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Staff member
Well, there are a few things that I can say looking back on this.
First, The volume of liquids I have to drink now just to be able to go outside at all is staggering. That means a lot more bladder accidents.
Second, heat is not my friend anymore. Being that I spent most of my life as ThatFLGuy, the heat was just something I got used to. Not now. Just a few minutes being outside here in Pa. (80*)yesterday made me need 3+ liters of liquid to not feel bad.
Third, I sleep a lot more but only when I am truly done. My body doesn't allow me to just sleep when I want anymore so I sleep when it does. This means that sometimes I am up every hour. Other times I can get 4+ hours of sleep in one go. But spent 12+ hours in and out of bed just about every day since I got home from the hospital.
Fourth, everyone with an ileostomy is different and for me this has been very hard. I truly do not have a lot of energy anymore. I need stuff like coffee or soda to get me going and keep me going but then I have that crash effect. That also means that a lot of time I get up, eat then rest for the day, and do nothing else.
Lastly, other people just cannot get how bad this is unless they go through it. I could not bend down to do anything for months. Even now it is an issue so keeping my apartment clean is a big task.
First, The volume of liquids I have to drink now just to be able to go outside at all is staggering. That means a lot more bladder accidents.
Second, heat is not my friend anymore. Being that I spent most of my life as ThatFLGuy, the heat was just something I got used to. Not now. Just a few minutes being outside here in Pa. (80*)yesterday made me need 3+ liters of liquid to not feel bad.
Third, I sleep a lot more but only when I am truly done. My body doesn't allow me to just sleep when I want anymore so I sleep when it does. This means that sometimes I am up every hour. Other times I can get 4+ hours of sleep in one go. But spent 12+ hours in and out of bed just about every day since I got home from the hospital.
Fourth, everyone with an ileostomy is different and for me this has been very hard. I truly do not have a lot of energy anymore. I need stuff like coffee or soda to get me going and keep me going but then I have that crash effect. That also means that a lot of time I get up, eat then rest for the day, and do nothing else.
Lastly, other people just cannot get how bad this is unless they go through it. I could not bend down to do anything for months. Even now it is an issue so keeping my apartment clean is a big task.