Most challenging part?
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Archives1
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Some days it's worrying that someone will find out- (it has happened), other days it's that what I'm wearing will leak- that has happened too. I guess the biggest concern is that odor would be detectible- but thankfully, that hasn't happened- so far as I am aware. I am careful to clean up after an episode, and if the brief doesn't smell like stale urine, then I don't either. (I hope...) The single biggest fear is that a recurring dream I have, in which I find myself out in public wearing nothing over my protection, will come true. I know it won't, but when I dream, I don't know it's not real.
Archives1
Staff member
The first day I went back to work a month after surgery I ditched the depends and just used a pad in my underwear. Big mistake, a few miles from the job site I felt dampness on my crotch, so I pulled into a Walmart parking lot and when I exited the car my entire crotch was soaking. Thank God Walmart was open, I ran inside bought a pack of Depends, Pads, boxers and blue jeans. I checked myself out at the self checkout lane all while pretending I spilled coffee in my lap. I went into the restroom cleaned myself up and changed into my pads, Depends, Boxers and new pair of jeans. Since that incident that’s pretty much how I dress.
I keep a set of everything in my car, but the only thing I change are the pads, sometimes 3 or 4 while at work.
If you go on a cruise bring twice as much pads and Depends you think you’re going to need, I ran out and ended up buying baby diapers and modified them to use in my underwear. So the biggest challenge for me is running out and not being prepared.
I keep a set of everything in my car, but the only thing I change are the pads, sometimes 3 or 4 while at work.
If you go on a cruise bring twice as much pads and Depends you think you’re going to need, I ran out and ended up buying baby diapers and modified them to use in my underwear. So the biggest challenge for me is running out and not being prepared.
Archives1
Staff member
The inability to be spontaneous. Was over at a friends yesterday turning wrenches and it was hot. When we finished, they decided to hop in the pool for a swim to cool off. I couldn’t exactly just hop in despite their reassurance that shorts were fine in the pool. Had to go home and change before getting in…came up with a good excuse that the dogs probably needed to be let out for a while and that I’d be back as soon as they were relieved.
Such is life, but you get on with it and make the best of it.
Such is life, but you get on with it and make the best of it.
Archives1
Staff member
Mike55 -- The most challenging part is having urinary incontinence + Overactive Bladder (OAB) + Fecal Incontinence (FI) + Lymphedema of Lower Extremities, Genitalia, Abdomen. Whew! That's a lot to deal with!! At least it is 4 me!!! Am taking Pelvic Floor P.T. 4 the 3rd time. The physical therapist is a Lymphedema Physical Therapist who is knowledgeable about genital Lymphedema. Am also seeing a Lymphedema Physical Therapist 4 the rest of the areas. Suspect that I also have Lymphedema in armpits as feels like I'm sweating all the time. But when I feel my underarms they are dry. My husband & caregiver do not understand how I feel. In fact, only here do I find understanding & empathy. My feet feel wet all the time, my legs usually do, my crotch always does, my underarms usually feel like they're perspiring. The wetness that I'm feeling, though, is on the inside, not the outside of my skin.
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