38 year old male Update

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Just went to Urologist finally -- well technically --second one. First one never examined me, no urine culture or bladder scan. I did pay for for 650$ dollar CT because he thought it was a kidney stone even though I never had flank pain - I have had three in the past so I know the feelin, trust me. Not to mention 230$ doc fee in which he did nothing. Second one has prescribed 2 different antibiotics (long term 3 weeks) plus NSAID (1 month supply) - diagnosis - he thinks prostatitis- This one examined me - urine culture plus Post residual Void scan - I voided 75ml in a cup and then the scan showed 31ml in my bladder. My bladder is not retaining anything! but that shouldn't be surprising since I was peeing so frequently. I was wondering if anyone can tell me whats is the difference from prostatitis and IC- Interstitial cystitis because they basically have they same symptoms. In fact some urologists believe the prostatitis term is just a term that basically means "we don't what's wrong with you but something is. Because at this point that is pretty much where I'm at. Also, new symptom that has just come along in the last two days burning sensation after urination and orgasm. Just wanted to give update - all comments welcome.

 

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First, I'm very glad you got back to us.
Second, I too have had Kidney stone (once, and I winced when you wrote "3") It is unmistakable for anything else, shows how poor that first Doc was. It is super frustrating to have to drink enough to help avoid kidney stones, and have incontinence too.
Third, I don't remember how much i had "left" when i voided for that test, but the nurse said it was pretty normal. Now I wonder if she meant for everyone, or just for patients with incontinence.
Fourth, this is reinforcement when we urge fellow forum members to go to a different Doc, if they can possibly afford it. Sorry, but I don't know the diference either, but I agree with the part about "we don't know what's wrong". This forum pretty much proves it.
Last, I try to avoid politics, but I have to violate my rule. The people of this country have made it clear they don't want single-payer Med Insurance, or Medicare For All. Even with the Pandemic Non-response staring them in the eyes. Well, far as I'm concerned, this is class warfare. Quoting Rev.William Barber: Quote: Now, what we know is, even before COVID hit, too many people in power were too comfortable with other people’s deaths. We have 140 million poor and low-income people in this country, 43% of the nation, 700 people dying a day from poverty and low wealth, two-and-a-quarter million a year, even before COVID hit, and 80 million people either uninsured or underinsured before COVID hit. Unquote
People, we have to do something! Make America Intelligent Again!
Nuff said.
God Bless Us All.

 

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@Zmarshall1991
Did they do a scope?
Also prostatitis is a lot less painful than ic .
Ic from what I understand is super painful.
I also was recently treated for prostatitis with no bacteria in urine.
But after taking ciprofloxacin for over a week gone no more frequent urination.

 

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@Izthewiz

I'm concerned that you were prescribed that particular antibiotic. The FDA has warned that it can cause spontaneous tearing of tendons and ligaments; even years later. Dangerous stuff. Look it up for yourself, and be careful about what you lift or do.

A neighbor had his achilles tendon tear away while he was just standing.

 

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@Izthewiz -- no scope. That's the next step if this doesn't clear up. My antibiotic regimen is athromizin 2(500mg) day/five days and cenfi-ominicef or something twice a day for 21 days plus industrial strength Naprosin 500mg twice daily and prescription Phenylsomething... the stuff that turns your urine blood red or for me it's bright orange -- the color of the UT longhorns...ha. Today is my third day so far things seem to be getting better - except for the burnin sensation during and after urination - maybe thats the meds or the infection finally gettin expelled from my body-I've been dealing with this for almost 3 months so until I get a whole week of feeling better I'm not jumping for victory. -- Thanks for your insight Izthewiz.

 

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The burning will go down in a few days.
It took about 5 days for mine to go away.
I had frequent urination,burning urethra,bottom area and tender prostate when they did the exam.
It took 6 months to get right treatment.
If this is bacterial prostatitis its gone after meds.
If its chronic you'll have this for life.
Mine is chronic as it comes and goes
And is gone for weeks on end.

 

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@MezaJarJarBinks -- early on I was given Levrofloxacin - 7 days and that one actually is one of the worst for tendon rupture the pharmacist actually told me not to exercise - like i was goin to do that - I was peeing all the time and exhausted from whatever was going on with me. It depleted me, no energy. Also I was instructed not go out in the sun --- A vampire antibiotic.: Anyways it didn't kill what was inside of me... ciprofloxacin sounds like its from the same family, yes?

 

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@Izthewiz -- that is what I'm scared of Chronic P:O - Everything I've read says you can't stay on antibiotics for the rest of your life- when you mean for life do you mean months of agony and two measly weeks of feeling fine- I'm not sure I'm ready for that - I've read some people on other sites that say basically that this condition is year long for years --- how do you live - on my worst days I stayed in my bedroom with a urinal- never coming out.

 

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I'm not fully sure if I have CP
Only time will tell as I'm symptom free for about 10 days now
As I was finally treated for prostatitis with ciprofloxacin.
Pray its not chronic prostatitis.
The issue with staying on long term strong antibiotics like the ones we both took they can and will cause kidney damage.
Recently I got blood labs while 5 days into antibiotics my levels of wbc and bun levels were trashed.
Btw what were most of your symptoms?
If its true chronic prostatitis it will flare up from time to time.
Oxybutynin has helped big time when it happens.

