Radical prostatectomy - bladder control
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Archives1
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Hi, my name is Johnny, I am 58, Lebanese and living in hell for now (Lebanon) 
I was very healthy and gym goer 3 to 4 times a week, until last February when I discovered that I have T3, Gleason 9 cancer. Today, I am 9 months' post-prostatectomy and I suffer of incontinence which is affecting my quality of life and my mobility.
(I had the open radical..) I had an excruciating pain with the catheter, which I had to endure for 18 days (Dr. revealed later that right after the operation, and before I wake up from anesthesia the catheter "slipped" out due to defect in the balloon. so he had to operate again for 2 extra hours or so.
During recovery I had also a lot of pain sitting, cause of the "cleaning' around the rectum that the surgeon executed to remove the aggressive cancer, luckily it is not metastasic.
Finally as I write to you I am still fully incontinent, changing heavy pads 8 to 10 times a day. the main leaks or flows happen when standing as I have no control despite all exercises and medicines. However, I Noticed that the only time where leak is minimal is when I am at the gym. I am also taking hormone injections to contain the cancer, as I am not able to Start radiotherapy with this incontinence. doing Kegel exercise, going to gym etc.
Now my urologist suggests that I must start radiotherapy beginning February, and later on I may have an extra surgery to implement a urethral sling. Please share with me if you have any idea about the urethral sling and its pros and cons.
Honestly, I quote Al Pacino from the movie Scent of a Woman: "Life! What life! I'm in the dark here, I'm in the dark..." in a sense of clear information from any urologist
Thank you so much
I was very healthy and gym goer 3 to 4 times a week, until last February when I discovered that I have T3, Gleason 9 cancer. Today, I am 9 months' post-prostatectomy and I suffer of incontinence which is affecting my quality of life and my mobility. (I had the open radical..) I had an excruciating pain with the catheter, which I had to endure for 18 days (Dr. revealed later that right after the operation, and before I wake up from anesthesia the catheter "slipped" out due to defect in the balloon. so he had to operate again for 2 extra hours or so.
During recovery I had also a lot of pain sitting, cause of the "cleaning' around the rectum that the surgeon executed to remove the aggressive cancer, luckily it is not metastasic.
Finally as I write to you I am still fully incontinent, changing heavy pads 8 to 10 times a day. the main leaks or flows happen when standing as I have no control despite all exercises and medicines. However, I Noticed that the only time where leak is minimal is when I am at the gym. I am also taking hormone injections to contain the cancer, as I am not able to Start radiotherapy with this incontinence. doing Kegel exercise, going to gym etc.
Now my urologist suggests that I must start radiotherapy beginning February, and later on I may have an extra surgery to implement a urethral sling. Please share with me if you have any idea about the urethral sling and its pros and cons.
Honestly, I quote Al Pacino from the movie Scent of a Woman: "Life! What life! I'm in the dark here, I'm in the dark..." in a sense of clear information from any urologist
Thank you so much
Archives1
Staff member
Hello johnny, my name is Paul.You doctor should set you up if they are considering sling surgery for you with a eurodynamics test.This test involves them putting a numbing gel into your penis hole then insert saline into your penis hole (a probe is inserted into your rectum connected to leads that is connected to a computer.This determines how much you are actually leaking once you pee out the saline.There is a certain number they go bye to determine if you are even a candidate for a sling..from what you said how many times you change it seems unlikely that you would be a candidate.i was changing 3-5 times a day depending on what i was doing and it didnt help me..i to this day 3 yrs later from removing my prostate am still incontinent...i feel like i was never a candidate for that because i leaked to much for that to even work and i feel the doctor knew that put still gave me hope that he could help just to fill his pockets with coin.It only works for moderate leakage and not heavy...But still go thru the process and testing to determine how much you do leak and get there opinion.i know 2 people that had the sling surgery and didn't leak like i did and it worked for them.let me know if you decide to get that surgery beforehand i have more information.
Archives1
Staff member
By the way i had 2 sling surgeries done. What they don't tell you is from having anesthesia and then usually pain meds you get constipated.i had surgery on a monday and came home on a tue.I had eaten a small breakfast tue morning then went home , i ate somewhat light but normal for the next couple days by thurs morning i had to shit but was so constipated i was getting dizzy, sweating, and massive stomach pain to the point when i tried going to shit i was in so much pain i couldn't even sit on the toilet ...i ended up in the shower shifting, puking,and pissing at the same time ...it was so excruciating and a traumatic experience that i wish on no one..within a week in a half i was back to leaking like i never even had the surgery.My sling busted inside from all the pressure of shitting.i ended up with a second surgery to fix it but this time i took it upon myself and took a stool softener a week before my surgery.I also did a enima the night before my surgery to clean myself out from poop, because you cant eat or drink after 12 the night before surgery.i had surgery on a monday came home tue.By wed late afternoon i was already blooded from not pooping for them few days due to the anesthesia and pain meds and this time i did the ennima wed instead of waiting until i had to actually shit and things went totally different ...no pain no busting slings and from that day on all was good untill i gradually started to leak again ..They cut you from before your rectum to underneath your nut sac.So you would think they would tell you to do a ennima so you won't end up in pain do to constipation...The last place you would want any pressure is down there where they cut you.
Archives1
Staff member
I know what pain you had. When I needed back surgery in 2015, I was on heavy pain killer's and didn't have a BM in 5 days. My son ran me to the hospital because I was doubled over in pain. The ER was jamed and the put me on a gurney in the hallway, and no one came for me for 1 1/2 hours. I thought I was going to dye there. Well, when they took me in, they shot me up with pain medication, stuck a pipe down into my stomach, and took blood. It turned out, I went septic and spent a week in the hospital. Bottom line, don't overdue pain medication and eat prune and figs to keep things moving. Good luck with your new sling.
Archives1
Staff member
I have considered it ..I am also still thinking about what other choices i may have to help without needing surgery again.I worry about the fact of getting cut open down there again which would be the 4th time if i get the aus ..The biggest fear is i know they only last up to 7-10 yrs or so if no complications arise beforehand..All i know is going thru this i wish on no man.I def have some thinking to do but it seems like the aus is my only hope
Archives1
Staff member
yes I have, but very nervous about it...been thru 2 sling surgeries already .I know the aus only last so many yrs 7-10 if not earlier and to keep going thru these surgeries is def worrying to me .but also living this way is depressing ...Have you had one yourselfStevenR said:
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