So hello and so forth

[Archives1]

For the past some odd months my bladder has just been getting bad. I’ve never had issues before. I had major urge issues to the point where I’d see stars with the pain. It was with minimal drinking and at least five times a day unless I drank literally nothing. I went from not having to go super urgently in ten seconds or less. Bedwetting, day spurting and now all but no control. I have to wear some form of protection 24/7. I seriously regulate what I drink yet still the same. I have no obvious infections or any of the most obvious issues. Luckily the pull up style ones I have are discreet. The issues started before the job, so at least mild leaking is my concern as opposed to surprise really wetq pants. I work front end retail so you can imagine my apprehension. I have an appointment with a urologist soon enough. The positive is that I was in the army and use the va. As such, my supplies are covered. This is not an expense I could afford otherwise. Even just typing this makes my heart drop a little. I’m sure many people my age are here. I’m a guy and 38. I’m just lost.

 

[Archives1]

Welcome in, the water's fine! No need to feel bad here.

 

[Archives1]

I'm 40 and have a neurogenic bladder condition and have been in full time pull up diapers 24/7 for over a year now. You are definitely not alone.

 

[Archives1]

You are definitely not alone. Something I learned - be sure to drink enough fluids. I drank so little that I had an unsuccessful blood draw because my veins were so flat.

 

[Archives1]

I will second boasammy in that make sure you drink enough fluids. I am 37, diagnosed with relapse remitting ms over 2 years ago. I have to wear full pull ups or tape on diapers obviously depending on what I am doing but honestly this is a great group here to provide guidance and support when you need it. And there are no judgements which I very much appreciate and respect. Welcome aboard and wish you good results for yourself. Incontinence isn’t that bad really all things considered and hey sometimes it does have its perks if you are well prepared. I maybe to positive for some folks but why not be positive.

Negative thoughts and energy come with its own problems is my belief.

Glad you found us.

 

[Archives1]

hello and welcome

 

[Archives1]

You are welcome here.

 

[Archives1]

I've had problems since I was 28 and involved in a mva. Things have gotten progressively worse and sometimes it is a real issue, at least mentally, but sometimes I see the protection as the key to my freedom. There is very little that I can't do. If I am properly attired, my car , my bed and home and my clothes are safe. The worst thing, I think would be odor. I don't advertise my problems, but I don't think having someone find out would be as bad as smelling, or having leaks or accidents. All that is to say that what you are probably dreading at this point need not radically change your life.

 

[Archives1]

Hi SOYEAHANDTHAT, Glad you found your way to this site I must say that of all the support sites that I belong to, for varying other ailments this is by far the most supportive and with great advise etc. I agree with the other comments re staying positive etc. try to see the humorous side of things where you can and certainly look to the positives of having to wear diapers I can assure that they do exist strange as that may sound. Good luck and stay in touch.

 

[Archives1]

The thing that gets to me the most is the lack of why. With respect to those dealing with major medical conditions, I am currently stuck in limbo status. I’m not saying I want a major diagnosis, it would be just be easier if I had some sort of explanation. The va system tends to run on three cylinders. I’m glad it’s there though. Thanks for all the support. Just being there is half the battle.

 

[Archives1]

Isnt THAT the truth×2.
How can it be such a mystery that for some folks the bladder just doesnt blad properly? And like so much medicine a surgery leads to more surgery and medications lead to a list of fine print?
And the dear old VA...like so many instutions that are supposed to help us out of the ditch just grinds out countless hours spent in waiting rooms.
Well, at least here you will get really knowledgeable people on what does help and people who will accept you just as you are.
Perhaps its like that old saw about stage fright and imagining every one in the Audience is naked. Here, you learn people all around you are in different states of incontinence where ever you go, so imagine your audience is wearing diapers and pull ups!

 

[Archives1]

after prostate surgery about 5 years ago I bacame urinary incontinent ,wear a pad 24 / 7 heavier at night thought it would get better but at age 77 and now with carcinoid and metatastic prostate cancer being incontinent is the least of it

 

[Archives1]

It’s mostly about accepting yourself and patience I’ve found. Dr.’s dont have all the answers and no o e knows your struggles like you do, so finding the best way to manage your incontinence is where you need to start and that’s we’re patience comes into play!! Most of us here have tried just about all the products out there and all you need to do is ask about what type of product you use or want to try and I’m 99% sure someone on here has some information on it to share. Next find a way to accept who you are and know we aren’t any less than anyone else, we use absorbent products like people with diabetes use insulin, it’s what we need to get through the day. I’m pretty sure we all still struggle with it at times!! So when your struggling come and chat with us and start a new topic about what’s going on and we WILL be here for you!! I love the line in Forest Gump when he talks about how life is like a box of chocolates, this is so very true!! Keep your chin up and find your way to be patient and how best to manage and you’ll be fine!!

 

[Archives1]

@Petejc Very true. UI is just the latest thing to deal with. The trick is to live and enjoy life anyway.