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Long post beware!
I had finally gotten control somewhat, well out of day diapers just prior to my 9th birthday. I have never been dry at night and for that reason diapers were the way to control night issues. Growing up obviously difficult, if I say so myself I was very gifted athletic individual. I was also a good fighter, lol my sophomore year in college I began having day issues once again and went back in diapers full time, what a blow to my self esteem. I was on scholarship for Soccer, my junior year being back in diapers 24/7. I decided to give up my scholarship and went to talk to my coach he encouraged me even knowing my lack of feeling anything when going and the diapers. He wanted me to play my junior year as he knew looking at my transcripts that should I attend summer courses and do 24 hours per qtr. i could graduate after my junior year. I did fulfill as he was my biggest supporter and he revealed to me, that while nothing like I experienced. Had faced issues growing up and never received support.
So much for my background back to regularly scheduled response, I always had back issues. So the Dr’s at the time could not pin point the exact cause other than nerve/neurological issues. Back surgery in 2016 as the pain was affecting my ability to play indoor soccer, softball, golf, any type of competition I was up for, after that surgery had spinal fluid leak which they let go for a month. They finally went back in and fixed the dura leak which was torn in 5 places. Woke up and had to lay flat for 36 hours shortly after being gotten up from that position I apparently had gone into a seizure, my wife said I died. I woke up to 20 people in my room doing all
Kinds of whatever to me, LOL. I was in ICU for two weeks.
Just last year the back pain had returned to where I couldn’t take it any longer, had saddle anesthesia for a few weeks, I just figured I had primary care visit in a few weeks. When I went there she sent me directly to a spinal surgeon that day and they did MRIs and such and said I must have surgery the next morning. I was leaving on a motorcycle on off road trip for three days and conveyed that to her, as my feet had been numb for years she said I could lose my mobility, I said should that be the case I will get one more ride in. I told her I would see her Monday when I got back from my ride and then have surgery. She did the emergency surgery and some of the pain resolved to a level 6 easy to deal with in my opinion. That was March of 2021 just as I started PT for that surgery I was sitting in a meeting and felt myself wetting like out of my penis, had not felt that for 20 years, I got so excited! I started pelvic floor training and stimulation etc, I actually went through so many more diapers than usual because I was now aware I was wetting myself and then one day all sensation left no reason….. so weird here one hour and then gone forever.
I again had a primary care Dr physical scheduled a few weeks later, I had been having some balance and falling issues. My PCP noticed I had foot drop front of foot basically my toes would drag and end up tripping me. I had a follow up from the back surgery and went to neurosurgeon appt and as well had not wet myself or peed in shower or anything going on three days. They straight cathed me and were shocked my bladder had not ruptured, first time I had ever had retention. I could not feel what I should have been feeling pain from bladder so full. Well neurosurgeon said must have another emergency surgery like four hours later, had Cauda Equina syndrome never diagnosed. She did first surgery and I woke and had no ability to move left leg, my left big toe barely could twitch.
My Neurosurgeon said my spine was so unstable she had to do another back surgery the next week 5 level fusion. It was at this time she had done full MRIs of spine to brain which I had many times only this time she brought to the attention of my neurologists that I had lesions in my cervical area and also one right at brain stem.
They diagnosed with a demyelination disease Multiple Sclerosis, PPMS the worst type of MS. My seizure Neuro had never done MRIs of cervical area even though there were not necessarily lesions on the brain, white matter areas and it was actually the spinal lesions causing the seizures. I then had a cervical fusion in March of 2022 the four back surgeries in august of 2021 and the one in March of 2021.
The reason I give all this Information is that most times incontinence is neurological conditions, do not stop until you are given proof of what is the cause!!! My MS Neuro had me file in May of 2022 for full disability which was approved within two months, super fast.
While gathering all my Medical from over the years 2000 pages worth, LOL I came across an MRI my primary care ordered for my seizure Neuro and it read right there in black and white, demyelination disease (MS) clinical follow up needed dated 2017 not one Dr. Neuro mentioned to me not sent me for any additional follow up, I could have been getting treatment for MS for the last 5+ years!!!!
A year and a half ago I was playing sports with difficulty and pain no big deal still competing, riding my motorcycles, had ordered a brand new RZR which has set for 1.5 years and has .7 mile on it and now am dependent on a walker, cane and scooter for an outing. I just wanted to play competitive softball until I was 50 and then was hanging up my cleats well I turned 50 in June and have not been able to complete that!
DO NOT SETTLE FOR JUST PERING YOUR BED/PANTS/DIAPER OR JUST BEING TOLD YOU NEED A CATH. Things change hour to hour day to day week to week year to year. Find out cause of your incontinence!! It could be the difference of just wearing a diaper to being told you will be in a wheel chair 6 months to maybe 5 years and have to do a $150k remodel to your house! So you will be able to function!!
