I've done the Urologist routine. No joy. They didn't refer me anywhere. I have a Neurologist for something else, already, and she hasn't suggested anything, but I never asked her if there is a connection to Peripheral Neuropathy. PN isn't related to the S1 nerve, far as i know, but now I'll ask. I had an operation (for cancer) by a NeuroSurgeon, last year. The incontinence increased drastically, no one was willing to talk about it - and i do mean no one, not even the PA and the nurses. That was May. The incontinence has gotten a lot better. I've never seen a connection made in the literature, although maybe when the nerves/spine are damaged in an accident. A bad concussion from a fall sent me to the ER - and one of the symptoms was almost total urinary IC. They discovered the brain cancer. Not sure what conclusions can be drawn from that mess. I do take meds for the PN, and they work.
It seems likely that IC and spinal damage can be related. For example, if you are a paraplegic, or "just" paralyzed from the waist down, what does that mean for IC? Damned if I know. Maybe getting an opinion from a Neurologist, if you can afford it (I can't believe i had to say that. Our medical system is broke), would be worth it.
Anyone here had a Neurologist with an opinion?
