Excluding patients

Archives1

Staff member
Recently, both my medical practitioners' surgery and care agency (I am paralysed and need carers 3 times per day) have closed their e-mail access for patients. This is important to me because my paralysis makes it very difficult for me to hold he phone for long periods while waiting in the long telephone queues. In any case, telephone contacts are often ignored or fobbed off with deception. Is this happening elsewhere?
 
Hi Barry, Social services and medical professionals can email, you just need to tell them your preferred method of communication and get it set up for your care needs.
 
@BarrySimpson94 agree with @laalaauk go into your chart page and loo into settings, please have someone help you. Sound off if things continue like this. Boom
 
See if you can find that one doctor to set aside and tell him your struggles in terms of paralysis and communication methods. The problem is not with the doctor - but with the practices themselves - many of whom are going private (at least here in the States we are seeing this trend)

In order to alleviate medical malpractice or to be fair and consistent (Which is doing more harm than good) - private companies are adopting a standard level of care all across the board which is in term not being visible to people with disabilities or even other health conditions.

Thats what im gathering from your post - i may entirely wrong as im not from the UK. But if you can find that one doctor who is sympathetic to your situation - he may be able to give out a communication method where he can contact you privately.

There are good ones out there.

Blessings,
Honeeecombs
 
I’ve seen news stories here that say doctors are going to start charging per email. Fine, then; doctors need to actually return calls! Insurance isn’t going to pay for those emails. Doctors are stupid; I’m sure it costs way less and is much faster to engage by email than over the phone.

As usual, the level of care just goes down and down and down . . .
 
Good Luck Barry, many blessingd your way, I will pray for you better health and healing. Miracles happen all the time. Blessings-Unfortunately the medical profession is all about money now. IT is really a shame.
 
BarrySimpson94 said:
Recently, both my medical practitioners' surgery and care agency (I am paralysed and need carers 3 times per day) have closed their e-mail access for patients. This is important to me because my paralysis makes it very difficult for me to hold he phone for long periods while waiting in the long telephone queues. In any case, telephone contacts are often ignored or fobbed off with deception. Is this happening elsewhere?

speaker phone
 
@snow A group in Cleveland started charging for any MyChart Communications that included medical advice.

The administration tries to justify it, but it is a money grab.

3 things that cannot serve your interests if they are for profit:
- Education
- Healthcare
- Insurance

(Education is the last one standing, but I fear not for long.)
 
medicine needs to maximize reimbursement for every minute spent providing patient care. Most health care workers racked up a soul-crushing burden of debt to pursue their dream and are anxious to start reaping rewards.
 
@tripichick I would feel more comfortable if knew that the money was actually going directly to the practitioners. However if I had to wager a bet, I would guess the money goes into the institution’s profits with the “assurance” to the doctors and nurses that it would “trickle down.”
 
JustAGuy said:
@snow A group in Cleveland started charging for any MyChart Communications that included medical advice.

The administration tries to justify it, but it is a money grab.

3 things that cannot serve your interests if they are for profit:
- Education
- Healthcare
- Insurance

(Education is the last one standing, but I fear not for long.)

Yes, this is a greedy way for them to take from people, sad really as my medical team strongly encourage using MyChart, as there have been times my caregivers have detected something and I needed to come in.
 
@BarrySimpson94 Hey! Unfortunately, access to GP surgeries seems to be an issue all over the UK at the moment. The only advice I can offer is to ask your GP for alternative arrangements under the Equality Act. Organisations have to make what are termed 'reasonable adjustments' and thus the GP surgery should allow you to make appointments via email as it's unfair to expect you to use the phone.

Here's a Citizens' Advice Bureau article on the subject:
clickable text

I'd ask them for reasonable adjustments and do quote the Equality Act at them. Sadly, it is often a case of easier said than done with GP surgeries. I'm unable to access any NHS healthcare locally due to travel and terrain issues.
 