 

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My symptoms were unnatural urge to go. Fierce. Sometimes what came out didn't match the urge other times it was like a river. At its worst I went 27 times in on day. Also the urge to pee never really went away. There was no relief after urination. In the beginning I had burning on ejaculation, that wasn't always consistent. No sedative in the world helped I took 250 mg of benadryl and still peed 10 times. I took vicodin which usually prevents you from peein at least at first when you take it and I would still pee 12 times. I would constantly be sracthing around the base of penis, moving it trying get comfortable. Sometimes I would feel bladder pressure real low but other times nothing. I too was prescribed OXYBUTYNIN - crap drug in my opinion, took max dose for five days and averaged 15 voids. I even tryed cuttin liquids down to less than 1 liter and I would still pee at least 10 times a day about 50-75ml per void. I joked with the Doc and told him you could put me under and I still would pee five times during what ever procedure you did. This is day 3 on the new regimen and I think I 'm getting better but like I said I until I get two weeks of no symptoms I will remain pessimistic.

 

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@Zmarshall1991

Very true. That is a class of antibiotics that all have the same risk.

I've mentioned this before that "Flomax" or tamsulosin will cause a condition called "floppy iris syndrome". My doctors didn't tell me about this before I started taking it. (From what I have read, most urologist are not aware of this problem.) I need cataract surgery on my one and only eye. If the surgeon is not skilled at handling the "floppy iris" problem the pupil will fall out of the incision. So I am worried about that too.

This medicine is usually prescribed for OAB patients. So, beware.

 

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@Zmarshall1991
If its chronic prostatitis it will comeback.
I've had flare ups 3 times within 6 months and each lasted a week to 10 days
Its gone at moment
If I make it past 12 weeks I'll know it was non chronic prostatitis.
Flomax worked good for me but id never take again.
2 weeks of taking my vision in now more blurry.

 

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@Zmarshall1991
If its chronic prostatitis it will comeback.
I've had flare ups 3 times within 6 months and each lasted a week to 10 days
Its gone at moment
If I make it past 12 weeks I'll know it was non chronic prostatitis.
Flomax worked good for me but id never take again.
2 weeks of taking my vision in now more blurry.

 

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Really glad you alerted us to this. I've realized my urologist never gave me a name for my condition - which i take to mean "I don't know".
What's the "class"of antibiotics called? Did whoever told you this, or where ever you found it, have a reliable, stated source? Can you pass on the source, or the study? Not critizising you. Have you taken this back to any of your other doctors, maybe confronted them? Is there anything discussing whether getting off the drug for a given length of time reduces or eliminates the danger of Floppy Iris Syndrome?
I just had cataract surgery. Does that mean I should stay off that class of antibiotics?
Regarding taking antibiotics for too long. Aren't we taught that's dangerous, for various reasons? (Not to mention cost). You don't take them for too short due to the germs/microbes developing immunity.
I've taken various antibiotics in 70+ years; no idea if I could even find out the list, but I'm saving this for my next post-surgery appointment, ya betcha.
Thank you again, and stay safe.

 

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@AlasSouth
(Not sure who you are asking about this.)

I found out about the Flomax/Tamsulosin "Floppy Iris" by researching about cataract surgeons. I should add that this is a risk if you have only taken a single pill! So that is for life!

The antibiotics were discovered while researching all the meds I had taken. I developed a "C-diff" infection and spent 3 days in the hospital after a dentist gave me clindamycin after a root canal. C-Diff is a serious overbloom of bad bacteria in the gut that can happen with ANY antibiotic. It kills too many of your good bacteria and causes severe diarrhea. It's also very contagious, so they put you in quarantine. It kills lots of people. I am very cautious about antibiotics.

May you trust not in yourself, but in the Lord Jesus!

 

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@MezaJarJarBinks - yeah no longer take it - the ER gave me flomax because they thought it was BPH. I'm pretty sure now that its prostatitis. ( thats what I'm being treated for now) just praying its not CNBP. I was aware of the Floppy Iris thing but I lucked out I guess. The flomax just made me tired not sleepy tired but low energy... very sluggish.

 

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@MezaJarJarBinks - Also, for me the antibiotics thing with C-Dif does concern me but I'm IBS -D have been for nearly 15 years so I'm not sure if I would even notice. Can you take probiotics or is C-Diff to severe?

 

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@Zmarshall1991

I don't know about taking probiotics. Hopefully, doctors could say.

 

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@Izthewiz -- I have been reading up on the differences between Prostatitis. I think you and I might have had the Acute or Chronic bacterial prostatitis. The main problem is getting the right type of treatment. Some antibiotics just won't penetrate the prostate well enough. The burning you've experienced and I have as well (although more recent symptom for me) are more hallmark problems of infection. The other types of prostatitis, CNBP/CPPS seem to express more pain after sex - nerve pain. I have only had burning after ejaculation but not all the time. One symptom I had that went away but I had for about a month was chills. That is linked mainly to Acute P and sometimes Chronic P. Anyways just thought I shoot you this tidbit. I have already reserved the notion that I might be on Antibiotics for a least a month or more. I hope I get better like you.

 

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@Zmarshall1991
I had the chills with mine also.
I was taking hot baths do to this.
Also burning after sex/ejaculation.
It is difficult to get the right help and diagnoses.
It took from October 26th until
Late April to get diagnosed with prostatitis even without bacteria showing up.
I've been to the ER 6 times over the timeline.
I've dealt with 3 flare ups that made life miserable the first time was the worst and seemed to break like a fever within 8 days.
Are your symptoms any better?