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Hi there. I am new here. I live in NY state and have been experiencing debilitating neurologic symptoms for about 3 years. In hindsight they started before that, but were manageable. I always had trouble with urinary retention after anesthesia and recently have had issues starting a flow when neurologic symptoms are flared up. Over the past few weeks I have started wetting the bed. My PCP thinks it is related to the neurologic issues and is a sign of progression and could possibly help get a diagnosis. Most of my other symptoms are related to peripheral nerves. Any insight and encouragement would be appreciated.
 
@JoJoJo hi and welcome this is a wonderful group lots of good information being shared and very supportive I would suggest looking over the past topics discussed and you migh find some answers you might be seeking
 
@JoJoJo

If possible get your med records and find out the exact anesthesia that was used then google that particular anesthesia and see if there are reports of the same issue you are having. It you see a connection then you will know for sure but if you don't then it probably is Neurological in nature. Sometimes bed-wetting is caused by something other than Neurological like when we wet the bed as a child and then we outgrew it. The idiot doctors where I live in texas don't have any answers so I am still trying to determine what is the underlying cause of my random sporadic enuresis. I don't know if there are good doctors in New York but I can guarantee you that you have a FAR better chance of finding a competent doctor in New York than I do in texas. But I am here to give you support.

MayMay, JRpoorman, Jaytee and AlasSouth as well as others on this forum have all been supportive to me and they will be here for you too. Let me know about what anesthesia they used.
 
Thank you all for the warm welcome.
I have had anesthesia 4 times and the retention happened each time. It has been 4 years since and the bed-wetting is new. The neurological symptoms have been progressing so I do believe this is related to that.
 
@JoJoJo

OK so the retention is definitely anesthesia related but the retention has disappeared ?

As for the bed-wetting, it does sound Neurological but it could be secondary to an underlying Endocrine/exocrine condition. I'm guessing you have already seen a Urologist, right ? Have you seen an Endocrinologist ?
 
Yes... Both endocrine and urology were prior to the bed-wetting. I still have trouble starting a flow and other than after anesthesia, retention happens when I have severe bouts of acute pancreatitis. Which happen about twice a year.
 
@JoJoJo you have my sympathy. I was very ill with acute pancreatitis a few years back, two weeks in hospital, some of it in intensive care. A horrible thing to happen to you so often, cheers Phil
 
I've been told that it isn't uncommon for anesthesia to cause retention. That is why they ask if you have been peeing after survey because they can't release you if you haven't.
 
@JoJoJo Welcome to the group. Many supportive, informative and most of all kind people here. Feel free to reach out. I've always gotten great advice here.
 
I've never had retention.
You said something that rings bells. 1). The anesthesia: my operations started in 1986. Prostatectomy in 1996 did include mild incontinence, but it faded slowly. But there was no big issue until three related ones in a particular hospital in Tacoma (2013), WA, then one in Anchorage, Ak, 2018. The first wiped memory from operation thru ICU thru regular hospital thru first week in nursing home. The second from the hospital lobby thru a couple of days in the ICU. Three weeks to get over the worst of the incontinence before they released me. Before those last 2 sets of operations, I always woke coherent and memory good, sooner than most, and no incontinence. My incontinence has faded to almost mild. Now you make me suspicious of the anesthesia. (as if i wasn't, already.)
There does seem to be an anecdotal link to Diabetes. You didn't say if you have that.
2) that part about peripheral nerves. My Peripheral Neuropathy (which you may not have but should at least research) started with the 2013 operations, as did the mild incontinence. Check it on Medifocus.com, or ask about it, or, at the very least, check a hospital's website to research PN. I kept track of the literature with Medifocus - they link to the latest scientific Journal studies/articles on PN. If there is a link/study on PN and Incontinence, i missed it.
That suggestion you research the anesthesia sounds like a good start.
If you get any information, please share it.
 
@JoJoJo

Have you had time to look over your med record ? Did they document the anesthesia that was used ?
 
@HueyHuckabee I haven't had a chance yet. Been at my infusion all day and have to check 5 different surgeries.
@AlasSouth I have PN. Specifically SFN and autonomic.
 
@JoJoJo

Wow that's alot of records to go through and I would imagine the infusion is exhausting. When you feel up to it take your time and go over your record with a fine tooth comb approach. Try to get good sleep (if possible). I wake up every 30 minutes from my arms going numb but hopefully you don't have that symptom.
 
Welcome, JoJoJo. I'm glad you received so many helpful responses.

I am wishing everyone well, and grateful to all of you for your presence and support for all of us.
 
When I needed the records of a major operation in 2013 (to prove i had the operation and it did incapcitate me for a few months, among other reasons), the clerk at the hospital asked me what parts i needed and what i didn't. Maybe it might be a process you could at least ask about. It took me days to interpret/research that record, as it was in Medicalese. However, the drugs were fairly easy to find, in that record. Then i had to research some of those drugs for what they did. Probably, i might have had to go back to the hospital, my General Practicener, or even an Anesthesiolist to find out the history of the "side affects" of that drug - but mostly i used Drug.com. "Do you want to ask the Doctor or get the full information" is the "joke", but a lot of times the Nurse or the PA can tell you more, and in more understandable language. You have the absolute right to your full record, but i found i didn't need it all - the clerk was right. I asked the clerk specific qestion about what records would give me info on specific issues and got about 2/3rds of the total file and it was enough.
Good luck, and God Bless
 
Huh. Maybe i got more details: i was in a coma for 10 days on total life support. The doc's narrative went like this: he stopped breathing so we put him on the X-machine and fed him these doses of Y-drug and Z-drug. I order the nurse to do A and B. Etc. Kind of casual writing, but it was complete.
Yours sounds like medical talk for throat/mouth. It certainly begs the question: what did they feed you via "endotracheal"? We can figure out they fed you anesthesia, but which one? The next time they ask you if you are allergic to something, say: "Yeah, what ever it is they gave me "endotracheally" last time." The word allergy makes them sit up and pay attention. At the very least, it was a bad reaction, if they insist it wasn't "allergenic". Tell 'em you don't want that again as it messes up your life and it might makes things worse. Bet they got a choice of 6 or 8 anesthesias. You have enough on your plate, to coin a phrase. Did Chemo once, and those nurses were darned nice, and helpful, willing to talk about the reactions you might get, and the ones that probably were not the fault of this drug or that drug. Warned you in advance. That hospital had a special nurse and that's what she did for a living: tell you about all that stuff that's meaningless until it happens to you.
Wish some of our medical people would chime in: MayMay, Barb Drabek (Sorry, Barb, I'm sure i misspelled you).
Tell MayMay you have one up on her - she's only a double, you're a triple. ;)
Hang in there.
 
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