I was on Active Surveillance, as said very slow growing cancer...for a year.
Then an MRI - problem was, the first biopsy didn't find it all!
After the second biopsy, said had to do something NOW and decide between Radical Prostatectomy or Radiation. I went w/ surgery, as can have radiation after if didn't get it all and needed it, but surgery is more difficult after radiation and can't have robotic RP.
After the post-op biopsy, they determined I was Stage 3 - not good. Also, maybe by waiting, the cancer moved from my prostate and invaded by seminal vesicles (didn't even know I had those). Since it made it to the seminal vesicles, it could have made it to my blood stream, so could show up ANYWHERE in my body.
Just had my first PSA post-op and it was 0.04. Not bad, but because it was something and not 0.0, my Dr. surgeon said it is either a piece of benign prostate that got left and will stay at 0.04 OR it is cancer and the PSA will rise. If so, then a test to see where and then radiation - usually in the pelvic area.
So, good for now, but if I had to do it over again, I wouldn't have waited. It's definitely not going away and biopsies are only as good as what they biopsy - an MRI pre-biopsy for a targeted biopsy would definitely be the way to go. I almost waited too late - was already Stage 3. I think Stage 4 is real trouble. I guess I was scared and just didn't know - told slow growth and had time - almost didn't!
Now will just live from PSA to PSA, pray a LOT in between and see what happens next! I do KNOW that God has me, has a plan for me and am accepting of all that this entails. I offer it up to His Holy Name! It is NOT for nothing!
So that's my story and my 2 cents - I agree w/ those above that if had to do over again, I would not have waited.
Good luck to you & +God+bless+!!!