My urologist denied anything he did made my penis shrink. My GP said several patients very strongly noted that their penis shrunk.
The penis is outside the pelvic floor and it would seem that the penis should not shrink. Mine did about 1.5 inches and at 2 years post surgery - I am still down about half an inch.
My urologist suggested pumping starting at 2 months. FOR ME, pumping did seem to increase my leakage.
Below is a text file that I saved to be able to recount my experience with Penile Rehabilitation.
I am recounting my experience - I am NOT a medical professional.
Penile Rehab / Penile Therapy - Just my experience. In another post someone asked about Penile Therapy - I though it would be good to start a post for use to share our experience.
Updated June 29, 2022 - Prostatectomy Sept 2020 age 55; Male Urethral Sling Surgery Sept 2021
My penile rehabilitation.
1) tadalafil (generic cialis) 10 mg daily (started day catheter was removed)
2) Bathmate HydroXtreme penis pump - started at week 9
3) Trimix penial injections - started at 6 months (doctor wanted to start sooner, but I needed more time to mental adjust to inserting a needing into my penis).
At 9 1/2 months, I have some natural erections using daily 10 mg tadalafil (generic cialis purchased using GoodRx (prescription required)). I use the Bathmate HydroXtreme penis pump 3 to 5 times a week (extreme has a hand pump) (link below). I started Trimix penis injections at 6 months. Using Trimix once or twice a week, I was able to have an erection without Trimix starting around 8 months after prostatectomy. I still use the Trimix once a week (March 2021 to Sept 2021).
At 9 1/2 months, I am incontinent leaking about 20 ounces a day (4 pads a day).
The longer version of above :
1) Just after treatment (prostatectomy) Daily cialis is about getting blood flowing to the penis. It took 3 months to notice any firmness about 50%. I use GoodRx to find a good price - a grocery chain store pharmacy had the best price for me.
2) My urologist recommended the Bathmate penis pump. Unless you have a firm pelvic area, you will want the Bathmate with the hand pump - HydroXtreme. I went from 5 1/4 inches before prostatectomy down to 4 inches, then back up to 4 3/4 inches after using the Bathmate pump for 3 months.
The Bathmate HydroXtreme pump is more about penile rehabilitation than producing an erection to constrict (ring to hold erection) and try to use for sex.
I sit on the corner of my tub with cups of warm water to fill the cylinder (about 100 degree). The instruction are to pump for 3 minutes, massage for 2 minutes (I use shampoo plus conditioner to reduce friction), and repeat twice for a total of 3 times 15 minutes.
The Bathmate uses water in the cylinder and seems to work on girth more. I am not looking to get bigger than I was, just to restore my pre prostatectomy size.
Bathmate website - sign up with your email to get 20% to 30% off.
Get the Xtreme because of the hand pump. I purchased the comfort cushions to reduce the chance of pulling a testicle into the pump (very painful). The size of the cushion ring goes with the size of the pump.
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Bathmate Cushion Rings help ensure that your testicles stay out of your Bathmate penis pump, with skin-safe material preventing any damage. Available for all our hydropump sizes, these cushion rings add an extra level of security to your workout.
bathmatedirect.com
YouTube search for instruction - note - most are not using the pump for rehabilitation.
Bathmate is the #1 best way to optimise male sexual health - experience gains, improve stamina and add confidence in the bedroom. With over 1 million satisfied users, Bathmate is the world’s best-selling hydropump. With a 92% complete satisfaction rate, we guarantee you will feel the difference...
www.youtube.com
I also purchased the Vacurect. I used it a few time with the rings, but the ring to hold an erection was to constricting. I also used it a few times for blood flow (pump 2 minutes, release 2 minutes). I prefer the Bathmate.
3) Trimix injections - I had a difficult time starting and using these. I was shaking inserting the syringe at first. Do NOT use an auto injector - it was not the thing for me to do. I had to stop for a while because I was putting too much mental pressure on myself to use the Trimix when I was not ready.
I also had concerns about using Trimix for every erection or orgasm. I would use Trimix, then not feel like trying for an orgasm for 5 days. That was okay. After 6 weeks on Trimix, I noticed on the days trying for an orgasm without Trimix that my erections were getting firmer and at 8 weeks of using ( month 8 ) I was getting to 90% hard.
Trimix is ordered from a compounding pharmacy. It comes in a 5 ml bottle. My initial does of 0.15 cc or 0.15 ml produced a 6 hour erection. Some member in the Facebook group (link below) also reported that they had to return to the doctors office. Make sure you get your initial dose in the morning so that if there is a problem, you can return to the doctor. After 4 hours, I contacted my doctor - I took 4 30 mg Sudafed (the 4 hour pill not the 12 hour pill).
I found that 0.05 cc gave me a 4 hour erection in the beginning. You can prefill a few syringes. I found that adding an extra 0.05 cc for storage. Before use, you shake the syringe and squirt out the extra trimix. (Trimix is compounded and needs to be shaken before each use for better results.)
Trimix tips
0) Trimix is stored in the refrigerator or freezer
1) comes in a 5 ml vial
2) make sure the order comes with 20 to 40 syringes
3) Ask the doctor to include the "Undo" injectable or pills so that you do not have to go to the emergency room.
4) Have 30 mg generic Sudafed tablets on hand (After my 5th time injecting, I started taking FOUR 30 mg Sudafed tablets after one hour.)
5) I found eating and drinking 32 ounces of water worked better than the Sudafed at deflating the erection. Part of it is that I am taking my attention away from the erection. I will watch an hour of Television.
I signed up for too many Facebook Groups and had to select a few that were more suited for me. Some groups as new members join will trigger PTSD for reliving the post prostatectomy trauma, sadness, and anger of the side effects of prostate cancer and prostate cancer treatment.
Facebook Groups - these are Prostate Cancer Groups that are for members only - you have to join the group and your messages will only appear in the group and not on your Facebook home page.
قم بتسجيل الدخول إلى فيسبوك لبدء المشاركة والتواصل مع أصدقائك وعائلتك والأشخاص الذين تعرفهم.
www.facebook.com
قم بتسجيل الدخول إلى فيسبوك لبدء المشاركة والتواصل مع أصدقائك وعائلتك والأشخاص الذين تعرفهم.
www.facebook.com
قم بتسجيل الدخول إلى فيسبوك لبدء المشاركة والتواصل مع أصدقائك وعائلتك والأشخاص الذين تعرفهم.
www.facebook.com
قم بتسجيل الدخول إلى فيسبوك لبدء المشاركة والتواصل مع أصدقائك وعائلتك والأشخاص الذين تعرفهم.
www.facebook.com
قم بتسجيل الدخول إلى فيسبوك لبدء المشاركة والتواصل مع أصدقائك وعائلتك والأشخاص الذين تعرفهم.
www.facebook.com
Search Facebook Groups
