Interstitial Cystitis
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Archives1
Staff member
Hi,
There is a lot to read about IC on the internet, and i bet you search what could be found, so here is something i can ad.
To what symptoms someone is diagnosed with IC can be different in 1 country or another, or even between 1 doctor or another. Where i live most common symptom is when there are some kind of blisters visible on the bladder wall that causes pain. It usually is caused by bacterias, but an UTI is negative. Patients most often have bladder pain, painful urge and symptoms of overactive bladder. Incontinence is not typical for IC but due to the painful urge patients often can't get to the toilet on time.
I think more than 90% of the patients are female. I am a man diagnosed with BPS, bladder pain syndrome, and chronic bladder infection ( the one thats traceable ). I have the same symptoms: bladder pain, painful urge, overactive bladder and so on …
I haven't heard about different stages of IC. I hope your doctor can give you more advice. Although there is no cure there are some possibilities to ease the pain. Maybe you can find more IC patient forums with more and better information. Good luck!
There is a lot to read about IC on the internet, and i bet you search what could be found, so here is something i can ad.
To what symptoms someone is diagnosed with IC can be different in 1 country or another, or even between 1 doctor or another. Where i live most common symptom is when there are some kind of blisters visible on the bladder wall that causes pain. It usually is caused by bacterias, but an UTI is negative. Patients most often have bladder pain, painful urge and symptoms of overactive bladder. Incontinence is not typical for IC but due to the painful urge patients often can't get to the toilet on time.
I think more than 90% of the patients are female. I am a man diagnosed with BPS, bladder pain syndrome, and chronic bladder infection ( the one thats traceable ). I have the same symptoms: bladder pain, painful urge, overactive bladder and so on …
I haven't heard about different stages of IC. I hope your doctor can give you more advice. Although there is no cure there are some possibilities to ease the pain. Maybe you can find more IC patient forums with more and better information. Good luck!
Archives1
Staff member
I have lived with IC for over 25 years, but have never heard of it being called end stage unless they mean the entire bladder wall is inflamed or covered in the “sores/blisters”. In my desperation I let them attempt to cauterize all of these as well as remove large portions of the bladder wall. This was before they knew the entire bladder wall is innervated, resulting in a constant feeling of having a blow torch in your bladder. This procedure left all of the nerves exposed (Think of a raw flaming toothache the size of a fist). They tried many things to calm my bladder as even a few drops felt like adding gasoline to the fire. This gave me extreme OAB just to make it more fun!
In the midst of that nightmare I was crushed by a gravel truck while sitting on a freeway off ramp attempting to merge. This accident cracked vertebrae in my neck & lower back, hip & pelvis. My lower back (Cauda Aquina) was damaged as well, but unknown until we realized I was instantly fully bowel & bladder incontinent. By this time they were working to save my right arm which was torn loose at the rotator cuff and assumed that and my pelvis were the worst injuries. So I’ve lived a while with this fire. I’d suggest speaking with a pain management specialist with your urologist to try to give you some comfort.
Best of luck...
In the midst of that nightmare I was crushed by a gravel truck while sitting on a freeway off ramp attempting to merge. This accident cracked vertebrae in my neck & lower back, hip & pelvis. My lower back (Cauda Aquina) was damaged as well, but unknown until we realized I was instantly fully bowel & bladder incontinent. By this time they were working to save my right arm which was torn loose at the rotator cuff and assumed that and my pelvis were the worst injuries. So I’ve lived a while with this fire. I’d suggest speaking with a pain management specialist with your urologist to try to give you some comfort.
Best of luck...
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