Urodynamics questions

[this_sucks]

Hi, before my urodynamics follow up in a couple weeks, I have some possibly dumb questions to help put my mind at ease in the meantime. The tech was able to fill my bladder with 1100 milliliters of water, and she could have kept going. It was uncomfortable, but I didn't feel like I was going to pee without pushing. I also walked in with 700 milliliters with no urge at all. Is there a name for being able to hold this much urine? Has anyone had Botox for this? Are catheters a good idea? Thanks for reading.

 

[MichaelDahlke]

Hello this_sucks,

So if the bladder is filled to 1100ml with a UD, then that is, to put it carefully, strange - if not even negligent.

Also the 700ml with which they appeared for the examination are far too much. If no urge to urinate is felt with such amounts, then this indicates damage to the bladder nerves - probably due to overstretching. This can be the result of diabetes, for example.

The goal should be to adjust the bladder volume to about 400 - 500 ml. Botox is not suitable for this. If you can still urinate in a controlled manner and without residual urine, it probably works best if you set an alarm clock on your mobile phone and go to the toilet at regular times - e.g. every 2 hours.

If this is no longer possible, this will probably mean ISC sooner or later, since further stretching damage to the bladder should absolutely be avoided.

But you should discuss this with your urologist. There are various options that may come into question to save something here - but as I said - only the urologist can decide that.

 

[justej]

Curious what the result of this is? My first urodynamics test I had a lot too. It was a long time ago, so i don't remember the exact number but it was close to 700. I tried self cathing but just couldn't do it. Then I got frustrated and stopped going to the urologist and thought I was fine just managing with diapers. I wasn't and last year over Christmas ended up in the hospital with a dead bladder and didn't pee for 2 days. Thsts how I ended up with a permanent suprapubic catheter. It would have probably happened anyway because I damaged the nerves to my bladder in my accident. But not keeping up with the urologist certainly didn't help.

Long story short, don't ignore this stuff. Hopefully you're doing OK now.