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Staff member
Hey all, thought I'd check in!
Unfortunately Long Covid is still crippling me. Doing a full time Masters was a bit overoptimistic as I feel completely done in just like when I was teaching. However, should be able to switch to part time which will hopefully make things more manageable. It is good to have a reason to get up in the morning and to be able to get out and about now and again though! Have managed to get a virus (not Covid thankfully!) and that appears to be doing a number on all of my nerves.
Went to Destination Star Trek, a big convention in London last week which was so much fun. I felt like a kid in Disneyland and it really made fighting with my body for a year and a half worth it. Was really easy in a wheelchair as well as it was in a big exhibition centre. It felt like a holiday from disability issues as well. Booked to go to a small Doctor Who convention in March as well.
The good news is that after waging war with my local GP surgery and having been denied access to all the major London Long Covid Clinics due to being outside the area, I've finally got a neurology appointment next week and they've been super helpful. They're also confident that via them I could get into one of the major Long Covid research places in London.
Incontinence issues stay the same and I'm finding it more annoying as my mobility gets worse (moving any part of my body is really hard at the moment) as changes become increasingly tiring, awkward and fiddly. It's a massive pain at university as lying on the floor takes its toll and there's no real room for me to spread out. I've raised the lack of a Changing Places facility with them (a university nearby has one). If I could just have a bench to lie on things would be easier.
Unfortunately Long Covid is still crippling me. Doing a full time Masters was a bit overoptimistic as I feel completely done in just like when I was teaching. However, should be able to switch to part time which will hopefully make things more manageable. It is good to have a reason to get up in the morning and to be able to get out and about now and again though! Have managed to get a virus (not Covid thankfully!) and that appears to be doing a number on all of my nerves.
Went to Destination Star Trek, a big convention in London last week which was so much fun. I felt like a kid in Disneyland and it really made fighting with my body for a year and a half worth it. Was really easy in a wheelchair as well as it was in a big exhibition centre. It felt like a holiday from disability issues as well. Booked to go to a small Doctor Who convention in March as well.
The good news is that after waging war with my local GP surgery and having been denied access to all the major London Long Covid Clinics due to being outside the area, I've finally got a neurology appointment next week and they've been super helpful. They're also confident that via them I could get into one of the major Long Covid research places in London.
Incontinence issues stay the same and I'm finding it more annoying as my mobility gets worse (moving any part of my body is really hard at the moment) as changes become increasingly tiring, awkward and fiddly. It's a massive pain at university as lying on the floor takes its toll and there's no real room for me to spread out. I've raised the lack of a Changing Places facility with them (a university nearby has one). If I could just have a bench to lie on things would be easier.
truckin'! You'll get there!!!!