I had finally gotten control somewhat, well out of day diapers just prior to my 9th birthday. I have never been dry at night and for that reason diapers were the way to control night issues. Growing up obviously difficult, if I say so myself I was very gifted athletic individual. I was also a good fighter, lol my sophomore year in college I began having day issues once again and went back in diapers full time, what a blow to my self esteem. I was on scholarship for Soccer, my junior year being back in diapers 24/7. I decided to give up my scholarship and went to talk to my coach he encouraged me even knowing my lack of feeling anything when going and the diapers. He wanted me to play my junior year as he knew looking at my transcripts that should I attend summer courses and do 24 hours per qtr. i could graduate after my junior year. I did fulfill as he was my biggest supporter and he revealed to me, that while nothing like I experienced. Had faced issues growing up and never received support.
So much for my background back to regularly scheduled response, I always had back issues. So the Dr’s at the time could not pin point the exact cause other than nerve/neurological issues. Back surgery in 2016 as the pain was affecting my ability to play indoor soccer, softball, golf, any type of competition I was up for, after that surgery had spinal fluid leak which they let go for a month. They finally went back in and fixed the dura leak which was torn in 5 places. Woke up and had to lay flat for 36 hours shortly after being gotten up from that position I apparently had gone into a seizure, my wife said I died. I woke up to 20 people in my room doing all
Kinds of whatever to me, LOL. I was in ICU for two weeks.
Just last year the back pain had returned to where I couldn’t take it any longer, had saddle anesthesia for a few weeks, I just figured I had primary care visit in a few weeks. When I went there she sent me directly to a spinal surgeon that day and they did MRIs and such and said I must have surgery the next morning. I was leaving on a motorcycle on off road trip for three days and conveyed that to her, as my feet had been numb for years she said I could lose my mobility, I said should that be the case I will get one more ride in. I told her I would see her Monday when I got back from my ride and then have surgery. She did the emergency surgery and some of the pain resolved to a level 6 easy to deal with in my opinion. That was March of 2021 just as I started PT for that surgery I was sitting in a meeting and felt myself wetting like out of my penis, had not felt that for 20 years, I got so excited! I started pelvic floor training and stimulation etc, I actually went through so many more diapers than usual because I was now aware I was wetting myself and then one day all sensation left no reason….. so weird here one hour and then gone forever.
I again had a primary care Dr physical scheduled a few weeks later, I had been having some balance and falling issues. My PCP noticed I had foot drop front of foot basically my toes would drag and end up tripping me. I had a follow up from the back surgery and went to neurosurgeon appt and as well had not wet myself or peed in shower or anything going on three days. They straight cathed me and were shocked my bladder had not ruptured, first time I had ever had retention. I could not feel what I should have been feeling pain from bladder so full. Well neurosurgeon said must have another emergency surgery like four hours later, had Cauda Equina syndrome never diagnosed. She did first surgery and I woke and had no ability to move left leg, my left big toe barely could twitch.
My Neurosurgeon said my spine was so unstable she had to do another back surgery the next week 5 level fusion. It was at this time she had done full MRIs of spine to brain which I had many times only this time she brought to the attention of my neurologists that I had lesions in my cervical area and also one right at brain stem.
They diagnosed with a demyelination disease Multiple Sclerosis, PPMS the worst type of MS. My seizure Neuro had never done MRIs of cervical area even though there were not necessarily lesions on the brain, white matter areas and it was actually the spinal lesions causing the seizures. I then had a cervical fusion in March of 2022 the four back surgeries in august of 2021 and the one in March of 2021.
The reason I give all this Information is that most times incontinence is neurological conditions, do not stop until you are given proof of what is the cause!!! My MS Neuro had me file in May of 2022 for full disability which was approved within two months, super fast.
While gathering all my Medical from over the years 2000 pages worth, LOL I came across an MRI my primary care ordered for my seizure Neuro and it read right there in black and white, demyelination disease (MS) clinical follow up needed dated 2017 not one Dr. Neuro mentioned to me not sent me for any additional follow up, I could have been getting treatment for MS for the last 5+ years!!!!
A year and a half ago I was playing sports with difficulty and pain no big deal still competing, riding my motorcycles, had ordered a brand new RZR which has set for 1.5 years and has .7 mile on it and now am dependent on a walker, cane and scooter for an outing. I just wanted to play competitive softball until I was 50 and then was hanging up my cleats well I turned 50 in June and have not been able to complete that!
DO NOT SETTLE FOR JUST PERING YOUR BED/PANTS/DIAPER OR JUST BEING TOLD YOU NEED A CATH. Things change hour to hour day to day week to week year to year. Find out cause of your incontinence!! It could be the difference of just wearing a diaper to being told you will be in a wheel chair 6 months to maybe 5 years and have to do a $150k remodel to your house! So you will be able to function!!
