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Staff member
Hi,
I’ve made som progress in accepting my neurogenic bladder and incontinence but I feel like the more comfortable I get with it, I guess I’m still grieving the fact that I’m losing strength sooner than I thought I would.
I used to have my helpers put on baby powder while standing up but I noticed that it is a lot easier for both of us when I’m laying down. I just feel more and more infantile the more I take care of myself. I think I’m angry because I thought I knew the prognosis of my cerebral palsy and apparently I didn’t. I guess this is part of having a disability…I just didn’t expect to be four years old again so fast.
Thank you for listening to my rambling, I really appreciate it!
I’ve made som progress in accepting my neurogenic bladder and incontinence but I feel like the more comfortable I get with it, I guess I’m still grieving the fact that I’m losing strength sooner than I thought I would.
I used to have my helpers put on baby powder while standing up but I noticed that it is a lot easier for both of us when I’m laying down. I just feel more and more infantile the more I take care of myself. I think I’m angry because I thought I knew the prognosis of my cerebral palsy and apparently I didn’t. I guess this is part of having a disability…I just didn’t expect to be four years old again so fast.
Thank you for listening to my rambling, I really appreciate it!