Some hard truths. Physical Therapy update.

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Physical therapy today went well but some truths came out that I have been dealing with that my therapist was aware of but now wants me to stop.

The first was that I don't eat before appointments so there is not as big of a risk for accidents.
I also don't really drink before appointments or if I do I go as soon as I get to the doctor's office.
Even if I am just going shopping I will do the same thing.

The issue with this is that I am not living life in a way that gives a real-world view of how bad things really are.
My therapist 1) wants me to get out more 2) eat as I would at home 3) keep track of when things go bad. 4) Up my protection if need be and keep a change of clothing with me (Already have a change of clothing in my bag...learned that one the hard way) 5) try to find what works.

Truly I have not really been living life with all of this.
I don't go anywhere except to doctors and food shopping.
I have not tried to visit some of my family except my nanny for months.
My life is just trying not to have accidents rather than living through the accidents.

During my physical therapy appointment today she let me know some hard truths.
1) there is not data that shows that there is a way to fix everything I have going on. 2) We can, and are trying to get some muscles to stop acting stupid but that means less control (The idea then is to build the muscles back up the right way) 3)every therapy session, for now, will include internal massage (Finger in the bum) to try to get the puborectalis muscle to stop acting stupid. 4) she ordered a device to try to stimulate the muscles and I have some new stretches to do.

The last thing is to find and do things that I am passionate about in spite of what I have going on. That is a hard thing for me but I will be trying.
 
Life's journey is never easy... But you have to keep a positive attitude and enjoy life to its fullest potential. Good Luck!
 
Thanks for your entry. It is helpful to know the struggles that everyone has to face in this situation involving incontinence and attempts to control it. There is no sure way to predict when things will return back to normal.I fully agree with your therapist.you should live normally and practice as she recommends. persistence work acceptance and living a normal life is crucial. Time is on your side and all our sides. Best to you and the work you’re doing with your therapist
 
What is your final prognosis through all of this therapy? How far does she think she can get you and how much improvement does she think you can expect?
 
Great entry, ThatFLGuy, and I appreciate your sharing this. Much of my life is very similar, but I've been telling myself it's due to Covid restrictions. Well, a lot of it is, but I haven't been for drives out in the country and other activities that are safe that would make my life more stimulating.Your therapist sounds wise, and you are listening to her. Good for you!
 
msuspartan said:
What is your final prognosis through all of this therapy? How far does she think she can get you and how much improvement does she think you can expect?

Not great. Physical therapy, repeat Anal Manometry test mid/late summer, and if no progress then recommends surgery. So it is getting better with therapy, have surgery, or try to live with this which is not an option with the pain and accidents.
 
msuspartan said:
@ThatFLGuy if it doesn't get better with therapy ... what then?

If I am not able to get somewhere with therapy then the option is really surgery. The issue is that GI does not know what surgery is available to help the issue that I am having so it will be a consultation first to see what can be done and weigh the pro-cons.

My issue is that my puborectalis muscle is not working right and has a hypersensitivity issue. Also, my external anal sphincter is doing nothing and the internal one is weak and getting weaker every day because it is doing all the work.

So by mid-year, I will have a reassessment to see where I am at and descuss options with doctors.
 
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