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Staff member
This has been an incredibly frustrating journey that I have been on for the last three and a half years.
In November of 2018, I entered the hospital with chronic stomach pain that had me doubled over. The hospital gave me pain meds and a bowel clean-out prescription and sent me home without any tests done (*More on this later).
Then, on December 20th, 2018 I ended up in the ER/ED after being in so much pain that I was forced by my family to go get checked out. That Day I was told how close to death I was. (Like if I had not gone to the ER/ED that night I would have died, Had my abscess ruptured more than it did I would likely have been in septic shock and died).
I spent the next twelve days in the hospital, and four days in the ICU ward. So yea, Christmas and New Years' in the hospital. That sucked.
I had to go back to the hospital for eight days for IV antibiotics but after stopping them for two days I ended up back in the ER/ED with stomach pain and I was told that I needed a colonoscopy to see if I needed surgery to remove the damage done to my bowel.
February 19th, 2019 I had surgery after doctors fought over what to do. Surgery happened in Florida and it was decided at that time that no ostomy was needed.
In June of 2019, I came north to Pennsylvania for a family reunion and never left because the job market and cost of living were better up here.
By November 2019 I had my first Pa. ER/ED visit. That lead to a colonoscopy to see what was done in Fl.
After that visit in 2019, the rest of my medical visits were like a book. There are over 80 at this point.
In June 2020 while at work I had a very hard time having a bowel movement and after that, I started having bowel and bladder accidents during the day.
I had an endoscopy, and colonoscopy that same week and that lead to finding that there was a real issue with my bowel and ability to have bowel movements without medications.
It took till September 2020 to finally get set up with physical therapy. Over the next two years, I went every week.
I had more tests they found that I have pelvic floor dysfunction and physical therapy was trying to fix that.
Nothing worked and after two years it was decided that I need an ostomy to fix some of the issues I have.
I ended up with an ileostomy in April of this year but things have not gone well.
Today it was found that I have diversion colitis. Add this to the nutritionist's feeling that I also have dumping syndrome with the inability to digest foods.
This all means that since moving to Pa in 2019 that everything has been a horror show and I am only seeing the pilot episode.
Moving forward means more surgery, a high possibility of supplemental nutrition being needed, and no end to future visits to the doctor's offices.
Yea was not ready to hear everything today.
Life sucks, then we die. So, yea… not good.
In November of 2018, I entered the hospital with chronic stomach pain that had me doubled over. The hospital gave me pain meds and a bowel clean-out prescription and sent me home without any tests done (*More on this later).
Then, on December 20th, 2018 I ended up in the ER/ED after being in so much pain that I was forced by my family to go get checked out. That Day I was told how close to death I was. (Like if I had not gone to the ER/ED that night I would have died, Had my abscess ruptured more than it did I would likely have been in septic shock and died).
I spent the next twelve days in the hospital, and four days in the ICU ward. So yea, Christmas and New Years' in the hospital. That sucked.
I had to go back to the hospital for eight days for IV antibiotics but after stopping them for two days I ended up back in the ER/ED with stomach pain and I was told that I needed a colonoscopy to see if I needed surgery to remove the damage done to my bowel.
February 19th, 2019 I had surgery after doctors fought over what to do. Surgery happened in Florida and it was decided at that time that no ostomy was needed.
In June of 2019, I came north to Pennsylvania for a family reunion and never left because the job market and cost of living were better up here.
By November 2019 I had my first Pa. ER/ED visit. That lead to a colonoscopy to see what was done in Fl.
After that visit in 2019, the rest of my medical visits were like a book. There are over 80 at this point.
In June 2020 while at work I had a very hard time having a bowel movement and after that, I started having bowel and bladder accidents during the day.
I had an endoscopy, and colonoscopy that same week and that lead to finding that there was a real issue with my bowel and ability to have bowel movements without medications.
It took till September 2020 to finally get set up with physical therapy. Over the next two years, I went every week.
I had more tests they found that I have pelvic floor dysfunction and physical therapy was trying to fix that.
Nothing worked and after two years it was decided that I need an ostomy to fix some of the issues I have.
I ended up with an ileostomy in April of this year but things have not gone well.
Today it was found that I have diversion colitis. Add this to the nutritionist's feeling that I also have dumping syndrome with the inability to digest foods.
This all means that since moving to Pa in 2019 that everything has been a horror show and I am only seeing the pilot episode.
Moving forward means more surgery, a high possibility of supplemental nutrition being needed, and no end to future visits to the doctor's offices.
Yea was not ready to hear everything today.
Life sucks, then we die. So, yea… not good.