@Sci_Fi_Fan My dear, unfortunately, the equality act has never actually been passed in the U.S.; neither has the equal rights amendment. Women have no governmental rights to earn the same wages as men, even in this day and age. In my state alone, women earn an average of 38% less than a man in the same job. We’re the worst state that way. There is no state, yet, that guarantees equal wages for women. The stupid United States is wayyyyyyy behind every other first world country in this regard.



Imagine that 52% of the population, the female population, is still being mistreated that badly in this country. African-American men (7% of the population) were allowed to vote at the end of the Civil War, 120 years before any woman (52% of the population) was allowed to vote. LGBTQ rights basically don’t exist here, other than the right to marry. In fact, their rights are being stripped away everywhere you look, except in glorious California. The legislature in my state just passed a ton of anti-LGBTQ bills over the past six weeks. The governor had a great big huge smile on his face when he signed them, and also when he signed the anti-women’s choice bills.

If we’re that behind on *women’s* rights, which are the rights of the *majority* of the population, imagine how far behind we are for the rights of minorities. It’s a horrible shame and it’s nationally embarrassing. It breaks my heart. Caucasian, “Christian” men - most of them sinners of the worst kind - rule this country. They don’t care about anybody but themselves and the lobbyists stuffing their pockets.

When I go to other countries, I say I’m from Canada so I don’t get yelled at by every foreign citizen I meet . . . like America is my fault, as if *I* voted for the Cheetoh Terror, as if I have any right to change anything other than by the way I vote. I was just born here. I vote for better people than who typically get elected. That’s basically all I can do. I used to march and protest all the time and it never did any good, so I quit - also because I became incontinent and there aren’t typically public restrooms where one typically protests, and because my knees and spine can’t handle that kind of stuff any more, either. Now I typically bombard my legislators, senators, and representatives with letters. I write 3 to 5 letters per week. I don’t think they do any good, either, but I keep trying. I act locally and think globally. I attend my local City Council meetings, participate in many surveys, and let my Mayor know how I feel. I protested in favor of Black Lives Matter for close to a week, a couple of years ago. Did it change anything? No, it just led to nearly all the non-violent protestors being arrested and getting even more worked up. Do politicians care about protesters and what they’re advocating for? No, not at all. All they care about are getting checks and vacations from lobbyists, and their bizarre genre of fame. Did any of the women marching in favor of keeping Roe vs. Wade intact make any difference? No. 70.7% of the women in this country are in favor of women’s choice. But are women in charge? No, not even close, we’re just things to be used on the sidelines, unworthy of being paid fairly, even, let alone given the right to decide what happens to our own bodies.

I don’t think the rest of the world really understands how paralyzed and hopeless the average American feels. Being in a democracy does not mean that my 1/325,000,000 of a vote will count. I don’t have the power to change the police system; neither does anybody else. Nobody has the power to fix the healthcare system, either. If you pay attention, you’ll realize that presidents don’t really have power (though Trump the Fascist STOLE power), nor do governors, mayors, nor city council members. Basically, the only people with power are the Supreme Court and Congress at the federal level, and the legislatures at the state level. When politicians are running for office, they ALL promise things that can never happen, that they have no power over. They promised they’ll vote a certain way once they’re in power, but then they don’t.

So I, and most Americans, don’t even feel like my vote actually matters. But believe me, I dutifully still vote, at every level of every election. And every year I volunteer at the polling locations, as well. I started the first “Rock the Vote” chapter in Utah when I was 16. That was a movement created by people in the music video industry to encourage young people to vote, and particularly, to vote to make a difference to bring about real change. That didn’t matter to anyone either; it didn’t change anything politically.

