Stent with OAB /Neurogenic bladder

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I am wondering does anyone have a stent in for neurogenic bladder (OAB) my side affects are hesitancy, difficult starting to void, leakage, urgency, weak stream, dribbling, vibrations, cramping, sometimes unable to go. Have in the past been recommended to self cath by Urology nurse but deemed by continence nurse and Physical OT deemed unsuitable due to disabilities incl Autism, learning disorders and essential tremors in hands.

At night I have physical issues getting to the toilet due to falls due to bipolar sedatives I need and been told just to use my diapers.
I am wondering if something like this https://pubmed.ncbi.nlm.nih.gov/24419714 (which I will ask urologist if I ever see one (referral since Nov 2020) would help with eliminating sensations as it is driving me nuts as lately been waking up 3ish times a night as been trying to increase water intake so I am hydrated and my bladder has been in over drive the last 2 days as nearly fainted on Thursday due to dehydration. I am looking at this option as cathing is out and I want an easily reversible option.

As it is I have not been able to get any relief with the OAB meds possibly because if neurogenic caused as it was caused by my issues at L3L4L5S1.

Thank you in advance

 

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I discussed doing a Stent type deal with my urologist, but was told that they discontinued doing stents. It might be a practice by practice thing now though. I'm honestly unsure.

 

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I went through years of something similar and was eventually unable to cath due to sphincter spasm and scar tissue. You could try Botox but after that stopped working I had a sphincterotomy and bladder neck incision. I just free flow now, very little to no control. While extreme, it ended all spasms, pain, getting up at night and infections which landed me in the hospital at least once a year. Could not be happier, the leaking has turned out to be easy to deal with and better than the symptoms. good luck

 

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@SJPERSONAL I also recommend the first thing to do is to accept diapers and fight against them less. I also recommend Botox, because it particularly assists those with neurogenic bladder issues in your lumbar spine. You and I have very similar symptoms and the injured location in the spine. Botox cuts my daytime peeing down by three times (adds so much more confidence when out and about; really amazing!), and my nighttime peeing by about 1.75 times, with less leaking, awakening, and wet sheets. It lasts for 3 to 6 months. I haven’t had it that many times – less than five in three years (ideally done quarterly) - getting it again in a week - so I don’t have any kind of scar tissue from the procedures yet. Most don’t. I don’t recommend self cathing, particularly if you’re a female. It will definitely give you scarring. Perhaps if you are elderly with a shorter lifespan remaining, cathing scarring would be less if a risk than someone younger. My doctor says he refuses to recommend catheters for people until they’re at least 70 years old.

As for psychiatric medications making you sleep more heavy and have a higher fall risk, I understand. I used to curse how many times I had to get up to pee and regretted if I took something like Ambien and wet the bed. But I have completely reframed my experience to love it when I wake up with full diapers, because it means I slept through that many urges. A wet nighttime diaper equals good sleep, and good sleep is crucial for existence. As for leaks in the middle of the night, I do not like it when the sheets get wet and I have to make the bed afresh because it’s very painful in my lumbar spine as I’m sure it is for you as well - particularly first thing in the morning when joints are stiff! However, I still stick with pull ups. If my symptoms worsened, I would go with NorthShore MegaMax diapers which is what everyone here says is the best. They say the black one holds the most liquid.

I hope some of this info may help you. I think it’s such a horrible shame that you haven’t been seen by a urologist yet, even though you were referred over 14 months ago. That wouldn’t happen in America, which is why I think socialized medicine probably doesn’t truly work - not that the way America does things is great, either. But at least we can choose who we want to see and when. I wish you the best, with or without stent.

Oh yes, one further point. I have seen numerous people over the years post that stents are really bad for you and have a very high rate of failure and ineffectiveness m. We’ve had a urologist or a urologist nurse here talk about how they stopped doing stents years ago. But who knows, for the most part, I would trust your doctor’s recommendations.