Incontinence after Prostate Surgery

It’s been over two years for me since my prostatectomy. I have done kegels the whole time. I still do them. They have not made one bit of a difference for me. I leak the same now as I did the day the catheter was removed. I also have total ED. I will have the AUS device inserted the last of May.I was hoping I wouldn’t have to go through another surgery but I didn’t have any other good options.
 
gnp10351 said:
It’s been over two years for me since my prostatectomy. I have done kegels the whole time. I still do them. They have not made one bit of a difference for me. I leak the same now as I did the day the catheter was removed. I also have total ED. I will have the AUS device inserted the last of May.I was hoping I wouldn’t have to go through another surgery but I didn’t have any other good options.
Click to expand...
 
@gnp10351 Please let me know how your AUS surgery goes. My Urologist thought I was leaking too much for a sling to be effective so AUS was my only choice. I have an appointment with different doctor this month so will see what his opinion is. Good luck!!

Bill
 
Fynlee said:
C....,
I'm twelve years post-op and would normally be a three liner per day guy. However.....after several years of development and testing by many in this group, my engineer partner and I have an aid now patent pending. Literally, in the last month we have finally got the product that was envisioned so long ago. It's a sleeve-like external aid of soft silicone with a protrusion at the bottom that impedes leakage. Unlike every product presently available, it can be worn 24/7, if desired. If you'd like more info and would consider joining our test group, send me a private note. I should say, I now use a single liner every 2-3 days. Best wishes. DG
Click to expand...
 
T...,
If you click on my ID, you should get to the profile page which has a similar picture for your interest. Our very recent design modifications have been hugely successful in regards to improved performance, am happy to say. Send an email to amhelp@comcast.net for more info.
Regards, DG
 
I am interested learning the kagel exercise programs that have worked for you guys. My urologist told me just Google it.
 
There are physiotherapists who specialize in this work. I'm somewhat surprised your urologist hasn't referred you to one. A typical visit involves the therapist doing a ct scan to see the sphincter and ensure it is actually closing when the patient is doing the exercises the right way. That is usually followed by the assignment of new exercises. The exercises progress to those that are more challenging over time. I started doing ten second kegals (three sets of ten a couple of times a day) while lying propped up on my bed with my knees up. I'm now doing standing kegals of ten seconds (with a ten second rest in between) (three sets of ten a couple of times a day) using a yoga block on the top opposite side of a door tied to exercise elastics I hang on to while leaning away from the door. That is followed by five second kegals while bending my knees with my back to the wall. (again, three sets of ten five second kegals)

I know there are google instructions which I've seen which are basically standing up doing ten second kegals followed by ten second rest periods. (three sets of ten a couple of times a day). Correct kegals are usually described as what you do when you are trying to hold your urine from leaking. It is suggested you not contract your stomach muscles at the same time.

While I know this therapy works for many patients for whatever reason after sixteen months it hasn't worked terribly well for me and I am on a wait list for AUS surgery this Fall.
 
I think I would need a nap after all that! 5 years post surgery, and I'm finally accepting my need for diapers...not easy, but getting better.
 
Ok 7 months out and down to 1 light pad a day “drips and dribbles”. It’s usually less than an ounce at the end of the day, unless I lift heavy stuff or jump around in the boat. Saw a PT twice, had been hit and miss on kegals, now they’ve worried me enough to do 40 daily, 10 second hold, 10 second rest. No improvement I can see for the last month, but I’ll keep plugging along. ED is a big problem, but I’m a religious “pumper” and can see slight improvement, but not enough. Life goes on.
 
186Cajunfisherman private msg quote post Address this user plus 1plus 1plus 10Ok 7 months out and down to 1 light pad a day “drips and dribbles”. It’s usually less than an ounce at the end of the day, unless I lift heavy stuff or jump around in the boat. Saw a PT twice, had been hit and miss on kegals, now they’ve worried me enough to do 40 daily, 10 second hold, 10 second rest. No improvement I can see for the last month, but I’ll keep plugging along. ED is a big problem, but I’m a religious “pumper” and can see slight improvement, but not enough. Life goes on.

Can I ask how many times a week you use the pump, I have been very lazy with it and I may jus be suffering because of it?
 
I use the pump once a day while in the shower. Pump it up, wait 15 seconds, let it go down for a few seconds. Repeat 5 times, takes about 3 minutes I’d guess. Mines called the Encore Vacuum Therapy System. My doc had the “pump guy” call me and give instructions. It was $350.

With the pump and silicone ring I can go for a minute or two, still a long road ahead.

Found it here for $125, looks the same, guess I got robbed.

www.vitalitymedical.com

Encore Deluxe Vacuum Therapy System - Battery or Manual ED Pump

Encore Deluxe Vacuum Therapy System - Battery or Manual Pump (OTC) is ON SALE NOW. Buy discounted medical supplies and products at Vitality Medical.
www.vitalitymedical.com www.vitalitymedical.com

Edit: here’s mine, they both look the same, but I don’t know.

www.edpumps.com

Encore Revive Premium ED Pump System | ED Pumps

The New Encore Revive Premium ED Pump System is Non Invasive, Drug Free, over 95% effective, Call edpumps.com at 1-866-218-0902 today!
www.edpumps.com
 
It's been five months since my radical prostatectomy. I have religiously been doing my Kegels since the catheter came out. 5 sets / 30 reps @ 1 minute intervals. Found it hard at first but I persisted and currently I'm doing very well. I have found Michelle Conway on Youtube to be really helpful, she's a Pelvic Floor Therapist from Australia.

Had two PSA test and so far it's ZERO.

Good luck everyone
 
Just an update: Had my surgery on January 9th, 2022 and my incontinence is starting to slow down. Was using 10 to 12 pads a day and now after 7 months I use 1 or 2 a day. Thank you God!! I am feeling better and now I have to go in and have a piece of my Kidney frozen because of cancer. Hopefully, that will take care of it. Still no luck sex wise but I have been told it could take up to 2 years for things to return. We shall see. Good luck to everyone who is going through this. You can do it!!!
 
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