Broken body.

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Thanks guys, spoke with her about it again and she's okay with it. I think the main issue is she's worried I'll crash or have trouble handling it. I know it'll be tough so ultimately I plan on just getting to grips with out around the block before going further afield. It's also a pretty big step in accepting my limitations as well and it mustn't be easy for her to see me decline like this.

I did say that I don't plan on becoming overdependent on it but do really want to be able to go out on my own confidently and I only see that happening with a wheelchair. I don't want to only be able to move around the house and to go out with someone supporting me.

Looking into it, getting to university shouldn't be too bad. All London taxis have a wheelchair ramp so getting a taxi straight from the train should be the way to go. I'm hoping this means I could get back doing sport as well via wheelchair football. Been getting into sim racing in a big way but really need some real world contact.

I think the problem is as well that Long Covid's a funny one really in that hypothetically it's something you just recover from but it hasn't gotten better on its own and waiting lists for clinics are crazy. I'm ultimately just tired of sitting at home festering waiting to get better. The problem is that it seems much more like a neuro issue - my physio says my muscles are fine and yet my limbs just aren't playing ball. I only had one neuro test at the hospital as well and apparently there are better ones out there. I don't know.

 

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@Sci_Fi_Fan Congratulations on the successful talk with your mum; good for you! And yes, I’m sure you’re right: it’s hard for both of you to accept your limitations. Good for you for moving toward a solution!

 

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@Sci_Fi_Fan Given how challenging it is for the world to just survive COVID, I wouldn’t hold your breath for any nearby cures for longhaul yet. I think they’re a long way from even knowing *what* they’re trying to treat, to figure out *how* to treat it. Viruses are soooooo evil. I think you’re doing the best thing by moving ahead immediately with the wheelchair and the crutch, etc. until the medical community better knows what they’re doing.

 

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I'm glad your mum's OK with it now but coming to grips with new limitations and accepting them is no easy task. I really admire you for taking all of that on and as they say these days, taking ownership of it! But you're doing what you need to do and adapting to the current conditions. Adaptation is what it's all about and you should be able to do it up really big!!! You will prevail!!!

 

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@billliveshere Thanks for the encouragement! It's going to be a real challenge getting to grips with the wheelchair but hopefully in the long run it will help. Placed the order this morning, felt like a big step but it should enable me to get out and about.

@snow I completely agree and it's so refreshing to see a fellow long-hauler shares my philosophy. I'm on a big Long Covid Facebook group and I've been getting so irked by the comments on there. Some people just say to fight it harder which is insulting as it implies that I haven't been fighting hard enough when every day is a fight just getting about the house. Then there are the comments about wacky alternative cures. I wish people would understand that Long Covid's a spectrum. I had Covid, fully recovered and then my body just stopped working completely one morning out of nowhere. I'm not 'ill', I'm disabled is how I see it. If there's a miracle cure or treatment then great but I've wasted a year of my life waiting to magically get better. Ultimately, I just refuse to just sit about and wait for a cure - I'm 30 now, it could get worse so I plan on making the most of it. I guess using a wheelchair is a bit like wearing adult nappies - I could have sat around waiting for my urology referral but I also have a life to live. Don't want to be in them forever but they let me get on with life.

 

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Hi @Sci_Fi_Fan, good for you for taking that big step! I agree it will be a challenge to start using that wheelchair but it's much better than waiting for things to just happen. You do have your life to live and this is the most practical way to do it for now. Please keep us updated on how you're adapting to the wheelchair and seeing what a difference it makes!