Preparing for continence struggle

Archives1

Archives1

Staff member
Hello all,

43 years old, suffering from chronic bacterial prostitits, currently actively searching for a good surgeon willing to perform a radical prostatectomy. The suffering is simply too much.

I know that my shot at continence is not great (apparently real statistics place it at 50-50, rather than 90-10 as per the 'official' literature). But still, I'm willing to take my chances.

Any hints on what I should already start doing? Kegels?

Sorry for my abrupt and rather disjointed message, I realise it's more of a rant than anything else. All your thoughts and feelings welcome.
 
Hello! What country are you in please I dont recognize the flag without research.
I am asking as men who can offer product advice might have different resources than the country you live in.
Rant understood! Sorry you are having health issues.
 
MayMay,
If you like flags, you would love the main corridor of our building. It’s beautiful.
All the places around the world we have offices and plants. I will send you a photo.
 
@electricandroid ,
Hi and welcome. From reading what everyone has posted about after surgery it’s good to see a pelvic floor specialist and then do kegels as your doctor says.
You should find a wealth of discussion on everyone’s recovery here.
Good luck in your quest.
 
I believe starting Kegels before the surgery might not help, but could have a positive effect. If you do this ask your surgeon if you should stop doing these at some point prior to the surgery.
 
The EU has a more logical medical industry/services. Politics & religion in the USA interfere.
MayMay has the right idea.
If Belgium gives you choice, the only advice I can give is to check the Ratings by patients, and always remember that it may be impossible for any given Surgeon or Medical Facility to have a 100% rating. My surgery was for cancer, included Chemotherapy, and it was also a Clinical Study, so I got a LOT more attention and explanations. Yes, the Clinical Study changed the way they treat Prostate Cancer, today, here. The one thing I think they didn't do, was prepare me for possible incontinence. I don't think the book they gave me (yes, a book, not just a pamphlet) which is now outdated from the 2003 edition, mentioned it, either.
Sorry. Don't remember title of book, but do know that 6 years later, a friend got a newer edition.
I suggest finding a support group, now. I didn't find mine until afterwards, and only knew to look because my hospital had one. The hospital was a $800 plane trip. It was local In-Person meetings, which may not be possible during the Pandemic, but maybe. Our meeting room would have allowed Social Distancing, and was at my local hospital. We didn't have a nurse or doctor, there, but did at the Retreats.
 
Why would you have a prostatectomy if you don't need to? I am the partner of someone who is now almost 100% incontinent after a robotic prostatectomy.Kegels are not guarantees of a good result.Please think carefully.
 
Has your physician told you that surgery is the ultimate solution?
I had reoccurring prostatitis for 30 years but i never considered surgery until i had prostate cancer.
I am only in week 6 post surgery but I sure wouldn’t do this if there were any other options. Granted, i had discomfort but not sever pain from my prostatitis.
Good luck but please explore all options.
This surgery is not for the faint of heart.
 
Thank you. That is definitely extremely sound advice.

In Europe (except maybe the UK) no surgeon will ever offer prostatectomy for prostatitis. I'm trying to find one who will still do it.

I don't see any other options for myself at this stage :(
 
Hi @electricandroid Other than your prostitis, are you in fairly good physical shape? Why I ask is if you can get yourself in good shape that could help you when you ultimately have surgery. And to do that, some form of regular exercise would be good. I like to walk a lot and it is a great way to exercise without making you feel like you're having a major workout but would help you get in shape. As for kegels, they may or may not help. It would be best to ask your doctor first. And asking the doctor is a good idea no matter what kind of an exercise program you're thinking of undertaking. Although you are searching for a surgeon to do a radical prostatectomy, do you see a doctor on a regular basis? Perhaps that doctor could recommend pain management techniques or send you to a clinic that specializes in that until you are able to get with a surgeon. I hope this helps and that you find relief soon.
 
I'm in excellent shape. I jog and used to bike a lot. I was basically born on skis. I'm taking it a bit easy now, as I am on levo, and I give my tendons the tender treatment, but will get back to it immediately after.

My GP would agree to put me on Tramadol. I'm not going there though. I'd only take morphine if I had 2 weeks left to live.
 
I am in very good shape, had Davi chi robotic surgery about 6 weeks ago for cancer and am now almost 100% continent. I had full continents before. I did some, about 3 weeks, kegles before and have been good about doing them post. I also recognized that my issues post surgery were related to twisting and bending motions so ahead of the Dr.’s advice I started doing planks, side and center to re strengthen the core without the bending of crunches to avoids the potential for hernia.

Just my experience, may not be for everyone.
 
I actually had one surgeon proposing a partial transurethral ablation, trying to target some of the most inflamed areas.

However, I've read that any prior intervention diminishes chances of continence.
 
Maymay941 said:
Hello! What country are you in please I dont recognize the flag without research.
Click to expand...

I noticed that if I hover my mouse over the flag icon that the country automatically displays in a little box. Neat! :)
 
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