramatically decrease life expectancy and have a low success rate but once they do them, there is no going back. It is particularly difficult for younger folks like him.

I have a 53-year-old female friend who has *two* Ph.D.s in science and medicine and is super brilliant, as is her husband who has an IT Ph.D. and is a professor at NYU with a phenomenal work history at top IT firms. We are talking about people who know how to take of each other and themselves. She has had health problems forever, including severe bladder incontinence and infections; I don't remember all the details because he is primary friend more so than she, but she was wayyyyyyyy worse than anyone here who I've seen post. Finally last year after 40 years of battling her bladder issues, she had no more choice except to get a bladder ostomy or she was going to die. Multiple physicians came to that conclusion. She did tons and tons and tons of research before making that choice. She has been sick for the past 1.5 years, and that was just a urinary ostomoy, not a fecal ostomy. Imagine how much worse is. My friend, her husband, had to quit his job to care for. They have children. It has been a total nightmare for them.

@ThatFLGuy I think you and your family members need to start planning to live a lot closer to the hospital and ample physicians. You are not going to be able to continue having someone drive you two hours each direction just to see a doctor, once you have an ostomy. It is unlikely you will be physically capable of continuing to live alone. You will probably need an aid 24/7 for a year, if not forever. I think you should demand absolutely everything - every test, no matter how expensive nor complex - be done that can be done BEFORE getting an ostomy. I think you should get with a pain specialist BEFORE you get it, because regular doctors don't prescribe it for more than 5-30 days, and the ER doesn't prescribe it, as you well know. Your life is going to be a lot more complicated after an ostomy and you will never be able to work again, nor to spend much time in public. Something like COVID is going to be a way bigger threat to you after an ostomy.

Please be sure to read people's comments and reviews about ostomies and about the life expectancy rates after having one. Multiorgan failure isn't exactly rare. The survival rates are actually lower if you are younger.

I sincerely hope you *don't* have an ostomy after what I have seen my friend go through!!!!!!!!!!!!!!!!

 

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@ThatFLGuy I'm glad to hear that you've become a bit more accustomed to the tapping. I doubt this thing will help you in the long run, but I absolutely think it was worth a solid "college" try.