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At least I feel it's unique, as I can't seem to find anyone else who ever heard of it. I am 68 and have been suffering with incontinence for several years. When the Toviaz and other meds stopped helping I went to my GYN. He performed an internal and said it was due to nerve damage. I had an interstim from Medtronic implanted in October 2013. It worked fine. In May 2014 I had a SCS implanted. I was assured they would not "fight" with each other. Suddenly, when I woke up I would immediately pee. Sometimes I would be able to at least turn over or sit up first. I returned to GYN and Medtronic reps tried to reprogram my device. Nothing worked, so I was referred to a urogynecologist specialist at a teaching hospital. I had another urodynamics test, and tried several other medications over several months. Nothing helped. Our next step was Botox injections. I got a second opinion from another urology specialist and they agreed it might help me. I was unable to get it done as I needed a hip replacement - there was no way I could be in stirrups. After two years of specialists I had a hip replacement last month. Strangely, for five nights after my surgery my problem was GONE after two years. It was back the next 2 nights, and then the next 2 nights it was GONE. It's been back ever since then. I am making an appointment with another urogynecologist and hope to start fresh with her. I think a lot of tests that could have been done never were. I just can't believe there is no record of anyone else having this problem. If any of you have any experience like this I would like to hear from you.
