Do you experience bowel urgency or IBD? Share your story!

Administrator

Staff member
Dear Message Board Users,

The National Association for Continence (NAFC) is seeking 4–5 patients who are willing to be interviewed about their personal experiences with either bowel urgency/fecal incontinence or the process of being diagnosed with inflammatory bowel disease (IBD). These interviews will help us create educational resources to support others living with these conditions.


Project 1: Bowel Urgency & Fecal Incontinence
We want to better understand what life is like for people living with bowel urgency and/or fecal incontinence.
Topics may include:


  • What condition you have and how it affects daily life
  • How you treat or manage symptoms
  • The type of doctor you see for care
  • Coping strategies that have worked (or not)
  • Advice you would share with others

Project 2: IBD Diagnosis Journey
We want to hear from people living with IBD to learn more about the path to diagnosis.
Topics may include:


  • First symptoms you noticed
  • Who you turned to for help and how long diagnosis took
  • How you received your diagnosis
  • How you are managing today
  • The impact IBD has had on your life

Details


  • Interviews will be conducted in English
  • Length: approximately 30–45 minutes
  • Format: Podcast interview (audio and video)
  • Footage may also be used in NAFC educational videos
  • Selected participants will receive $250 compensation for their time

If you are interested in participating, click below to learn more and to complete a short survey to help us learn more about you.

Click Here: https://forms.gle/5KdRoMidohmxcaAF8

Note: Filing out the form does not guarantee that you will be selected to participate.
 
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