4 month update - robotic prostatectomy recovery

looking for advice.
I am seven weeks post-op from my robotic prostatectomy. I am wondering if it matters if I relieve myself when I feel the urge even though it’s not much at all or if I should try to hold it as long as I can even though I’m leaking.
-Ron
 
Hey Ron,

My physical therapist told me to try and reduce the urge sensation by doing some deep breathing exercises. You also want to try and space out the time you need to pee so the bladder fills more before relieving yourself. If you haven’t gone in 2-3 hours and have that urge, then you should go. If it’s been 2 hours or less since you last went, then try the breathing (deep inhales and exhales for 30-45 seconds) I went through the same thing for a few weeks before being able to control that urge feeling. I’m just past 5 months post op and completely dry. Continue healing and best of luck in your recovery.
 
Thank You Markus. I’ll try to work on that. 5 months and completely dry sounds great.
Also I’m not drinking as much fluid as I should because when I move around during the day I feel as if I’m constantly leaking. Hopefully your deep breathing tips can help me to hold longer. I can hold out while sitting down and laying down which is a relief. I’m getting back into walking even though I’m leaking and hopefully this will help in my recovery as well. Waiting for better days. Ron
 
Ron, you bladder is a muscle, the trauma of surgery and tyebfactvtye catheter empties it for the first week shrinks the bladder. I dont know if it helped, but on the weekends, when I could sit, I would drink 48 oz of water and sit as long as I could stand it. I was dry at about 14 weeks or so. Good luck, do your Kagles, and go out and walk, even though you'll be soaked by the time you get back, you can hold tye leaking as long as you can and it improves every week. Just my experience.
 
Thanks Gkimp. I have found this thread to be very helpful and love the positive vibes. I do miss my coffee though.
 
It can be overwhelming, the Doctors mentioned it as possible, but in my opinion sugar coated it. Keep your head up, know that you will have success mixed with failure. Patients is your friend. Just when you think, I leaked way less today, tomorrow the flood gates are opened. It a slow process, jest keep up the exercises and take it a day at a time. I'm back drinking a few cups of coffee a day, amd I really appriciate it more.
 
Markus said:
Just thought I’d provide an update on my progress. Great news recently with my first PSA since the surgery and no detectable cancer present. That’s the end game goal for all of us and the most important thing.

Incontinence has gradually improved week to week. I’m mostly dry and I’ve gone some days wearing no protection and stayed dry. I still wear a depends during the work week to be safe and I’ve noticed maybe a few drops of leaking at end of each day but nothing bad.

I am walking regularly with the dog. I’ve run a few times, while wearing protection and first couple of times leaked a fair amount but that has also improved. While I walk, I try and do kegels and I also do kegels while driving to work and home from work. The walking and the kegels really help. My doc is very encouraged with my progress and thinks I’m on the road to complete recovery.

I’d echo what others have said. Try and walk, exercise and do kegels as prescribed by doc/physical therapist. For those of you that are less than 10 weeks from surgery and struggling just hang in there. I had many bad days following that one hopeful good day too. It’s a major surgery and the healing process takes time.

Hoping my progress continues and I am 100% padless in the not too distant future.

My thoughts are with all coping and recovering.
 
Congratulations on the progress. I am 7 wks post surgery and still struggling. I am consistent with my Kegels and just began light exercise. I admit, I am somewhat frustrated but also committed to persist. Thanks, Bruce.
 
I’m 8 weeks Post-Op but I feel like I lost a week due to an illness. Obviously I couldn’t stay dry with all the sneezing & coughing.
That said, I’m getting up once or twice at night and usually dry in the morning.
I have been walking and start leaking right off the bat but power through it.
I’m usually more wet later in the day after taking in fluids. Hopefully as I approach 12 weeks it will bring better results.
All in all, no regrets. I feel I’m better off dealing with this instead of something worse!
 
381, sounds like you are making progress, dry at night was my first hurdle, by the end of the day I always leaked more. Keep up the walking and Kagles, it sounds like you are on the right track.
 
Thanks Gkimp. I have an 8 week follow-up with the doctor in NYC Thursday so can’t help thinking about the coronavirus 🤷🏼‍♂️
I’m staying out of mass transit for sure
 
New guy here.I had surgery via the Retzius nerve sparing procedure.This one goes under the prostate vs: the traditional approach of over the prostate. It is supposed to keep you continent sooner and quicker.That has not been the case for me. I have been free of the catheter for 17 days and have been totally incontinent every day. Going thru 4 to 5 depends per day.Dribble and leak while sitting or laying down but complete bladder flush whenever I stand up.It seems to me that my bladder neck sphincter isn't doing anything and I doubt just doing kegels will help my bladder sphincter wake up. I'm doing them anyway but not convinced it's not going to get me dry.Thinking strongly about an artificial urinary sphincter.
 
tln, it's frustrating, but you just went through major surgery, when I did Kagles at first , my entire groin was both sore and somewhat numb. I was doing Kagles in my mind, but when some of the numbness went away, I started to see a huge difference. I didnt see any real progress until week 4 after Cath. Hang in there, try to get out and walk, that helps to strenghten the pelvic floor also. Persistent is the key, also some days you see progress and seem to go backwards the next, just part of the process. I was completely dry at about 10 weeks
 
Tin, recovery is a long process. I am 4 months in and still use a pad during the day and one for safety at night. There are some on here that have had great success after a couple months. But most it takes longer. I am still hoping I will be dry after 6 months, or at the least a year. Only then would I consider a procedure to help with continence. You will leak less and less as time goes on. Don’t jump the gun on an additional procedure until you gave your body plenty of time to heal
 
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