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Been a bit since I was at Pt. The only muscle that was not effected by the Botox is working but not right. We did not check anything else due to risk of accident this time but I have to be ready for next visit so we are going to do things different on that visit.
My PT person and I also went over the clinical notes from my Doctors and also talked about the meetings that were had about my care.
There is not much else except a mobility test to see how long food is taking to get through my system that stands between me having to get an ostomy of some type, But. the mobility study may not be the best test for me because of my surgery I had done to remove the bad area of my bowel.
That means they may have to try something else but I don't know what yet but should after next PT appointment.
One big thing that came out of that appointment was that my PT very bluntly said that no one is going to stop her from getting my the best care that I need in the next few months because at this point we know that things are not okay and nothing good is going to need to be done to try to give me a somewhat better quality of life. However, nothing is going to fix this and make me able to work again doing anything physically. The muscles below my belly button do not work at all so I am latterly forced to use my back to hold myself up which is only a part of the problems I have.
PT said she will fight and argue for disability with all the evidence she has including the results of the reactive study we did with the biofeedback to show that my lower muscles don't work so. Now I just have to find out what GI is going to do to see what when I will hit the point of surgery now.
My PT person and I also went over the clinical notes from my Doctors and also talked about the meetings that were had about my care.
There is not much else except a mobility test to see how long food is taking to get through my system that stands between me having to get an ostomy of some type, But. the mobility study may not be the best test for me because of my surgery I had done to remove the bad area of my bowel.
That means they may have to try something else but I don't know what yet but should after next PT appointment.
One big thing that came out of that appointment was that my PT very bluntly said that no one is going to stop her from getting my the best care that I need in the next few months because at this point we know that things are not okay and nothing good is going to need to be done to try to give me a somewhat better quality of life. However, nothing is going to fix this and make me able to work again doing anything physically. The muscles below my belly button do not work at all so I am latterly forced to use my back to hold myself up which is only a part of the problems I have.
PT said she will fight and argue for disability with all the evidence she has including the results of the reactive study we did with the biofeedback to show that my lower muscles don't work so. Now I just have to find out what GI is going to do to see what when I will hit the point of surgery now.
