Huge Update.

[ThatFLGuy]

Neurology appointment might have uncovered more than I was ready for. I was actually asked how I was driving with what they found.

I am being sent next week for a more intense MRI of everything due to what Neurology found with just a simple office visit and test.

The neurologist is very alarmed that I had to go so far to get an appointment but found something that should have been caught a long time ago by any doctor I have. BUT THEY DON'T DO THEIR JOB!!! Very delayed reflexes, and my core instability. I almost fall over when I close my eyes and lose focus standing upright. I forget words, and stuff when I am standing. So my testing and more testing.


So now the Neurologist is calling Doctors at my normal **NOT TWO HOURS AWAY** Hospital to get me seen there.

 

[Pam53]

Good grief FLGuy - I get how desperate you were to get ANY appointment. - But, I will ask you - not placing blame - Did you not feel any of those symptoms? And drove anyway just because you actually got an appointment from somebody? - Pam

 

[ThatFLGuy]

Good grief FLGuy - I get how desperate you were to get ANY appointment. - But, I will ask you - not placing blame - Did you not feel any of those symptoms? And drove anyway just because you actually got an appointment from somebody? - Pam

I knew that I was having issues but no one was listening to me when I brought them up to doctors at the Er and such.

Not one doctor has listened to/documented what I said. Not one. I bring stuff up now that I am back with my PT person after a year, See the CRNP for Urology (that was with GI and pushed all the testing I got done way back...Now he is my Urologist) and BOOM stuff starts getting done.

My own PCP didn't even know that I was getting seen by Nero and my PT sent the need for it the same time she did for my CRNP with Urology. SO. Yeah, these so-called doctors that I have had suck and do not document what they should be.

My mom is trying to get up here for my new Gastroenterology appointment to go with me.

The Nerologist feels like my Pelvic floor dysfunction is more than what anyone thought. That my core is not doing enough to hold me up and my back is slowly giving up on me. What this will lead to is surgery or worse.

And I don't feel any of this except that I get frustrated when I cannot find my words when I am talking. The rectal spasm and back pain are all the time so I don't think about them unless it is a really bad day.