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So my mom is going to come with me to my doctors appointment to help me keep things organized. Over the last week I have been keeping a rough track of my accidents at work in a small journal. I have not been keeping a set track of accidents at home as they are more frequent. I have tried to use the incontinence diaries listed here but they only seem to be able to be printed. I tried to PDF them and us software to type on them. The big thing for me is having the best information for this doctors visit. This has not been easy to handle emotionally for me as even 5 feet from my bathroom I am still having accidents. I cannot wash the dishes or pour a glass of water without leaking. That is even if I go before. The bowel side of things is okay if I am at home but not an all the time thing. Today while playing video games I got up to go and did not make it all the way. It was not a lot but I wanted a shower after. A Shower is not an option while I am at work so wipes is the only thing I can do. Nothing has helped this. I have tried taking my meds at different time. Cut back on water intake (Ended up with a really bad headache). Today I am going to focus on typing up my logs so that I have them for the visit. I did not get to talk with my mom today because things were going on at my apartment building that set my sleep bad.

Big thing that I think I need advice on is what test, and things I should be asking about with my doctor?

Right now I am in consent pain and nothing is helping. The pain scale that my doctor uses I am always between an 6 and a 8. 6( I think about my pain all the time. I gave up many activities because of my pain)
8( My pain is so severe that it is hard to think of anything else. Talking and listening are difficult.)
Where I am most of the time is 7(I am in pain all the time. It keeps me from doing most activities...Work is something that I have to do but everything else I have stopped doing because of pain)

The biggest thing that the scale does not address is stress and anxiety. I would say that most of the time when at home I am about a 3-4 on the stress side of things. At work or out in public 7-8. Today I had a med. accident while out shopping and did not have my bag with me so had to wait to change once I got to the next store. Should have been better prepared but I don't like taking my bag into work let alone a store like target with the security that they have.

I just don't know what the next step is going to be and my anxiety
 
Hey,

I hear you and just want to say, "stop". Just take some deep breaths and stop thinking. Try meditation. Try mindfulness apps to get your brain to think about other things than your bladder pain. I know its easier said than done but you gotta do this to go forwards with this. You mention having severe pain so I would say that is the number 1 issue to raise with the doctor you get to see. Let them think what tests are needed to explore the reason you are in so much pain. Be prepared in the knowledge that a one stop shop fix might not be the case for you and you might need several exploratory procedures done in order for them to get to the base of what is causing you to leak and with so much pain.

You might be overthinking what is required of you for the visit / appointment. You could call the office and ask what is needed your end for the visit. Please try and stay calm and don't let your anxiety build. I hope that might help you.
 
I'd say when you talk with the doctor that the pain is the biggest issue. You do want a definitive answer on what's causing it and what can be done to alleviate it. If it were me I would ask about possible interactions with other meds you may be taking. Doctors don't always come right out with that. Sometimes they need to be reminded of what meds you are taking. I think your goal is to leave that doctor's office with a prescription in hand so you can start getting relief right away. Sure the incontinence is something to address but from reading your post it seems relieving the pain is the main objective. Do that and then try to work on the incontinence aspect. Good luck and hope it goes well!
 
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