The Pearl of the World

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Hey guys,

So I just got back from a walk this evening and have been reflecting on my mental health and things - and wanted to share a positive memory of when I was in middle school and an English teacher I had who understood me more than most people did at the time.

He never gave me anything less than a 70 even when I was failing all of my other classes. But I remember after I repeated the 7th grade we watched a movie called "Flowers for Algernon" which is about a man who is autistic who was able to be treated and live a normal life temporarily unless he succumbed back to his illness.

I feel like Agernon. And i remember him looking at me when the movie played and I deep down know that there is something different about myself - but regardless of the fact; I am trying to stay positive.

It takes a deal of great courage to stand up to your enemies; but even more so - to stand up to your friends...so I think of him; because he was the teacher that went against the grain and gave me a grade that made me feel good about myself rather than bad. Even if I deserved a bad grade.

I think the best thing I had for myself was a resource after that - being able to sit down and do my homework before school started makes me think about how much peer support I could benefit from when it comes to my future and living life positively.

As I said in another forum; which has been a safe Haven for myself recently; I've found that this support network here at the NAFC has been helpful during times of great pain and stress when it comes to my bladder. I am still too embarrassed to say something to my family; so that i can get the required protection that I can take care of myself - such as the threaded Armor underwear. At the end of the day; I don't want to deal with spasms and pain - and I could benefit from a little support - and it would give me the confidence and independence to know I can do so independently even in a supported enviornment. I met a police officer who was kind a few weeks ago; who I opened up with that may know because of myself opening up to an investigator - and it's times like these where I wish others who understood the differences of my interpersonal conflicts could step in and say "Okay. We get this." And set me up for success so that I'm not humiliated or have to talk to people about it. Bladder problems over the past couple of years medically is something I've always done on my own; and I am too embarrassed to open up to others about it because I've learned in the past others cannot relate unless you are going through it too.

My roommate (who was once my significant other) told me im going to a nursing home for 29 year olds. But I don't see it that way. It's not health home aid - it is basically just a peer supported enviornment where I can live and have the resources to be able to make sure I am staying on task - and am able to live comfortably so I don't make actions of a 12 year old. My step dad told me that one. But after my walk; and the past few days of meeting people and sitting in a body where my brain acts differently than most - I have come to terms that I am different.

And that's okay.

Blessings In Christ,
Honeeecombs
 
Hello Honeeecombs. It's been awhile since we have communicated but your recent posts seem to have an undertone of sadness, loneliness, and pain so I thought perhaps I could share a few thoughts. I, too, get extreme bladder spasms periodically. Why are they always worse at night??? It will feel like I need to void a great amount, only to urinate the smallest of amount imaginable. I always have the sensation that my urethra is being pulled out of me. When I was still working I would use the ladies room atleast 3 times an hour. Even on a good day I have never been a large voided. So, anyway, the ladles room had stalls and I could hear my coworkers voiding and I used to think to myself, "Dear Lord, how on earth can she pee so much???" I diagnosed myself with a condition I named,"urination envy"
After retirement no two days are the same anymore.
Anyway, I used to track grants and funding for numerous Not-For-Profit Agencies in the county we served. From AHRC to YAP and everything in-between. There are three main funding streams in NYS. I'm sure there may be more but these are the three I dealt with:
1. OMH: Office of Mental Health;
2. OASAS: Office of Alcoholism And Sub_
stance Abuse Services;
3. OPWDD: Office for People With.
Developmental Disabilities
.
So I guess what I am trying to convey is that there are many agencies that can assist with a range of supports to help folks navigate this sometimes crazy, often scary, life we are blessed to be part of. Each and everyone of us is a uniquely made creation and are all different. But I look at this as good thing. How boring would this life be if we were all the same?
I would like to extend to you an invitation to PM me if you want to ask about these agencies or the types of supports each provides.
Hoping you have a peaceful and pain free rest of your night.
 
Boopsie61 said:
Hello Honeeecombs. It's been awhile since we have communicated but your recent posts seem to have an undertone of sadness, loneliness, and pain so I thought perhaps I could share a few thoughts. I, too, get extreme bladder spasms periodically. Why are they always worse at night??? It will feel like I need to void a great amount, only to urinate the smallest of amount imaginable. I always have the sensation that my urethra is being pulled out of me. When I was still working I would use the ladies room atleast 3 times an hour. Even on a good day I have never been a large voided. So, anyway, the ladles room had stalls and I could hear my coworkers voiding and I used to think to myself, "Dear Lord, how on earth can she pee so much???" I diagnosed myself with a condition I named,"urination envy"
After retirement no two days are the same anymore.
Anyway, I used to track grants and funding for numerous Not-For-Profit Agencies in the county we served. From AHRC to YAP and everything in-between. There are three main funding streams in NYS. I'm sure there may be more but these are the three I dealt with:
1. OMH: Office of Mental Health;
2. OASAS: Office of Alcoholism And Sub_
stance Abuse Services;
3. OPWDD: Office for People With.
Developmental Disabilities
.
So I guess what I am trying to convey is that there are many agencies that can assist with a range of supports to help folks navigate this sometimes crazy, often scary, life we are blessed to be part of. Each and everyone of us is a uniquely made creation and are all different. But I look at this as good thing. How boring would this life be if we were all the same?
I would like to extend to you an invitation to PM me if you want to ask about these agencies or the types of supports each provides.
Hoping you have a peaceful and pain free rest of your night.

I'm very confused by your post @Boopsie61. I'm not entirely 100% sure on how to respond but I will try - The agencies I've dealt with currently are the department of social services and that's pretty much it.

I thank you for your kindness of recommendations; however the undertone of my post is not of sadness nor is it of being scared. It is more or less the embarrassment and humiliation of having to deal with urinary issues of dealing with painful bladder spasms and not being able to hold my bladder and requiring protection due to the constant pain.

There may be others out there who feel that living in pain for the sake of societal norms would be beneficial for there sake; but for my own sake - I would rather not live in constant pain and agony.

Tonight has been less stressful to say the least. My bladder while overactive has returned to a pressure rather than a intolerable pain - so tonight hasn't been too bad. It's sad to say that childhood triggers and dealing with stress is what causes the "flare ups".

I'm sorry you have had to go through that urination envy; i think the term that best describes myself is the feeling of "feeling defeated" when I suffer compared to others who have full control.

Should we suffer? Absolutely not.

But I am a strong advocated for those with hidden disabilities and even those with disabilities - and thank God everyday that while my body is different; I am blessed to be in the body He gave me.

In regards to state or federal departments; I am unfamiliar with the departments afformentioned but right now I am looking at Federal Agencies.

Blessings In Christ,
Honeeecombs
 
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