What is next? moving on.

[ThatFLGuy]

Well, it is finally time to move away from my current hospital, no matter what the cost of travel will be. Anyone who has read my stuff knows how long this has been coming, but now it is set.





Two+ years since I have seen my Gastroenterology doctor. I cannot see my PCP without a trip to the patient advocates office. Even my Saint of a physical therapist says it is time to shake the dust off my boots and move on.





The doctors at my current hospital have always felt that this would improve with PT; well, it hasn’t. I am done hoping my PT can find something that will work, and now I am going to work on seeing if another medical hospital can make a difference or just tell me that this is my permit life now so that I can work to accept what is.

 

[Pam53]

Well, it is finally time to move away from my current hospital, no matter what the cost of travel will be. Anyone who has read my stuff knows how long this has been coming, but now it is set.





Two+ years since I have seen my Gastroenterology doctor. I cannot see my PCP without a trip to the patient advocates office. Even my Saint of a physical therapist says it is time to shake the dust off my boots and move on.





The doctors at my current hospital have always felt that this would improve with PT; well, it hasn’t. I am done hoping my PT can find something that will work, and now I am going to work on seeing if another medical hospital can make a difference or just tell me that this is my permit life now so that I can work to accept what is.

Yep! FLGuy - I think you have given your current medical team more than enough of YOUR time. Not seeing your Gastro guy in 2 years is shameful - not to mention a trip to a patient advocate just to get an appointment with your PCP! Sounds like a crazy kind of - insurance?? - What ever the reasons for why it is set up that way where you are - not one is really helping. If having to go farther for better - we hope - will be a great improvement for you. Good luck and keep us posted. - Pam

 

[ThatFLGuy]

Yep! FLGuy - I think you have given your current medical team more than enough of YOUR time. Not seeing your Gastro guy in 2 years is shameful - not to mention a trip to a patient advocate just to get an appointment with your PCP! Sounds like a crazy kind of - insurance?? - What ever the reasons for why it is set up that way where you are - not one is really helping. If having to go farther for better - we hope - will be a great improvement for you. Good luck and keep us posted. - Pam

Thanks Pam.

I have held off hoping that it would never come to this point because the hospital I visited back when I still had my ileostomy for a second look at my case is 91 miles from my house. Alone, I don't have the budget to drive down to that hospital all the time to re-due test. I also don't want to be a burden to other family member when the hospital says "You have to have someone drive you for this test"

It just sucks. Has sucked for long enough.

Last year I tried to get a nomal check up from my PCP and was told that I could not be seen until April on the same day that I already have follow up with my PCP

So, Yea. I am done.

And If where I went before take their sweat time to see me then I will be going to Florida this fall to get seen at the best gastroenterology hospital in the country.

 

[Pam53]

It sounds like if you can do it - move to FL. Better than 91 miles per visit. Good grief. - Pam

 

[ThatFLGuy]

It sounds like if you can do it - move to FL. Better than 91 miles per visit. Good grief. - Pam

Could never afford it. Can't/Won't live with my parents again. An apartment the size of mine in FL would be more than what I make in SSDI.

I don't mind driving 90 miles to a different hospital. It is just the gas money that has been the big issue.