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I don’t have the energy to really write this all down but I wanted you guys to know how things have been going. I’ve had a tough year. I’ve been struggling with a fib, which leaves me short of breath and exhausted. I had a couple of ortho strains. I had several bouts of what I thought was bordering on an intestinal blockage. I fell in July and broke my fibula (practically the easiest, most minor break you can have) and four days later, I had an ablation for the a fib. With all of that and trying to avoid Covid, I became too sedentary. Additionally, two weeks ago I ended up in the hospital with pain and what I thought was obstruction. Turns out it was my gall bladder!
So into the ER on Thursday and surgery Saturday morning. I’ve become so sedentary that I was evaluated by PT and they felt I needed rehab to get well enough to go home. I had requested PT at the beginning of September from my PT, so I gave in.
Shit! Incontinence hell. I had a friend bring me some products from home so I had supplies until we could get supplies in place. It didn’t go well. They got me pull-ups that work better than what I have been using, but I use booster pads inside that they won’t provide because they are too expensive. They poo-pooed my bedwetting for a few days until I flooded. Then I got bed pads (passably good). My sister bought my booster pads on Amazon and had them shipped to me.
I take Lasix for excess fluids and they can’t seem to understand that I take them at bedtime since I wet the bed anyway. Take the pill and try to race to the bathroom multiple times across six hours or just let that drain while I’m asleep and peeing anyway? How is that a difficult choice!
The policy here is two showers per week. That just isn’t enough with incontinence. And they’ve already missed me twice for showers.
My laundry (wet and full of pee) is in the closet where everyone needs to pass. And today they didn’t pick up my laundry as the said they would, so more than a week of peed laundry in my room.
They hit my non-negotiables and I’m pushing back. I figure they’ll send me home sooner if I’m a big pain in the ass. BTW, it is my policy to be as flexible and pleasant as possible to the front line workers.
You guys understand the Shame and frustration of trying unsuccessfully deal with my incontinence in a new place without being able to use my “system”. Took me a long time to figure that out. And I’m 65, too young to just submit and live with it.
Keep fighting the good fight, my friends. It will be better here soon!
So into the ER on Thursday and surgery Saturday morning. I’ve become so sedentary that I was evaluated by PT and they felt I needed rehab to get well enough to go home. I had requested PT at the beginning of September from my PT, so I gave in.
Shit! Incontinence hell. I had a friend bring me some products from home so I had supplies until we could get supplies in place. It didn’t go well. They got me pull-ups that work better than what I have been using, but I use booster pads inside that they won’t provide because they are too expensive. They poo-pooed my bedwetting for a few days until I flooded. Then I got bed pads (passably good). My sister bought my booster pads on Amazon and had them shipped to me.
I take Lasix for excess fluids and they can’t seem to understand that I take them at bedtime since I wet the bed anyway. Take the pill and try to race to the bathroom multiple times across six hours or just let that drain while I’m asleep and peeing anyway? How is that a difficult choice!
The policy here is two showers per week. That just isn’t enough with incontinence. And they’ve already missed me twice for showers.
My laundry (wet and full of pee) is in the closet where everyone needs to pass. And today they didn’t pick up my laundry as the said they would, so more than a week of peed laundry in my room.
They hit my non-negotiables and I’m pushing back. I figure they’ll send me home sooner if I’m a big pain in the ass. BTW, it is my policy to be as flexible and pleasant as possible to the front line workers.
You guys understand the Shame and frustration of trying unsuccessfully deal with my incontinence in a new place without being able to use my “system”. Took me a long time to figure that out. And I’m 65, too young to just submit and live with it.
Keep fighting the good fight, my friends. It will be better here soon!
