Young woman

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Hi, I have just joined the group so this is my first post. I am a 25 year old girl and was diagnosed with ms a year ago. I have urinary incontinence and faecal incontinence. However its the urinary incontinence that has really affected my life. Being young I loved socialising but since these problems I dread being asked to go out. Just wanted to hear from anyone with similar problems and suggestions for help. I already attend an incontence nurse but tbh dont feel like I am getting anywhere

 

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Hello Nicole!
Sorry to hear about your situation. I wish you all the strength to get better and to manager your symptoms.
Would you please share what your continence nurse is recommending and what you have tried so far? Thank you.
Kind regards.

 

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Hi Nicole, I'm in a similar boat. I just wear diapers and go on from there. I too have MS, it was better for me just to accept that symptom and manage it then to go through different treatments. As someone with Ms I'm sure that you are like me and have had enough treatments already.

 

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My nurse has recommended firstly dietary changes like dont drink caffenated drinks or alcohol. So i pretty much only drink water. I have also been given vesicare but it didnt help at all! Which was very disappointing as i kinda thought that was going to work for def. It just really annoys me because i dont feel like i need to go to the loo and all of a sudden it happens, especially when im walking.

 

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Hi Nicole, my heart goes out to you!! My mother had MS and I remember when she lost control of her bladder and how hard it was on her mentally, it's a devastating blow to ones self esteem!! I was in an accident years ago and have slowly lost control and am pretty much urinary incontinent now. It sucks but I'm alive and have a wonderful wife who understands and helps me through it emotionally and I am so very thankful for that!! I hope you can find the will to except who you are and go on with your life, I've come to believe Dr.'s do t always have the answers and allot of times are just taking shots at our problems. So do your research and find your way to deal with it!!

 

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Hi Nicole,
I too feel deeply sorry about your situation. Has the nurse said anything about a urinary catheter? It might reduce some problems and create others but it is perhaps worth asking. I have been doubly incontinent since breaking my neck in an accident in 2013 causing spinal injury and paralysis below the shoulders. I have had a suprapubic catheter since May 2013. It has worked reasonably well. Infections and blockages are problems for many catheter users but mine now seem to have been stopped. There are various other kinds of catheter which might be more suitable for you - perhaps worth asking your medical advisors if you haven't already. All the very best, Barry.

 

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The last thing my nurse mentioned was self catheterisation so i think thats what will be discussed next appointment. I would really prefer not getting a permanent catheter, I haven't shared my problem with anyone other than medical staff so would mean me having to tell family and friends...and getting alot of sympathy which I hate. I am only 24 so really dont fancy anything in your face if that makes sense. Probably sounds stupid but thats how I feel

 

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I've learned how to live my life while wearing diapers and I don't make a big deal of it and others either don't notice or just don't care, but do have those times when I let myself worry about it and start feeling depressed about it but eventually remember it's not that big of a deal and just on with life again. Very few people know about my incotinence and that's how I'll keep it. Not that I'm ashamed but I just don't see it as a necessary conversation topic. You need to find a way to cope with this and try to move on and enjoy the life you can live