4.5 years since surgery

I’m 3 1/2 months post RP and still leaking pretty bad !
Wearing an external catheter and collecting urine from bag I leaked 12 ounces in 9 hours. Drinking appx 45 ounces during that time.
I see a specialist in incontinence tomorrow and need some answers on what to do !
I also have a appt at Mayo in 2 weeks if I’m not satisfied tomorrow!
It’s just frustrating/depressing that I think I see no improvements.
Doing kegals and PT
 
I’m 3 1/2 months post RP and still leaking pretty bad !
Wearing an external catheter and collecting urine from bag I leaked 12 ounces in 9 hours. Drinking appx 45 ounces during that time.
I see a specialist in incontinence tomorrow and need some answers on what to do !
I also have a appt at Mayo in 2 weeks if I’m not satisfied tomorrow!
It’s just frustrating/depressing that I think I see no improvements.
Doing kegals and PT
I’m about two years out from surgery. Have leaked since, despite doing kegels. Not much improvement, I used 2-3 pads per day plus pull up at night. I decided to have sling surgery done about a month ago. Leaking stopped, even when coughing or sneezing. I’ve had an voiding, though. When I get the urge to go, very little pee comes out. That is slowly improving, and I self catheterize to keep things from backing up too much. I see my urologist next week. Other aspects of the surgery went well. Very little pain.
 
I had to self cath after my sling surgery too. It started at 4 times a day for a couple of weeks then the number of self-cath per day went down. For the last 4 weeks (of 8 weeks total self cathing), I self cath at bedtime only.

The medical supply company did not contact me before sending the second 90 day supply and I had to send them back because I did not need them.
 
I had to self cath after my sling surgery too. It started at 4 times a day for a couple of weeks then the number of self-cath per day went down. For the last 4 weeks (of 8 weeks total self cathing), I self cath at bedtime only.

The medical supply company did not contact me before sending the second 90 day supply and I had to send them back because I did not need them.
My progression is similar to yours. My output is still slow and small amounts (100-150 ml) and I go frequently. I use a catheter only when I’m uncomfortable and before bed. But I expect that I will need one at times until I’m voiding more normally. I use a very light pad which seems to take care of small drips. I have frequency and urgency issues now, but it is so much better than before the surgery. I may ask my urologist about the issues, but I'm only 6-7 weeks out from surgery, so I’m going to give it more time. Overall, I consider the surgery a success.
 
I would like to know a few simple pros and cons for getting sling surgery. I'm almost two years out from having my prostate removed. I have good days and bad days dealing with the incontinence. I did pelvic floor exercises for about a year then stopped to look into sling surgery.

Can I get a few pros and cons for getting the sling surgery please?
 
I would like to know a few simple pros and cons for getting sling surgery. I'm almost two years out from having my prostate removed. I have good days and bad days dealing with the incontinence. I did pelvic floor exercises for about a year then stopped to look into sling surgery.

Can I get a few pros and cons for getting the sling surgery please?
 
Personal experience is complete cessation of sudden events causing a leak, i.e.sneeze, cough, etc.. Reduction in other leaking so that I now use a light pad or two per day where I had used 2-3 regular pads/per day plus pull-up at night. I had my prostate removed two years prior. PT didn’t help much. Overall I’m pleased. Surgery itself is out patient. Catheter for a day up to a week. I couldn’t pee at all after the cath was removed. I learned to self cath when needed. I have slowly started voiding normally though streams still weak, and I have urgency issues which I will address on my next visit to my urologist. I would definitely do it again.
 
Not sure what “sling” surgery you’re having ?
Is it an adjustable or non adjustable sling ?
I’m going to Denver Feb 10th to get evaluated for Proact Therapy procedure.
This is an adjustable implant that can be used for mild/moderate/severe incontinence. I have done much research on “passive” devices.
Checkout - Proact continence therapy for men
 
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Not sure what “sling” surgery you’re having ?
Is it an adjustable or non adjustable sling ?
I’m going to Denver Feb 10th to get evaluated for Proact Therapy procedure.
This is an adjustable implant that can be used for mild/moderate/severe incontinence. I have done much research on “passive” devices.
Checkout - Proact continence therapy for men
Not adjustable, no moving parts. Very effective, very durable. Only one doctor in my area, which includes University of Michigan med school, did Proact surgery. Ask a lot of questions.
 
This is just me but the adjustable look like the better option than the non adjustable sling.
If you still leak after a sling there’s nothing they can do - it’s non adjustable.
With Proact they can do an easy adjustment- if you still leak - it’s just an office visit- this is not an AUS.
Also no moving parts.
Entire implant procedure takes 20-30 minutes. At least they say that.
I must live close to you as I originally made an appt at University of Michigan to see Proact doctor but after calling Proact and talking to one of the owners of Proact he said the UM Dr only had done like 30 implants so he recommended Dr Flynn at University of Colorado who has done hundreds. I see him on Feb 10th.
Dr Flynn is awesome - he has personally called me twice on the phone at no charge to discuss my condition.
Hope that helps a little
All the best
 
This is just me but the adjustable look like the better option than the non adjustable sling.
If you still leak after a sling there’s nothing they can do - it’s non adjustable.
With Proact they can do an easy adjustment- if you still leak - it’s just an office visit- this is not an AUS.
Also no moving parts.
Entire implant procedure takes 20-30 minutes. At least they say that.
I must live close to you as I originally made an appt at University of Michigan to see Proact doctor but after calling Proact and talking to one of the owners of Proact he said the UM Dr only had done like 30 implants so he recommended Dr Flynn at University of Colorado who has done hundreds. I see him on Feb 10th.
Dr Flynn is awesome - he has personally called me twice on the phone at no charge to discuss my condition.
Hope that helps a little
All the best
Please keep us informed. I am also looking into Pro Act but I have not heard much about it.
 
BillP if you want I can send you a seminar Dr Flynn did on devices - Proact being one of them - takes bout 20 minutes
It worth watching
But I’d need ur email as I’m not to hip to computers
Here’s the front of seminar
 

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Not sure what “sling” surgery you’re having ?
Is it an adjustable or non adjustable sling ?
I’m going to Denver Feb 10th to get evaluated for Proact Therapy procedure.
This is an adjustable implant that can be used for mild/moderate/severe incontinence. I have done much research on “passive” devices.
Checkout - Proact continence therapy for men
Kkruznkru, Please keep us updated on the the effectiveness of the Proact procedure should you choose to go with that. I have read about it but have not seen any first hand testimony regarding how well it works. Thanks, Dan.
 
I will Dan !
It’s a shame no one who has had Proact (good or bad) has commented ?
I’m also on the Artificial Urinary Sphinkter (AUS) support group site and they give pros n cons about their AUS’s
Anyway I called Dr Flynn in Denver Friday bout 5:00pm and the Dr actually called me back about 6:00pm ! He said he was on his way home from surgery and called me.
How’s that for a nice guy !
I’ve never met the Dr and he just knows what we go thru and wants to help.
So we talked and I told him I was at least 80% better with leakage, really improving last 2 months, I’m coming up on 7 months after RP
I’m going to move my appt tomorrow to end of march to see if things keep improving.
I think I’ll call Tim at Proact tomorrow to see if there’s a support site for Proact or if he or me can start one.
Even if I don’t need to have the procedure maybe it’ll help others as it really looks like a viable option
All the best Ed
 
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