At least we do have some choice here about our healthcare. We choose the companies and policies that we wish to pay for, so in essence, we choose our own benefits. But that doesn’t necessarily mean we can afford those plans! The plan I want, for instance, would cost me $894 a month. Nope, can’t afford that, stuck with the $699 a month plan. But still, I’m grateful I have the choice, unlike those of you in the UK. The worst part of health insurance here is that it’s tied to our employment. So, if my employer doesn’t carry a good health insurance policy, then I don’t get access to a good healthcare insurance policy! I’ve turn down jobs because their policies were inadequate for my healthcare needs. That really hurts. And it’s verboten to ask for information about the benefits until after you’re actually hired, which is so unfair, given that companies these days run 17-50 pages-long background checks on job applicants, yet we can’t ask questions about the benefits they offer without being disqualified during the interview process? It wastes so much time to go through all of the interview process and get hired, just to find out a compsny’s benefits are wholly inadequate, and to have to quit before even starting. Talk about disheartening. I got offered a job as an event planner for the state of Utah about five years ago. But their insurance was so horrible that they were actually paying for people’s flights and hotels to go to Mexico to get surgeries. It is a federal felony to do so, yet that’s what the state was willing to pay people to do. HOW IS THAT LEGAL; HOW ARE THEY GETTING AWAY WITH THAT?!!!! No, thanks; I’m the one who would get arrested if I did that, not the state! I walked away. I *really* wanted that job! I got along really well with the people who I would’ve been working with, and the assignments sounded like so much fun. I had so many ideas that would have benefitted them. My office would’ve been in a brand new, design-award–winning building. I was sooooo excited. But because of their crappy insurance, I had to say no. Can you believe that’s how it works here? Can you believe I have to choose my job based on how they provide my healthcare plan?!!! Those two things should be thoroughly distinct. My healthcare is none of my employer’s business!!!!

Anyway, I can’t think about all of this very much because it just makes me want to crawl in a hole and die. It’s hard to breathe or see straight when I consider the futility of all of our existences.

The bulk of what I write letters about and march for, and the causes I volunteer for, are actually for wilderness and wildlife protections rights, not human rights. A more disgusting species has never existed than the human species. Regardless of our political and sociological views, we are ultimately nothing but a scourge in the universe. If I really had things my way, I’d make it a law that every human baby born on the planet was euthanized and/or sterilized so our species can go the way of the also-ultra-destructive dinosaurs: extinct. I’d gladly participate myself in that plan. We’ve had our time and ruined everything on this planet with our selfish greed and it needs to come to a complete halt before there is nothing left alive, anywhere on the earth, which means anywhere left in the universe. I suffer horribly with eco-guilt, and I have since I was a child. The primary reason my ex-husband and I chose not to have children was to be kind to wilderness and wildlife. We took the un-selfish route. That path made our hearts hurt and deprived us of the one true love in life: the love between a parent and a child. It deprived our existence, not to mention our marriage, of longterm meaning. But it was the environmentally ethical choice so we committed to it. Also, I would never pass on my crap DNA to a baby, but I would have liked to pass on my ex-husband’s awesome DNA. Too bad you don’t get to choose which parent’s DNA gets to be the DNA that’s passed on!

Anyway, blah blah blah, no such thing as equality.
 
@snow I think must of the rest of the world is looking on from the outside and thinking the same as you. Glad to see the accident didn’t affect your wits!

@tripichick, obviously there are some differences in opinion. Still, without taking a political side, I think we could all agree that illness is hard enough as it is. To then feel that those who control the medical corporations are taking advantage of our medical needs for profit is heartbreaking and demoralizing.
 
@snow Sorry to hear about the issues in the US. The OP appears to be from the UK though and my reply was in response to his question re accessing GP appointments. The team at the GP surgery have a duty to ensure that disabled people can access their surgery so the 'reasonable adjustments' requirement should mean that they can ask to correspond via email. I say should as GP surgeries often don't shy away from being awkward in my experience.

@BarrySimpson94 I'd also try contacting your local MP if you don't get anywhere.
 
You must log in or register to post here.
Back
Top